Across the nation we are officially back to school. Maybe a few aren't, but most are. Going back to school means change in schedule and likely a few meltdowns and tantrums. I'm writing this today to touch base on a few reminders that may help you through the transition.
Remember what you learned last year and the year before that. If you've done this more than 3 or 4 times, you should be prepared for resistance. That won't make it any more fun to deal with, but better prepared thinking than not. Consider techniques you used last year and use them again this year.
Don't engage the tantrum: This is especially true with autistics. We can be a very argumentative bunch. Kids already have this angry debating skill. Do your best to stay cool and not react to the tantrum. State your expectations and then drop it. Apply consequences after you get what you want out of the situation and when everyone has calmed down.
Don't apply consequences before going to school if it only further triggers your child into a fit. I have direct experience with this. The idea is getting your child to school, hopefully in a mood that won't destroy their school day. Leave discussing their behavior and any consequences for when they get home. "Remember how you used all those swear words this morning? No video games tonight." This way, you got them to school and gave consequences at a time where you have more time and control.
Remember to reward the behaviors you want. If your kid is handling transition better than last year, tell him! Be happy with what he does right and praise it. Give rewards. A good reward system is always important, even if it isn't worth a hundred bucks. You don't have to spend lavish funds to give rewards. The simple things can be very effective.
Give down time after school. Don't expect your child to go straight to homework the second they walk through the door. He or she has spent the last 8 hours struggling to behave and jump through school hoops. A break after school is welcome and kind. Set up a routine. Offer half an hour of break time to do what ever they want (save anything they can't do because of behavior) with the knowledge that it's homework time after that. My son actually prefers to get right to it, but he always has the option of that after school break.
Hopefully, these tips help you handle the new transition that we all have to wade through. Age doesn't seem to help, so we must be vigilant parents. Have tips you'd like to share? Post them in comments!
Do you or your kids love heroes? Add the Galaxy Zento page! Books and games for ages 8 and up are available. The work of GZ is dedicated to showing our autistic youth that you CAN DO even with a few struggles. Life get's better so never give up. The GZ page is loaded with cool artwork and updates!
Showing posts with label parenting. Show all posts
Showing posts with label parenting. Show all posts
Wednesday, August 19, 2015
Autism and Back to School
Labels:
advice,
autism,
autism parenting,
back to school,
behavior advice,
parenting,
school
Tuesday, September 9, 2014
Reader Request: Dealing with autism for the non-autistic
So you don't have autism but you are going to be working with someone who does. Or maybe you have friends with and autistic child. Perhaps you are witnessing a meltdown in a grocery store. How do you handle such situations?
Getting to know a person with autism can be understandably confusing. Hopefully these tips will help you along in the process.
First and foremost, anyone with autism does not see or feel the world around them like you do. There will be reactions that make no sense. Simple or minuscule things may cause stress reactions. This is because of sensitivities way higher than yours. The most important thing you can do in any situation with autism is to stay calm and collected. If you stress out, the person you are dealing with will go even further over the edge. If you get stern and try to force an issue, it will make it worse. Calm and collected is the way.
Eccentricities are common. It's best to just accept them. No harm is meant by them (99% of the time) and they should simply be seen as personality quirks and nothing more. Even high functioning autistics have a hard time seeing how their quirks affect people around them. It gets harder when those quirks get rejected and we are trying to work out why. The advice here is to take the eccentric with a grain of salt and just shrug it off. Don't give it any extra attention unless some violation of space is occurring. Which brings me to;
Clear communication is key. Autism is a very literal issue. Metaphors and slang can be the enemy. If you are just joking, you should say so or come up with a known way for the person to understand that you are joking. Some of us don't comprehend facial expressions. So your laughing smile means the same as an angry grimace: basically nothing. It's not completely like that for everyone, but worthwhile to keep in mind.
Things get internalized a lot. Misconceptions and misunderstandings happen all the time. They require patience and talking it out. A lot of people with autism will be harder on themselves than you or anyone else could ever be. So if you are thinking of ripping your autistic employee a "new one" because of some mistake, be careful. Explain the problem clearly and how to avoid it in the future. Aside form popular belief, autistic people do care what others think of them and want to get things "right". Autism is a self punishing beast.
Going to extremes. People with autism are either anti-social (by appearance at least) or overly social. There isn't usually any gray area. Seeing the gray area of things is very difficult. It's either black or white. Rules are rules. Things can get very technical fast.
Delayed maturity. This is especially important to understand with children. Maturity is generally behind, often by several years. Tolerance is helpful.
Now, to wrap this up, I offer a list of things NOT to do with anyone who is autistic. This is general information and may vary by individual.
Don't touch: Especially if there's a possible meltdown situation. Your touch will only add to the sensory stress that's going on. However, you may not have a choice if self harm comes into play. If a person starts hitting him or herself in the head, firmly take hold of their wrists and speak in a low quiet voice. Be calm. Children may have to be held with the "hug" method. If you are not suitably trained in restraint, seek assistance.
Don't shout: Again it's a sensory issue and only adds to stress. Speak in a calm tone and don't try to over-shout the person you are dealing with. Once a person is calmed down, they will be easier to talk to.
Don't startle: It may seem like fun and games to some people, but startling sets off sensory issues like wildfire. It triggers over-sensitive fight or flight response that can get out of hand in a hurry. Think of it this way; would you startle your buddy who's a war veteran? Of course not. Don't startle autistics either.
Don't ask parents what their child's special skill is: Most of them don't consider their children a sideshow act. You may mean it innocently, but it gets tiring. It happens all the time.
Don't use the word normal: Nothing feels "normal" to an autistic person. It invalidates and diminishes that person's struggles by telling them "Oh that's normal". The term is so hated, that it's one step away from a racial slur.
Don't interfere with parents: Unless they ask for your help (and they usually won't) they just want to deal with their child's current issue and be left alone. In public, it's stressful and embarrassing enough without someone coming to lend their advice or tell them off about their child. Some DO appreciate words of encouragement like "I think you're doing a good job". You can even ask if someone is okay, but mostly they want to be left alone. Sometimes, other autism parents are welcome so long as they identify that.
So, tolerance, clear communication, and understanding are key to dealing with autism. Stay calm and cool. Don't get physical unless a life is in danger. And take your time getting to know the person or child. Situations vary. Use common sense for the rest.
Suggested reading: Understanding Autism for Dummies
Getting to know a person with autism can be understandably confusing. Hopefully these tips will help you along in the process.
First and foremost, anyone with autism does not see or feel the world around them like you do. There will be reactions that make no sense. Simple or minuscule things may cause stress reactions. This is because of sensitivities way higher than yours. The most important thing you can do in any situation with autism is to stay calm and collected. If you stress out, the person you are dealing with will go even further over the edge. If you get stern and try to force an issue, it will make it worse. Calm and collected is the way.
