A Question for you fearless parents out there on Autism in school

Today we are discussing my son's grades and I would like you fearless parents to chime in and tell me what you think! Pass this around and share it. The more input the better.

As many of you know, my son was recently in the hospital for a week because of suffering psychosis that made him hallucinate and hurt himself. It made him rage at everyone around him and I say "suffering" because I mean it. He also hated himself for it. He blamed himself for it. He didn't understand what was happening to him.

Now there's still plenty he know he could have accomplished if he put himself to it, but it was random when he did.

All that being said, we have rules about bringing home an F. There still must be consequences for consistency. The main area of consequence that seems to hit home is losing his DS, and computer games. He is obsessed with his DS to the point that he incorporates video game play into everything he does. A common autistic trait, actually. And he doesn't go completely out of control without his DS. At this point he seems to want to do what's right to earn it back.

Here are his grades:

Conduct: F
Reading: B
English: F (this is the class where most of his rage seems to come out but is slowing down now)
Spelling: B
Writing: Unsatisfactory (not because of difficulties but raging and refusing to even try)
Math: D
Social Studies: A
Science: C

We know he can do this.

So here's the rub.

The current vote is that he loses his DS until his next report card. He has to show us that his grades are improving and are no longer Fs or Ds. That's 6 weeks. I wouldn't have too much problem with that if it weren't for the fact that he had to be hospitalized.

So I have two counter ideas and want honest input (no put downs please!):

A: Cut the punishment down to 2 weeks flat.

B: Use his conduct grade. We get review of his conduct grade once a week. I could hold back his DS until his conduct grade shows up at least a B. That alone could take three weeks, but would give him something shorter term to aim at.

I have nothing against disciplining my child, I just don't want to use a wrecking ball to drive a nail. I will also say that it is easier said than done. So what are your thoughts my friends? Please chime in and share!

Everyone needs support in autism parenting

The last couple of days have been a rocky ride for me. My own medical conditions have been slapping me around and making it hard to get things done. Still, I have managed a few things and made a decent weekend for a family visit. In recent events, I have found a challenge. Well, it's been there all along, but you may be able to relate.

This challenge is in co-parenting an Asperger's child or any child with special needs. This challenge is support to the child and the other parent. Support has to go in all directions. While that sounds simple in words, the application is anything but.

The most obvious need of support is the child. His difficulties in dealing with the world around him demand it. He has a lot of development to catch up on and the world isn't likely to be forgiving. Half the time, it's definitely not forgiving. One of the lessons recently cited to my son is this: "Our condition is not an excuse to break rules". Discipline can be tricky however thanks to sensory issues. I can't spank him, it will cause a full blown meltdown for hours. Yes, a long long time ago, I was a parent who used spankings. I don't anymore.

Next there is the co-parent, and even more challenging, the step-parent. A step-parent is walking into a whole new world and it's quite an eye opener. For an accurate view on what this is like, please check out my fiance's blog:

http://aspergerblender.wordpress.com/2011/08/08/actions-and-re-actions/

It's more than a little frustrating for both parents in this situation and you have to support each other just as much as you work to support the child. You have to remind each other that it's going to be okay somehow and that each others feelings are valid. The second part of that is actually the most important. It's okay to feel frustrated, you have every right.

I can't tell you how many times I've sat down to explain consequences and behaviors to my son and got reactions that just didn't fit. Many reactions suggested that he never got the message I was trying to deliver. I would have to prod at that time and ask him if he was hearing me. I would have to remind him that I wasn't talking about the fantasy things and needed him to hear me. I often ask him what I'm talking about. Sometimes, for that, he shakes his head hard and get's angry, and says: "I just don't know!" He doesn't like to talk about his behavior.

On another note, he's actually angry with himself and we have to watch out for that one. He'll actually call himself "crazy" and "bad". That's not psychologically healthy either, so has to be intervened. I tell him he's not crazy or bad and that he has behaviors to learn like anyone else his age. I tell him we are just trying to help him learn them and he's not always going to like how that is done. No one does, and everyone has to learn. It's all that can be done at that point.

