Your Doctor and the DSM

Today I found this article about more on the controversy over changes in the DSM, the diagnostic manual supposed to aid in diagnosing "mental illness". What the article suggests, I find very interesting. It suggests that most doctors don't like the DSM in the first place. Check it out HERE.

After reading this I can understand why. Mental disorders are not something you can fit into a distinct mold. They all have variations and degrees of effect and many are mixed in the people that have them. For example, it's possible to have Asperger's and Bipolar disorder at the same time. How do you distinguish them? That is what your doctor is supposed to be for. There are long trusted tests that can be administered and very long questionnaires that can help decipher. Specialists have been using these for years.

This further supports my belief that the key is not the DSM, rather your doctor. Your doctor has the final say and write the proper insurance codes to get you the support (meds, etc.) you need. No matter what they write in that DSM, the DSM is not your doctor.

Since the recent suggested changes, I've seen people worried about losing their diagnosis or having their diagnosis messed up in general. I literally have had people say to me that they need to worry about avoiding re-diagnosis. Well, here's the thing, don't accept it. You know your child better than anyone, you've researched the condition in and out (I hope) and have a good rapport with your doctor (I hope) and you can stick with what you know. The reality of your conditions or your child's conditions don't change just because a book says so. Talk to your doctor about your worries and that you want to make sure your child gets the support they need.

DSM V: A real look

Lately the internet is a buzz with all sorts of chaos about the proposals for the new DSM (V) set for 2013. Petitions are flying, people are screaming and panicking...... STOP. Please stop. And please read this through so I can help you better understand. Your benefits, diagnosis, treatments, supports and what ever else are not being taken away. You are not going to lose your identity or anything else. Lets walk through it, shall we?

Primary complaint is that they are removing Asperger's and Rhett's syndrome from diagnosis in the DSM V. But hold on, that already happened. Yes, it already happened. DSM IV lists the new compound definition as Autistic Disorder. Read it HERE. Click on the tab that says DSM IV and read it.

What does this mean? It means that you either have autism or you don't, period. If you were diagnosed with Asperger's, then you have autism. If you were diagnosed with Rhett's, you have autism. It is not intended to take anyone's diagnosis away. It doesn't change your diagnosis except for the sake of a word.

Why did they do this? The biggest reason is that autism is already really hard to tie down in a category like when they had five forms listed before. It was hard to diagnose and still is. Having all the varied categories actually created more confusion than they were worth. Consider this:

Right now there are still several states where insurance will not cover treatments for "Asperger's" but they will for "Autism". Think about it. The new definition in the DSM means you are actually more likely to get the treatments and support you need because of insurance companies needs for specific terminologies.

Here is a quote from that same link under the tab of "rationale":

Because autism is defined by a common set of behaviors, it is best represented as a single diagnostic category that is adapted to the individual’s clinical presentation by inclusion of clinical specifiers (e.g., severity, verbal abilities and others) and associated features (e.g., known genetic disorders, epilepsy, intellectual disability and others.) A single spectrum disorder is a better reflection of the state of knowledge about pathology and clinical presentation; previously, the criteria were equivalent to trying to “cleave meatloaf at the joints”.

Be sure to read the tab for the DSM V. You will notice that nowhere does it say that you are not autistic if you were previously diagnosed under one of the five previous forms of autism. All that is happening is a change of terminology, nothing else. 

Asperger's and Rhett's have not ceased to exist, they are simply consider as "Autism". That is all. I hope that people can calm themselves soon and see this before they cause themselves a lot of unnecessary stress.