Eccentricities are common. It's best to just accept them. No harm is meant by them (99% of the time) and they should simply be seen as personality quirks and nothing more. Even high functioning autistics have a hard time seeing how their quirks affect people around them. It gets harder when those quirks get rejected and we are trying to work out why. The advice here is to take the eccentric with a grain of salt and just shrug it off. Don't give it any extra attention unless some violation of space is occurring. Which brings me to;
Clear communication is key. Autism is a very literal issue. Metaphors and slang can be the enemy. If you are just joking, you should say so or come up with a known way for the person to understand that you are joking. Some of us don't comprehend facial expressions. So your laughing smile means the same as an angry grimace: basically nothing. It's not completely like that for everyone, but worthwhile to keep in mind.
Things get internalized a lot. Misconceptions and misunderstandings happen all the time. They require patience and talking it out. A lot of people with autism will be harder on themselves than you or anyone else could ever be. So if you are thinking of ripping your autistic employee a "new one" because of some mistake, be careful. Explain the problem clearly and how to avoid it in the future. Aside form popular belief, autistic people do care what others think of them and want to get things "right". Autism is a self punishing beast.
Going to extremes. People with autism are either anti-social (by appearance at least) or overly social. There isn't usually any gray area. Seeing the gray area of things is very difficult. It's either black or white. Rules are rules. Things can get very technical fast.
Delayed maturity. This is especially important to understand with children. Maturity is generally behind, often by several years. Tolerance is helpful.
Now, to wrap this up, I offer a list of things NOT to do with anyone who is autistic. This is general information and may vary by individual.
Don't touch: Especially if there's a possible meltdown situation. Your touch will only add to the sensory stress that's going on. However, you may not have a choice if self harm comes into play. If a person starts hitting him or herself in the head, firmly take hold of their wrists and speak in a low quiet voice. Be calm. Children may have to be held with the "hug" method. If you are not suitably trained in restraint, seek assistance.
Don't shout: Again it's a sensory issue and only adds to stress. Speak in a calm tone and don't try to over-shout the person you are dealing with. Once a person is calmed down, they will be easier to talk to.
Don't startle: It may seem like fun and games to some people, but startling sets off sensory issues like wildfire. It triggers over-sensitive fight or flight response that can get out of hand in a hurry. Think of it this way; would you startle your buddy who's a war veteran? Of course not. Don't startle autistics either.
Don't ask parents what their child's special skill is: Most of them don't consider their children a sideshow act. You may mean it innocently, but it gets tiring. It happens all the time.
Don't use the word normal: Nothing feels "normal" to an autistic person. It invalidates and diminishes that person's struggles by telling them "Oh that's normal". The term is so hated, that it's one step away from a racial slur.
Don't interfere with parents: Unless they ask for your help (and they usually won't) they just want to deal with their child's current issue and be left alone. In public, it's stressful and embarrassing enough without someone coming to lend their advice or tell them off about their child. Some DO appreciate words of encouragement like "I think you're doing a good job". You can even ask if someone is okay, but mostly they want to be left alone. Sometimes, other autism parents are welcome so long as they identify that.
So, tolerance, clear communication, and understanding are key to dealing with autism. Stay calm and cool. Don't get physical unless a life is in danger. And take your time getting to know the person or child. Situations vary. Use common sense for the rest.
Suggested reading: Understanding Autism for Dummies
Friday, June 25, 2010
Autism and potty training
Potty training for a sensory affected child can be a daunting task. It's frustrating to the parents too. I've read about children who don't manage it until as far as 18 years old. Most that I've read about are around 9 or 10.
What is it that causes potty training to be so difficult?
One theory is that the sensation of the open space of the bowl under them is disconcerting. They may not feel stable or safe sitting on the bowl. That could even take effect for child size potty chairs.
The change of not having the sensation of a soiled diaper may even have a little to do with it. Consider that all they've known up to this point is what if feels like to have the duty done next to their skin. The new effects can be disconcerting. Hey, it's only a theory.
What's really important to know (mostly for the high functioning with autism such as Asperger's) is that it's not impossible. Potty training can be done. It will take more dedication and perhaps longer than a typical child, but can be done.
Things that will help:
There are training programs geared for autism that you can find by internet search. Here are just a few sites to check out:
http://www.brighttots.com/Toilet_training_and_autism.html
http://baby.lovetoknow.com/wiki/Potty_Training_Autistic_Children
http://www.epinions.com/content_4025262212
Seeing other kids the same age can inspire a child to do the same as they do. With all the attempts and programs used with my own son, it was seeing other five and six year olds use the potty that fixed the situation forever.
Use props, videos, toys and books. Read books on potty, watch videos, and get a baby doll that wets itself for demonstration.
Reinforce by pointing out that no one else in the house does the duty in their pants.
Consistency and repetition are key!
So, if you are looking at potty training, collect yourself and arsenal of information and tools and above all, don't give up!
What is it that causes potty training to be so difficult?
One theory is that the sensation of the open space of the bowl under them is disconcerting. They may not feel stable or safe sitting on the bowl. That could even take effect for child size potty chairs.
The change of not having the sensation of a soiled diaper may even have a little to do with it. Consider that all they've known up to this point is what if feels like to have the duty done next to their skin. The new effects can be disconcerting. Hey, it's only a theory.
What's really important to know (mostly for the high functioning with autism such as Asperger's) is that it's not impossible. Potty training can be done. It will take more dedication and perhaps longer than a typical child, but can be done.
Things that will help:
There are training programs geared for autism that you can find by internet search. Here are just a few sites to check out:
http://www.brighttots.com/Toilet_training_and_autism.html
http://baby.lovetoknow.com/wiki/Potty_Training_Autistic_Children
http://www.epinions.com/content_4025262212
Seeing other kids the same age can inspire a child to do the same as they do. With all the attempts and programs used with my own son, it was seeing other five and six year olds use the potty that fixed the situation forever.
Use props, videos, toys and books. Read books on potty, watch videos, and get a baby doll that wets itself for demonstration.
Reinforce by pointing out that no one else in the house does the duty in their pants.
Consistency and repetition are key!
So, if you are looking at potty training, collect yourself and arsenal of information and tools and above all, don't give up!
Labels:
autism,
autistic potty training,
parenting,
toilet training
Wednesday, June 23, 2010
Autism and medical marijuana?
I've been building up to this one for some time now. I've seen blogs and even a news report on the subject and I've been asked my own opinion on it. It's taken me this long to really look and form this opinion too. And that's just what this is, an opinion. You're welcome to form your own.
First of all I think you should check out this broadcast from ABC news:
And you might want to look at this too:
So, what do you think? I think there should definitely be more research on the subject.
I can understand the argument that people are getting their kids "stoned" but how much does it take to truly have that "stoned" effect? Doesn't the amount they are given have some bearing on this? Note in the second video how he's only giving his son a "pinch" of the stuff. Clearly it's not being "abused" is it?