Yes, therapy is important and support in other places like school is too. But, one the spot, in the moment, this is what you are left with. There's the child's pain because he doesn't understand himself; your own pain and stress from worry; your parenting partner's pain and stress; and worry for each other. What else can you do? See it for what it is, call it like it is, listen to each other and support each other.

The effects of restraint

As I've been writing my support blogs, I've found some areas get repeated. Those are often worth repeating and additional insight. They're worth keeping up front in our minds as reminders of their importance. Kind of like bullying or Halloween safety. Today it's about the use of restraint in meltdowns or other behavior.

First, I want to remind everyone that the proper use of restraint is more than just how a child is held or how restraint is used safely. It's also about when restraint even should be used. Restraint is a last resort only for physical protection of the child and others around him or her. The importance of this cannot be emphasized enough. The first line of defense or action should always, always, always be verbal. That's not taking extremes into account, but may prevent extremes from becoming the norm in a child.

Behaviors that do NOT require restraint would include; breaking a pencil, ripping a piece of paper, stomping feet or being verbally defiant. For that matter general defiance should never be responded to with restraint. Restraint must never become a disciplinary tool. That defeats it's purpose, which is only to protect.

Behaviors that should involve restraint are; head hitting, attempting to stab self or others with a pencil, flailing fits that could harm others or the child, violence that is a direct and fully recognizable threat. Not just tossing a book across the room either.

A singular act of defiance, like throwing a book or pencil, is not an action where restraint is required. If they start throwing everything, which makes it a repetitive action that doesn't stop with verbal or softer approach, that could be a restraint worthy situation.

I want to touch base on an important effect of restraint and it's a significant drawback, even to proper use. One effect I've found in research and reading is that restraint always makes the situation worse before it gets better. Why is that? I think you will find that most of our children on the spectrum are very sensitive to their personal space and anything that touches them. Things that touch or invade space without consent or by surprise can get some interesting and negative reactions. The action of being restrained, not only invades personal space, but adds to already overloaded sensory issues.

This isn't to say, "don't ever restrain", rather to keep this effect in mind if you are going to apply restraint to a situation. The child in the situation will feel worse and act out more before they calm down. That is a natural reaction to such intense sensory trauma. Yes, I said "trauma". Too much restraint, or misuse of restraint can be severely traumatizing. Sensory overload is already like that by itself. Sensory overload and stress overload are like your senses having a seizure event. Have you ever known anyone to have a non-traumatic seizure?

Because of this, the after effect is generally an exhausted person or child. It takes a lot out of you to have your body whip into high gear and hold like that for any amount to time, especially several minutes to as long as 45 minutes. Just 3-5 minutes feels like an eternity. I haven't seen a child go through a 45 minute meltdown, but I've heard of it. I can only imagine that child being out of action for the rest of the day.

So restraint, at first, will momentarily increase all effects of what the child is suffering that makes restraint necessary in the first place.

Now consider what it's like to anticipate being restrained. How would you feel, if you went into class with the conscious thought that you may be held down on the floor today? How would you feel if that was your thought every day? How would you fare if you already had an emotional disorder and that was stressing you out every day? That can be the effect of improper restraint and restraint used as a punishment. That added stress, makes it more difficult for a child to "behave" than without. That child already has a stressor in place that they cannot control and pushes them towards their personal limits of daily stress. This is more than simply learning to behave because of consequences of our actions. This is in excess of anything normal.

When my son throws a toy, I take it away. That's a natural consequence. I do not pin him to the floor. That would not be a natural consequence. Not anywhere in life.

My son has, years ago, had fits where he would bite himself or head bang. In those instances, where verbal failed to redirect him, I did scoop him up and hold him to stop it. He would escalate because that was the natural body reaction, but then, in time, calm down. I still remember the time around being 3 when he looked up at me and wanted to know why he couldn't stop. He recognized there was a problem, even at 3. Kids know and remember. We would do well to remember that ourselves.