Knowing yourself: warning of sensory overload

Stock photos

As promised, I'm going to dig into more of how a sensory/stress overload actually feels and how I work to stay ahead of them.

I mentioned in my last post that there is a prickly sensation in the back of my neck that is one warning. Another, if I'm paying attention to myself, is that I become less of a generally pleasant person to be around. I may experience feelings of anger that have no apparent trigger. I don't like feeling this way, so I've learned to recognize it most times. If I'm sick, I may need help seeing it. But then, who is pleasant when they're sick?

Trigger factors:

Stress: If a lot of things are a stressing me out, I have to be more mindful.

Heat: Thanks to my MS, heat is a threat. I can't be out in direct high  heat for a very long time. It wears me down fast and leads to other triggers.

Exhaustion: The more tired I am the more at risk I am. It's important to pace myself. But I am a stubborn man at times. It's not easy losing your independence to MS or any other condition.

Signs:

Snappy disposition: If I'm getting cranky it's a sign.

Dizziness: Vertigo is not my friend. It's a sign that I'm overloaded.

Tilting vision: My view actually tilts on a weird slant to the right and happens with bursts of dizziness.

Extra tremors: The more I'm having, the more careful I need to be, but I have tremors for multiple reasons, so I have to watch for tremors that come with the rest of the issues here.

Rapid breathing: Also comes with an accelerated pulse rate that I can actually feel in my neck.

Loss of coordination: Unable to grasp things properly, dropping things, and extra stumbling beyond what I normally have with MS.

How it feels. I get hot. Really hot. Hot to the touch even. I lose cognitive function and get confused. Nothing I see, feel or hear seems right or makes sense. Fight or flight is being triggered with no physical threat apparent. My only hope is to get somewhere dark and cool.

I use a fan for two purposes. One is temperature and the other is to dull my other senses, like my crazy hearing. White noise from a fan is very helpful. I use the same to sleep at night.

People who suffer from sensory overload have a tough job/responsibility in controlling it before it controls them. In its full grip, it's a blind rage like no other where nothing makes any cognitive sense any more. Everything is closing in on you. Everything; every color, every sound, every sensation on your skin, every light, EVERYTHING.

It takes years to decades to come close to controlling it completely. Some are luckier with it than others, of course. Many never completely control it.

What seems to be a problem out in the public still today, is that this is a real medical condition. It really affects people. Once in a while, I get the chance to educate someone. We can only hope to keep educating and getting the news out that these situations are real.

If you are suffering from sensory disorders, it falls to you to have a home protocol where you can escape and destress.

If your child has a sensory disorder, it falls to you to teach your child how to develop the same home protocols. Fortunately, there are tons of tip sites and assistance growing on the internet every day. I posted links to a couple of sites on my last entry.

Remember, you are not alone. It's real. And there are more of us out there, than most people realize.

Freakout Kid is actually a sober reminder

With over 83 million views since 2009, who hasn't seen the Freakout Kid? If you haven't , take a moment to watch the video:

What you are seeing was staged. It was meant as humor. I have a dark side to me and I admit I laughed. My wife didn't find it so funny. To her, it was a sober reminder of what she's seen at the worst points of an autistic meltdown. Whether from sensory overload or acute stress, an autistic meltdown is nothing to laugh at. As an important note, it's often worse that what you see in the video. 

Here are a couple of things to remember about autistic meltdowns. Unlike throwing a fit or a simple temper tantrum, they are involuntary at many of their worst points. Studies have linked autistic meltdowns/sensory overloads to seizure-like conditions. They are a  medical issue every bit as much as they are a behavioral issue (depending on individual). 

These fits run high risk of self and bystander injury. The flailing and agony is real. The triggers can seem microscopic to the onlooker. 

Learning to live with this part of the disorder is important from early life.  Stressors have to be managed differently and more acutely than with a average person. It can take years longer to learn how to live with it and recognize your own alarm signals and that's if you're high functioning like me. There are just as many who will never learn to control the overloads in their entire lifetime. 

Here are a couple more links for extra information:

Wikipedia

North Shore Pediatric Therapy

It's important to also understand that Sensory Processing Disorder does not only occur with Autism. I happens with several medical conditions and takes on several forms. ADD and Epilepsy have their own versions of the issue.

The pain is real. The condition is real. It's not just a matter of some kid being a brat. Can it be triggered by not getting his toy at the store? Yes it can, which is why therapy and firm parenting are still very important. Get what I'm saying here? I'm not saying let the kid have their way or don't use any discipline. I'm saying you have to use different approaches than with a typical child. You can't just beat them into submission. Hitting is nothing more than a sensory trigger, right along with having to hold or restrain them in the first place. 

Do I still have sensory overloads at 44 years (almost 45) of age? Yes. I am still at risk. I have had them. My wife has had to take me to my fan where I can destress and escape the sensory input that I'm being flooded with. Hard to imagine for an adult, isn't it? 

It's why I have a permanent brain injury. I've struggled with the attacks since I was 6 years old. Before I got medication to assist, I had attacks every couple of weeks, though sometimes I could stretch to a couple of months. So I'm not just talking out my rear end here. I've lived it and now I work to help my son learn to get far past it and control it for himself. I know there are many of you out there who know exactly what I'm talking about. This blog is for you.

I know what you are asking now. How do I know I'm going to have an attack? I'm pretty well practiced now at feeling what it's like before it gets here. I very rarely have to have assistance. I don't burst out in public. It starts at the nape of my neck, moves into my spine and it's a sensation across my body that I have a hard time describing. Have I been stupid and ignored the signs before. Yes, a couple of times. My wife has set me straight on that though, let me tell you (my wife is a warrior). I also have to use extra care in how my MS wears me down because fatigue is a contributing factor. But I'm getting long in this post, so I will go more into how it feels and how I know it's coming in my next entry. Thanks for reading.