No, I don't know that I would give my son marijuana with his current condition. But if I was in these parents position? I can't say I wouldn't consider it. My son's meds are working for him, for now.
And what about other severe psychiatric rage inducing conditions? Could small amounts of clinically measured MJ help them? Well, I hope they do the research because they really could be on to something.
First of all I think you should check out this broadcast from ABC news:
And you might want to look at this too:
So, what do you think? I think there should definitely be more research on the subject.
I can understand the argument that people are getting their kids "stoned" but how much does it take to truly have that "stoned" effect? Doesn't the amount they are given have some bearing on this? Note in the second video how he's only giving his son a "pinch" of the stuff. Clearly it's not being "abused" is it?
No, I don't know that I would give my son marijuana with his current condition. But if I was in these parents position? I can't say I wouldn't consider it. My son's meds are working for him, for now.
And what about other severe psychiatric rage inducing conditions? Could small amounts of clinically measured MJ help them? Well, I hope they do the research because they really could be on to something.
Tuesday, June 22, 2010
Autism and teaching hygiene
When it comes to being an autistic teen to adult, I've heard hygiene become a significant complaint. For that matter I've met several teens with autism who need more practice. Why does this happen?
Hygiene of this kind has to be ingrained in routine (note that word!) at early teen years. Remember with autism it's ROUTINE, ROUTINE, ROUTINE. Since this is a change and a big change, don't expect this to go easily. Expect it to be a pain in the neck instead. Here's an approach I suggest.
Give details. We work best with details on anything. Explain to your child how they're body is changing at this special time in their lives. They're body is going to start creating odors through sweat that others will find offensive. Explain how those odors will affect other people. Use this to show how important it is to be clean.
Taking baths is taught from early childhood and my son loves his bathes (lucky me!) but I still have trouble getting him to move that washcloth over his body. He has this idea that sitting in the water is enough. It's going to take applied practice to fix this routine because he's old enough that I won't do it for him anymore.
The biggest changes are use of things like deodorant. This can get tricky because of our sensory issues. Think about this; some deodorants can irritate our skin or leave a residue that we can feel like sticky syrup under our armpits. Then there's the smell. We may not care for the odors that the perfume creates. So you really can't just go out and grab one off the store shelf and expect us to use it. My suggestion? Get your child involved in choosing their deodorant. Again, apply details as to why it's important.
Consider this for the kind of soap, toothpaste and shampoos you expect him or her to use too. Sensory issues change with age and will affect all these areas. Changes in hormones also affect sensory issues so be prepared for that idea too. Hopefully this blog gives you some food for thought on hygiene in our teens with autism. If it's not made a routine, it won't happen and will carry into adulthood. Yes, there will be resistance. Make sure they understand, no matter how busy life gets, they must always take time for their hygiene.
Hygiene of this kind has to be ingrained in routine (note that word!) at early teen years. Remember with autism it's ROUTINE, ROUTINE, ROUTINE. Since this is a change and a big change, don't expect this to go easily. Expect it to be a pain in the neck instead. Here's an approach I suggest.
Give details. We work best with details on anything. Explain to your child how they're body is changing at this special time in their lives. They're body is going to start creating odors through sweat that others will find offensive. Explain how those odors will affect other people. Use this to show how important it is to be clean.
Taking baths is taught from early childhood and my son loves his bathes (lucky me!) but I still have trouble getting him to move that washcloth over his body. He has this idea that sitting in the water is enough. It's going to take applied practice to fix this routine because he's old enough that I won't do it for him anymore.
The biggest changes are use of things like deodorant. This can get tricky because of our sensory issues. Think about this; some deodorants can irritate our skin or leave a residue that we can feel like sticky syrup under our armpits. Then there's the smell. We may not care for the odors that the perfume creates. So you really can't just go out and grab one off the store shelf and expect us to use it. My suggestion? Get your child involved in choosing their deodorant. Again, apply details as to why it's important.
Consider this for the kind of soap, toothpaste and shampoos you expect him or her to use too. Sensory issues change with age and will affect all these areas. Changes in hormones also affect sensory issues so be prepared for that idea too. Hopefully this blog gives you some food for thought on hygiene in our teens with autism. If it's not made a routine, it won't happen and will carry into adulthood. Yes, there will be resistance. Make sure they understand, no matter how busy life gets, they must always take time for their hygiene.
Thursday, April 22, 2010
Is your bath warm enough?
I'm fortunate to have a child who absolutely loves his bathtime. I'm sure it helps that we have a great big tub that he can make a small swimming pool out of. Getting in the bath excites his imagination and all sorts of little worlds come into play. That makes it hard to get him to concentrate on the actual cleaning, but hey, he's halfway there right?
Well, about two years ago he threw us a bit of a curveball in taking his bath. Everything was set out for him, his jammies and towel and there was no problem with leaving him alone in the bathroom. Now we all know what a towel is for, drying off after your cleaning escapade, but keep the definition in mind.
I was handling other business around the house and he was in his bath, and he called for me. It didn't sound urgent so I walked in calmly to see what he needed. I found him in his bath complete with his towel. The towel freely floated in the bathwater.
"What are you doing?" I asked pointing at the towel.
He looked up at me, just as matter of fact as you please, "I got cold."
Naturally, he figured that, since a towel warms him (after he gets out of the bath) and his bath was getting cold, the towel would warm him back up. What happens when the whole towel gets wet didn't occur to him. So, with explanations and a few laughs, I helped him get out and get a dry towel. I followed up with, "Do you think you should do that again?" His answer satisfied me that he learned his lesson.
Well, about two years ago he threw us a bit of a curveball in taking his bath. Everything was set out for him, his jammies and towel and there was no problem with leaving him alone in the bathroom. Now we all know what a towel is for, drying off after your cleaning escapade, but keep the definition in mind.
I was handling other business around the house and he was in his bath, and he called for me. It didn't sound urgent so I walked in calmly to see what he needed. I found him in his bath complete with his towel. The towel freely floated in the bathwater.
"What are you doing?" I asked pointing at the towel.
He looked up at me, just as matter of fact as you please, "I got cold."
Naturally, he figured that, since a towel warms him (after he gets out of the bath) and his bath was getting cold, the towel would warm him back up. What happens when the whole towel gets wet didn't occur to him. So, with explanations and a few laughs, I helped him get out and get a dry towel. I followed up with, "Do you think you should do that again?" His answer satisfied me that he learned his lesson.
Wednesday, December 2, 2009
Meds for your child? What you need to know.
The decision to put a child on medication is never a light one. I can count many a parent who has said to me, “ I will never put my child on medication”. There is always some reason behind their strong feelings and usually it involves the fear that they will lose the person their child really is. They don’t want their child to be a zombie or controlled in “that way”.
Because of that, I find it bears repeating ad nauseam: The purpose of a medication is NOT to control your child. The purpose of a medication is to help a child control him or herself. If your child is doing well without medication, that is wonderful. However, I have had more than one parent, who gave me an anti-medication lecture trying to use my son as an example. They have actually pointed to him and said, “See? He’s doing fine right now”. This is a dead point to make because he takes his medications every single day. That means, at the exact time they pointed at him, he was under the effects of his medication. Were he not, I guarantee you “okay” would not have escaped their lips. Naturally some have given me the example of how well their own child is doing.
You cannot take example of how other peoples children are doing, with or without as concrete example of how your child will do. You must do the homework and research for yourself. That being said, here is what you need to know about applying medications to your child.
Trial and Error: Getting the right results from medications with your child will always, always, always be result of trial and error. There are no guaranteed results that will occur in every single child who tries any given medication. That goes for adults as well, for anyone who is going to start medications for disorders.
Time and Patience: Results don’t happen overnight, period. To gauge full effects of any med you may have to administer them for at least a week and up to a month. During that time, you will have to watch for side effects and give them time to either clear up, or show you that your child can’t use that medication. You will have to see how long the level of the med has a proper effect and talk to the doctor about whether or not to increase dosage.
Know your meds!: Read about them, research them, and know them inside and out. How long before you see results? What are the side effects? If they are wrong for your child, can you stop them cold turkey, or do you have wean them off? You need to know all these things for any form of medicating you intend to do with your child.
Don’t cut out the doctor: I don’t care what you are giving your child, over the counter or prescribed. Especially if you are using prescriptions and plan to add other chemicals from “over the counter”, you need to have a doctor on board to advise you on what those extras could do mixed with things your child is already taking. Things like Melatonin, food additives, and supplements can interact with existing medications and bring out undesired effects. Keep your doctor on board and close to what you are doing. Don’t hesitate to call and bug your doctors office with questions and make sure to do research.
No, medication is not for everyone but it is necessary for some. Not only should we not judge others for their use of medications (whether they do or don’t), we should educate ourselves before we do. Considering your child for medication? Get educated and know the territory. Remember that you are your childs best and most important advocate.
Labels:
autism,
disorders,
medication,
meds,
parenting
Wednesday, September 2, 2009
Back to school means new routines
So a new school year begins and we find ourselves getting up early in the morning and scrambling to get all things ready. Or do we? Well, I get up fine in the morning, Denver on the other hand, not so well. Even though I started getting up earlier and waking him up, the routine isn’t fully instilled yet. So, it will take some more work. Our first item of business in the morning is to get dressed. I meet with some resistance here but I set a timer to challenge him. It’s worked once so far, but we’re only two days in right?
Next we need to get our breakfast. Denver get’s to pick what he wants for breakfast so long as he gets moving in the morning and doesn’t create a crunch for time. We have plenty of Cheerios and that’s the fall back. So if he wants something else, he gets up and gets moving.
The only major challenge we’ve had with getting the new school year started, I could have avoided if I thought about it. Shoes. Denver has been wearing sandals for most of the summer. That became his routine, much like not wearing a coat or jacket. So when I brought out his shoes, we had a near meltdown. Oops. I slowly explained between protests that we weren’t wearing sandals to school and it’s time for us to wear our shoes. That means no more sandals for me either, until after school. Offering him the chance to wear his sandals after school seemed to help the situation and we were rolling once again.
New classes and new teachers are always a possibility for angst with autistic students. Denver get’s full props. He met his new teacher with a smile and friendly talk. He tackled his first day with flying colors. But this was just the beginning and I felt pretty nervous. Is it just the parents that get really nervous about these things? Maybe I worry too much.
When the time came to pick my lil man up from school. I waited outside the class room for the bell to ring. When he came out, the report was of a good day. I asked him what he thought of his first day. He used the word awesome with major exclamation. So we are off to a fine start for the school year. He likes his class and he’s with kids he knows.
Denver has been through a lot of heavy duty changes for an autistic child, but at least this didn’t have to change. With the school year off to such a great start, I find myself looking forward to the rest. I hope it’s just as good for the rest of you.
Next we need to get our breakfast. Denver get’s to pick what he wants for breakfast so long as he gets moving in the morning and doesn’t create a crunch for time. We have plenty of Cheerios and that’s the fall back. So if he wants something else, he gets up and gets moving.
The only major challenge we’ve had with getting the new school year started, I could have avoided if I thought about it. Shoes. Denver has been wearing sandals for most of the summer. That became his routine, much like not wearing a coat or jacket. So when I brought out his shoes, we had a near meltdown. Oops. I slowly explained between protests that we weren’t wearing sandals to school and it’s time for us to wear our shoes. That means no more sandals for me either, until after school. Offering him the chance to wear his sandals after school seemed to help the situation and we were rolling once again.
New classes and new teachers are always a possibility for angst with autistic students. Denver get’s full props. He met his new teacher with a smile and friendly talk. He tackled his first day with flying colors. But this was just the beginning and I felt pretty nervous. Is it just the parents that get really nervous about these things? Maybe I worry too much.
When the time came to pick my lil man up from school. I waited outside the class room for the bell to ring. When he came out, the report was of a good day. I asked him what he thought of his first day. He used the word awesome with major exclamation. So we are off to a fine start for the school year. He likes his class and he’s with kids he knows.
Denver has been through a lot of heavy duty changes for an autistic child, but at least this didn’t have to change. With the school year off to such a great start, I find myself looking forward to the rest. I hope it’s just as good for the rest of you.
Saturday, July 4, 2009
Denver's Blisters?
Just to get started, I have to say that my father's funeral honored him perfectly. Just so I can say it.
We went to Elmira, New York on the second of this month for that same funeral and stayed at the Mark Twain Motor Inn. A lot of things in that little town are named for the famous author who was born on the passing of Haley's comet and died when it passed again. Just a little trivia for you. In the nearly endless front yard of this establishment, stood a large gazebo. In it, Denver found some childrens toys and one of them was a little red bicycle.
I have had some difficulty in getting Denver to ride his bike at home because of balance issues that we autistics have in major scale. He wants to, but then doesn't want to. Well, as he often does, he took to his own schedule of learning and being prepared and started riding the little red bike. I was only too pleased to let him.
The area boasted a large placement of concrete around the gazebo so riding wheeled toys was a snap. However, it wasn't until my uncle and cousin arrived on their Ducati motorcycles that he made an interesting change.
Denver has always been scared of motorcycles. That has changed. My cousin Scott let him sit on the back of the big bike and he reached out and held the handle bars. He became even more fascinated with bikes when the Patriot Guard arrived for the funeral the next day. The Patriot Guard is an organization of bikers for the respect of fallen soldiers and veterans. Look them up on the internet, they are incredible.
Now, did I say he was fascinated? I had no idea. Just yesterday, here at home, Denver told me his thumbs needed to be trimmed. I thought he meant his nails, but I was wrong. Bits of dried skin stuck out from an equal reddish area on each of this thumbs. I asked him what they were.
"I had bubbles on my thumbs, and they popped, and stuff came out, and now they're all dried up."
Blisters, he had blisters. I always found those little buggers quite painful, how had he put up with them? I told him he had to be rubbing something an awful lot to get blisters. What was he doing.
"I was playing motorcycle at the hotel in New York."
Motorcycle? Then I knew. He must have seen how the riders revved up their bikes by turning the parts of their handlebars. The motorcycles enthralled him so much that he played at this on the little red bike until it gave him blisters. His thumbs are fine and I certainly don't want anyone to feel bad. These things happen with kids who can get stuck in a rut on an activity so much that they can't let go.
That's just something that autism of his kind can do. An interest can become so intense that it overwhelms any other distractions. I did have a hard time getting him off the bicycle so it makes sense.
I do have to get him to stop twisting his hands on his bike, but I'm glad he's so excited to ride it now.
We went to Elmira, New York on the second of this month for that same funeral and stayed at the Mark Twain Motor Inn. A lot of things in that little town are named for the famous author who was born on the passing of Haley's comet and died when it passed again. Just a little trivia for you. In the nearly endless front yard of this establishment, stood a large gazebo. In it, Denver found some childrens toys and one of them was a little red bicycle.
I have had some difficulty in getting Denver to ride his bike at home because of balance issues that we autistics have in major scale. He wants to, but then doesn't want to. Well, as he often does, he took to his own schedule of learning and being prepared and started riding the little red bike. I was only too pleased to let him.
The area boasted a large placement of concrete around the gazebo so riding wheeled toys was a snap. However, it wasn't until my uncle and cousin arrived on their Ducati motorcycles that he made an interesting change.
Denver has always been scared of motorcycles. That has changed. My cousin Scott let him sit on the back of the big bike and he reached out and held the handle bars. He became even more fascinated with bikes when the Patriot Guard arrived for the funeral the next day. The Patriot Guard is an organization of bikers for the respect of fallen soldiers and veterans. Look them up on the internet, they are incredible.
Now, did I say he was fascinated? I had no idea. Just yesterday, here at home, Denver told me his thumbs needed to be trimmed. I thought he meant his nails, but I was wrong. Bits of dried skin stuck out from an equal reddish area on each of this thumbs. I asked him what they were.
"I had bubbles on my thumbs, and they popped, and stuff came out, and now they're all dried up."
Blisters, he had blisters. I always found those little buggers quite painful, how had he put up with them? I told him he had to be rubbing something an awful lot to get blisters. What was he doing.
"I was playing motorcycle at the hotel in New York."
Motorcycle? Then I knew. He must have seen how the riders revved up their bikes by turning the parts of their handlebars. The motorcycles enthralled him so much that he played at this on the little red bike until it gave him blisters. His thumbs are fine and I certainly don't want anyone to feel bad. These things happen with kids who can get stuck in a rut on an activity so much that they can't let go.
That's just something that autism of his kind can do. An interest can become so intense that it overwhelms any other distractions. I did have a hard time getting him off the bicycle so it makes sense.
I do have to get him to stop twisting his hands on his bike, but I'm glad he's so excited to ride it now.
Labels:
autism,
autistic interest,
autistic parenting,
bike riding,
parenting
Tuesday, June 2, 2009
Morning Trials
My son, Denver, does not like being woke up in the morning. He likes to wake up at his own speed. You can tell the difference in the mornings that he gets himself out of bed, he's simply a happier kid. Heaven help me if I have to wake him up in the middle of the night, he can get really angry then. Just a year ago he could go into a violent fit at being awakened. He's better about that now, but still doens't like it.
Today he got out of bed at the sound of me walking around the apartment. So out bounces a happy rested Denver. I get him some clothes, sometimes he picks them, and we have a race to get dressed. It's a great way to get him motivated to move in the morning or at others times as well. He usually wins, but not this morning. Next it's time to pick what he wants for breakfast. He get's his choice out of what we have, depending on if I'm up to making it. I won't make pancakes every day, after all.
After he has his breakfast it's time for the morning trouble spot. He used to be much better about taking his meds. Now, when I tell him it's time for both of us to take our meds, I get a screaming fit. He knocked his toy castle of the table and started kicking everything near him. He's learned to pull his punches on objects because he knows it will hurt if he lays into things at full strength. That's how I know it's a fit he can control. I offer him time out until he's ready to take his medicine for the day. He immediately comes over to me stomping, huffing and swatting at things near him. He takes his medicine and I take mine. I remind him gently that he knows what his day will be like if he doesn't take his medicine or I don't take mine. Then I send him to the couch to have a time out anyway because of the fit.
That earns me a loud, "I hate you" that I ignore and sit down to check my emails. He goes through a noise making stage and inevitably wants to know when he can get up.
"When do you think you can get up?"
"When I've been quiet."
"Have you?"
"No."
Back to my emails. He remains silent for several minutes. Normally time out ranges at one minute for each year of age. I give him a touch of slack on that sometimes, when his meds haven't kicked in yet. I'll go for three or four minutes. He pulls that off and I let him get up. Apology is given and we're off on the rest of our morning.
At about 7:30 I check his homework and sign his school papers. There's some reading done. He loves to read and it's quickly becoming as strong point of his. The only other thing about mornings is getting him to slow down. I swear he's going to wake the neighborhood. One of his stimming behaviors is to shake his head and hands rapidly while jumping up and down emitting a high pitched EEEEEEEE sound. This causes my poor eardrums (with my own sensitivity to sound)to go into a panic. I have found myself yelling STOP, more than once with my hands over my ears. It's hard to not do that, like trying not to let your leg kick when the dr hits that nerve in your knee. Most times, he does stop and he knows what sounds bug me. Sometimes he uses them on purpose, so I put him in time out on purpose.
As far as I'm concerned, using someones sensitivities to harass or harm is just like walking up and punching them. I won't allow it. If he does it to me, he'll do it to some kid at school. I won't allow that if I can help it.
Once the meds kick in he slows down and has much better control over his impulses that are very hyperactive up until then.
I give him time warnings before we are going to leave or I'm going to have him do his homework. That helps to keep from interrupting him from what he's doing. When I suddenly interrupt him from an activity he's absorbed in, I can get a stomping fit that just gets him into trouble and causes us a delays. So I give him a fifteen minute and maybe a five minute warning. If he gives me grief over those, it's time out. If he goes along with it all and does what he's supposed to, he gets a blue poker chip in the "go" jar for a reward later on.
At 8:00 it's time to put on shoes and make sure backpack is ready to go. Then, by 8:10 we are headed out the door. I'm very particular about when I get out the door to go somewhere. I hate being late or slow to get going. If we run late it means parking hassles and stress, I hate that. Yes, I do work with it and try to keep my stress down, but like most autistics I have my routines and I can be obsessive about them.
I wait with Denver at school until he's ready to go to class. Goodbye's are given with promise that I will be back when school lets out and the morning business is done.
As for non-school days, those are very relaxed and everyone gets to sleep in. Summer may bring some other changes in schedule, but we'll see when we get there.
Today he got out of bed at the sound of me walking around the apartment. So out bounces a happy rested Denver. I get him some clothes, sometimes he picks them, and we have a race to get dressed. It's a great way to get him motivated to move in the morning or at others times as well. He usually wins, but not this morning. Next it's time to pick what he wants for breakfast. He get's his choice out of what we have, depending on if I'm up to making it. I won't make pancakes every day, after all.
After he has his breakfast it's time for the morning trouble spot. He used to be much better about taking his meds. Now, when I tell him it's time for both of us to take our meds, I get a screaming fit. He knocked his toy castle of the table and started kicking everything near him. He's learned to pull his punches on objects because he knows it will hurt if he lays into things at full strength. That's how I know it's a fit he can control. I offer him time out until he's ready to take his medicine for the day. He immediately comes over to me stomping, huffing and swatting at things near him. He takes his medicine and I take mine. I remind him gently that he knows what his day will be like if he doesn't take his medicine or I don't take mine. Then I send him to the couch to have a time out anyway because of the fit.
That earns me a loud, "I hate you" that I ignore and sit down to check my emails. He goes through a noise making stage and inevitably wants to know when he can get up.
"When do you think you can get up?"
"When I've been quiet."
"Have you?"
"No."
Back to my emails. He remains silent for several minutes. Normally time out ranges at one minute for each year of age. I give him a touch of slack on that sometimes, when his meds haven't kicked in yet. I'll go for three or four minutes. He pulls that off and I let him get up. Apology is given and we're off on the rest of our morning.
At about 7:30 I check his homework and sign his school papers. There's some reading done. He loves to read and it's quickly becoming as strong point of his. The only other thing about mornings is getting him to slow down. I swear he's going to wake the neighborhood. One of his stimming behaviors is to shake his head and hands rapidly while jumping up and down emitting a high pitched EEEEEEEE sound. This causes my poor eardrums (with my own sensitivity to sound)to go into a panic. I have found myself yelling STOP, more than once with my hands over my ears. It's hard to not do that, like trying not to let your leg kick when the dr hits that nerve in your knee. Most times, he does stop and he knows what sounds bug me. Sometimes he uses them on purpose, so I put him in time out on purpose.
As far as I'm concerned, using someones sensitivities to harass or harm is just like walking up and punching them. I won't allow it. If he does it to me, he'll do it to some kid at school. I won't allow that if I can help it.
Once the meds kick in he slows down and has much better control over his impulses that are very hyperactive up until then.
I give him time warnings before we are going to leave or I'm going to have him do his homework. That helps to keep from interrupting him from what he's doing. When I suddenly interrupt him from an activity he's absorbed in, I can get a stomping fit that just gets him into trouble and causes us a delays. So I give him a fifteen minute and maybe a five minute warning. If he gives me grief over those, it's time out. If he goes along with it all and does what he's supposed to, he gets a blue poker chip in the "go" jar for a reward later on.
At 8:00 it's time to put on shoes and make sure backpack is ready to go. Then, by 8:10 we are headed out the door. I'm very particular about when I get out the door to go somewhere. I hate being late or slow to get going. If we run late it means parking hassles and stress, I hate that. Yes, I do work with it and try to keep my stress down, but like most autistics I have my routines and I can be obsessive about them.
I wait with Denver at school until he's ready to go to class. Goodbye's are given with promise that I will be back when school lets out and the morning business is done.
As for non-school days, those are very relaxed and everyone gets to sleep in. Summer may bring some other changes in schedule, but we'll see when we get there.
Labels:
autism,
autistic parent of autistic child,
autistic parenting,
parenting,
raising an autistic child
Wednesday, May 27, 2009
Raising Denver Part 7: The Present
It's taken trial and error and lot's of work, but now we have a routine. Denver is on medications to help him slow down and concentrate easier. They work for him. When making choices about meds, check out my blog on to med or not to med. We keep his routine as predictable as possible and even then he can get picky about some of the strangest things.
He used to be very picky about who read him a bedtime story or helped him get his toothbrush ready. He's a bit more accepting now. He can still be very touchy about some things, often at random. He can have a meltdown once in a while and that requires letting him hide in his blankets until it passes. Most of his fits can be stopped now with some basic behavior techniques. Before his meds, that didn't happen and we arrived late to school because of it.
As with the beginning, Denver takes his challenges head on. Currently that is the challenge of living through the divorce of his parents. He doens't fully understand why Mom doesn't live with us anymore, but he's taking it in stride. He's doing great things with his school work and I believe we have him on the path to some success.
Being an autistic Dad has given me some insight to him as well. I can relate to much of what he goes through and why. I know why he behaves in certain ways when the behaviors happen. I also know he responds best to a calm response, even if it seems he doesn't want to listen.
There's no such thing as a perfect parent and I make my share of mistakes. I correct what I can and keep going forward. Denver can trigger my autism by flashing things close up to my face so I have to turn my head away. Or he'll make one of his blaring or high pitched sounds that make me cringe. I do my best to explain what he's causing and he now knows that high pitched squeaking hurts my ears. So he comes up to me from time to time and says "squeak squeak". That earns him an explaination in how it isn't funny to do things that hurt others, even as a joke. Poking at others for their reactions is a noted Asperger's trait. Maybe because we are trying to experience the things we don't always feel.
I'm sure I trigger him as well, that's just something we have to learn about and get around. For example, if I sing a silly song at him it angers him very much. I'm not sure why really. But he hates it. Maybe I'm a really bad singer? I will say that observers have told me that we operate together really smoothly. I do try my best and I appreciate hearing that. It's quite uplifting, even if it doesn't show on my face.
Recently I was thinking of an old comic strip storyline called Lone Wolf and Cub, set in Feudal Japan. The story of a wandering samurai who's wife died and left him a child. He keeps the child with him on adventures and goes about cutting down obstacles in the form of blade wielding enemies. Through it all, he protects and raises the child. I'm no sword toting warrior, but in our world these days there's a lot to protect yourself from. When you're a single parent, you have to watch out for your child while balancing life itself. It's a challenge, especially when you're both autistic. So there is room for comparison to that old comic strip and we'll face each day, together, like Lone Wolf and Cub.
He used to be very picky about who read him a bedtime story or helped him get his toothbrush ready. He's a bit more accepting now. He can still be very touchy about some things, often at random. He can have a meltdown once in a while and that requires letting him hide in his blankets until it passes. Most of his fits can be stopped now with some basic behavior techniques. Before his meds, that didn't happen and we arrived late to school because of it.
As with the beginning, Denver takes his challenges head on. Currently that is the challenge of living through the divorce of his parents. He doens't fully understand why Mom doesn't live with us anymore, but he's taking it in stride. He's doing great things with his school work and I believe we have him on the path to some success.
Being an autistic Dad has given me some insight to him as well. I can relate to much of what he goes through and why. I know why he behaves in certain ways when the behaviors happen. I also know he responds best to a calm response, even if it seems he doesn't want to listen.
There's no such thing as a perfect parent and I make my share of mistakes. I correct what I can and keep going forward. Denver can trigger my autism by flashing things close up to my face so I have to turn my head away. Or he'll make one of his blaring or high pitched sounds that make me cringe. I do my best to explain what he's causing and he now knows that high pitched squeaking hurts my ears. So he comes up to me from time to time and says "squeak squeak". That earns him an explaination in how it isn't funny to do things that hurt others, even as a joke. Poking at others for their reactions is a noted Asperger's trait. Maybe because we are trying to experience the things we don't always feel.
I'm sure I trigger him as well, that's just something we have to learn about and get around. For example, if I sing a silly song at him it angers him very much. I'm not sure why really. But he hates it. Maybe I'm a really bad singer? I will say that observers have told me that we operate together really smoothly. I do try my best and I appreciate hearing that. It's quite uplifting, even if it doesn't show on my face.
Recently I was thinking of an old comic strip storyline called Lone Wolf and Cub, set in Feudal Japan. The story of a wandering samurai who's wife died and left him a child. He keeps the child with him on adventures and goes about cutting down obstacles in the form of blade wielding enemies. Through it all, he protects and raises the child. I'm no sword toting warrior, but in our world these days there's a lot to protect yourself from. When you're a single parent, you have to watch out for your child while balancing life itself. It's a challenge, especially when you're both autistic. So there is room for comparison to that old comic strip and we'll face each day, together, like Lone Wolf and Cub.
Monday, May 25, 2009
Raising Denver Part 6: Self Discovery
In this series, I mentioned that my diagnosis directly resulted from my son's diagnosis. This news set a series of resolved issues that changed my life.
As a child, I hated myself. I blamed myself for the abuse I received and the failings I endured in social circles from so very young. As I grew up I thought I must be some kind of chronic bad luck in human form. Nothing worked right for me, ever. When I started working jobs, I lost them or found I just couldn't handle them. I tried to go to colleges, but didn't understand what I was looking for or getting into. I was walked on, duped and scammed. I lost hope on daily basis.
In relationships I did no better. In my first marriage I had anger problems. I never hit anyone (except myself since I was still having the tourette-like self damaging seizures) but I would yell and scream in arguments when really not necessary. Everything frustrated me and I could connect through very little.
All my life, I've asked myself, "why?". Then, through a little one who had no idea he was a hero, the answer came. As I studied the effects of Asperger's syndrome on my life, with guidance and doctors assistance, I learned all the answers I could ever hope for. I can look back now and tell you exactly what made me lose jobs, become a bully and con magnet, and even lose relationships. I can do this, because now I know myself. I can now tell you just how lost a person can really be when they don't know themselves or what affects them.
For all I went through, I am still one of the lucky ones. I could have been any kind of criminal you can imagine by simply taking random paths in life as many of us do. That's how my life happened, it happened at random and with little control. Sure, I had ideas of what I wanted to be, but I had no clue how to get there. Because of that, I wound up in relationships that didn't match me. I built up colleged debts on things I would never use. Even when I joined the Army, it was on a whim. I was out of control because I had no support to teach me about my conditions and what they could to to me.
Could my life have been different? Certainly it could. I think the abuse would still have happened, but my thought processes would be with a different understanding of how I felt and saw the world around me. Now I see this as possible for all our our children who have autism, bipolar, ADD, ODD, and any of the other combinations of disorders that afflict our society in growing numbers year by year. We must teach them about themselves.
Take a child with peanut allergies. What do you think his chances in life are if he manages to somenow never learn that he has that allergy? Consider that the parents never ever eat anything that has anything to do with peanuts. Once he's on his own (I know it's virtually impossible to go through life with such an allergy and not discover it before you're five), how long will he make it in an now unprotected fashion? He can't. The same is very true for our children who grow up never understanding what is happening in their bodies from these disorders. Their lives become random and often chaotic.
So look to your children, teach them about themselves and how to control their conditions. You'll be glad you did.
As a child, I hated myself. I blamed myself for the abuse I received and the failings I endured in social circles from so very young. As I grew up I thought I must be some kind of chronic bad luck in human form. Nothing worked right for me, ever. When I started working jobs, I lost them or found I just couldn't handle them. I tried to go to colleges, but didn't understand what I was looking for or getting into. I was walked on, duped and scammed. I lost hope on daily basis.
In relationships I did no better. In my first marriage I had anger problems. I never hit anyone (except myself since I was still having the tourette-like self damaging seizures) but I would yell and scream in arguments when really not necessary. Everything frustrated me and I could connect through very little.
All my life, I've asked myself, "why?". Then, through a little one who had no idea he was a hero, the answer came. As I studied the effects of Asperger's syndrome on my life, with guidance and doctors assistance, I learned all the answers I could ever hope for. I can look back now and tell you exactly what made me lose jobs, become a bully and con magnet, and even lose relationships. I can do this, because now I know myself. I can now tell you just how lost a person can really be when they don't know themselves or what affects them.
For all I went through, I am still one of the lucky ones. I could have been any kind of criminal you can imagine by simply taking random paths in life as many of us do. That's how my life happened, it happened at random and with little control. Sure, I had ideas of what I wanted to be, but I had no clue how to get there. Because of that, I wound up in relationships that didn't match me. I built up colleged debts on things I would never use. Even when I joined the Army, it was on a whim. I was out of control because I had no support to teach me about my conditions and what they could to to me.
Could my life have been different? Certainly it could. I think the abuse would still have happened, but my thought processes would be with a different understanding of how I felt and saw the world around me. Now I see this as possible for all our our children who have autism, bipolar, ADD, ODD, and any of the other combinations of disorders that afflict our society in growing numbers year by year. We must teach them about themselves.
Take a child with peanut allergies. What do you think his chances in life are if he manages to somenow never learn that he has that allergy? Consider that the parents never ever eat anything that has anything to do with peanuts. Once he's on his own (I know it's virtually impossible to go through life with such an allergy and not discover it before you're five), how long will he make it in an now unprotected fashion? He can't. The same is very true for our children who grow up never understanding what is happening in their bodies from these disorders. Their lives become random and often chaotic.
So look to your children, teach them about themselves and how to control their conditions. You'll be glad you did.
Wednesday, May 20, 2009
Raising Denver Part 4: Diagnosis
A trip to a child therapist gave us our guiding arrow towards diagnosis for Denver and myself. She noted key points in his behavior; eye contact, lack of responsiveness to questions, strange organization rituals, and lack of understanding for social boundaries. Yes, I know small children aren't renound for their social understanding, however, they still have an age appropriate level of behavior. She suggested the name of a specialist, the only one in the area we lived in.
Testing for autism is not a quick process. It's a series of tests and questionaires. The questions are many and are about things that we notice in his behavior and reactions to the world around him. Asperger's Syndrome, what was this condition? I had never heard of it before and I started investigating it myself. I can already tell you that I saw myself in my son in many ways and I started to wonder if this condition could be hereditary?
I asked the doctor we were seeing and she said Asperger's can be very hereditary. I asked if I could be tested and we began my learning journey that would redefine everything I ever thought I knew about myself. Two months after my diagnosis, my mother contacted me to tell me that she had been diagnosed with the condition herself. She didn't know I was even being tested on the matter. So far, all of my nephews show strong traits towards this condition.
At home, Denver continued to surprise us and we feared for his safety overnight. We were met with a serious dilemna. We tried baby gates. With just one, he climbed over it. With two, we had the same result. Three worked to keep him in until he learned how to dismantle the baby gates. I already mentioned in the last part that child proof doorknobs were useless too. Authorities said that locking a child in a room is a fire hazard and considered child abuse.
So, what do you do when your toddler is so smart it's a hazard to his health? What ever you have to and you just don't tell anyone else. Yes, that means I put a latch on his door and once he was asleep, he would be shut in until morning. The fact of the matter is that, if there were a fire, an autistic child wouldn't be capable of escaping on his own anyway. If you take sensory overload into consideration, they would retreat or shut down. Denver would have hidden in his blankets if we couldn't get to him. Do you think he would be easily found? There are a lot of reports out there that say otherwise.
In case of a fire, our mission was to get Denver and get out either via the window or a front or back door. Then we would head for the street. So we had a plan and the door was only latched over night. Thankfully, Denver grew out of his extra adventures and we could stop latching the door. Sadly, many a family struggling with just this have been charged with child abuse or neglect when they are only trying to protect their child from him or herself. Had they allowed the child to roam free overnight and it caused injury or death, well, lets just say the charges were the same where we lived. So, since do and don't have the same outcome, you may as well "do" and protect your child. At least then they aren't getting into the knife drawer.
Denver's room had lots of blankets and large soft plush toys. Everything was soft and safe, so in the night, he had little to hurt himself with if anything. If you think that was the biggest challenge or that Denver was done throwing us curveballs, you'll have to see part five, because you've got another thing coming.
Testing for autism is not a quick process. It's a series of tests and questionaires. The questions are many and are about things that we notice in his behavior and reactions to the world around him. Asperger's Syndrome, what was this condition? I had never heard of it before and I started investigating it myself. I can already tell you that I saw myself in my son in many ways and I started to wonder if this condition could be hereditary?
I asked the doctor we were seeing and she said Asperger's can be very hereditary. I asked if I could be tested and we began my learning journey that would redefine everything I ever thought I knew about myself. Two months after my diagnosis, my mother contacted me to tell me that she had been diagnosed with the condition herself. She didn't know I was even being tested on the matter. So far, all of my nephews show strong traits towards this condition.
At home, Denver continued to surprise us and we feared for his safety overnight. We were met with a serious dilemna. We tried baby gates. With just one, he climbed over it. With two, we had the same result. Three worked to keep him in until he learned how to dismantle the baby gates. I already mentioned in the last part that child proof doorknobs were useless too. Authorities said that locking a child in a room is a fire hazard and considered child abuse.
So, what do you do when your toddler is so smart it's a hazard to his health? What ever you have to and you just don't tell anyone else. Yes, that means I put a latch on his door and once he was asleep, he would be shut in until morning. The fact of the matter is that, if there were a fire, an autistic child wouldn't be capable of escaping on his own anyway. If you take sensory overload into consideration, they would retreat or shut down. Denver would have hidden in his blankets if we couldn't get to him. Do you think he would be easily found? There are a lot of reports out there that say otherwise.
In case of a fire, our mission was to get Denver and get out either via the window or a front or back door. Then we would head for the street. So we had a plan and the door was only latched over night. Thankfully, Denver grew out of his extra adventures and we could stop latching the door. Sadly, many a family struggling with just this have been charged with child abuse or neglect when they are only trying to protect their child from him or herself. Had they allowed the child to roam free overnight and it caused injury or death, well, lets just say the charges were the same where we lived. So, since do and don't have the same outcome, you may as well "do" and protect your child. At least then they aren't getting into the knife drawer.
Denver's room had lots of blankets and large soft plush toys. Everything was soft and safe, so in the night, he had little to hurt himself with if anything. If you think that was the biggest challenge or that Denver was done throwing us curveballs, you'll have to see part five, because you've got another thing coming.
Tuesday, May 12, 2009
Raising Denver Part 1: In a Name
My son's name has a history. His full name is Denver Justice Wilde and he likes to make sure you know his whole name whenever anyone asks. He knows a little bit about the history of his name too and if you ask him, he might tell you. He is named after a dear departed friend I considered to be a brother. He considered the same of me.
In Denver Jr.'s family, the first son of a first son's name had to be Denver. It was the family tradition and reached clear back into the family's roots in old France. So, it's safe to say that the city has nothing to do with it. For that matter, when this tradition started, the United States hadn't been born yet.
Denver Jr. looked so very forward to passing his name on to another generation one day. That was not to be. We lived in Henderson, Nevada when it happened. He worked and extra shift in a video store for a sick co-worker. I found out about it when I went to pick him up at 11pm.
"Sorry, I'm doing an extra shift. It's good money and the other guy is sick."
Fine by me, we could use the money since we were about to get a new apartment to officially start of our Las Vegas living and adventures. We called ourselves the DnD Brothers and we had big plans. I bought him three Mountain Dews and got him some change for the night shift and went back to his grandmother's house where we were staying.
That morning, his father woke me up and asked if I was supposed to be picking Denver up. I had expected a phone call to wake me at seven am sharp but that didn't happen. The only thing I remember was waking up at five a.m. with a strange feeling that I should get in the car. I dismissed it and went back to sleep.
Denver Sr. and I drove my car out to the video store. We could see the yellow tape cordoning off the parking lot and building from blocks away. Denver Sr. caught on right away, but I didn't. Denial? Hope springs eternal? I don't know. Maybe the thought was just too much to consider. It took me innocently asking an officer how long they would be questioning my brother before I was given the messsage.
"I'm sorry, sir, but you won't be taking him with you anywhere. He's gone."
Gone? I fell back against my car and felt reality pulling away from me. I couldn't believe it was even possible. I had just seen him before midnight.
Two thieves, high on drugs, robbed the store in the early morning hours. A man and a woman. I still know their names, but I won't waste space with them right now. Since I was one of the last people who saw him alive who knew him, I faced his killers in court for two years. I identified my brothers body for the State of Nevada. They rot in prison to this day.
Needless to say, the tradition broke, but I decided not to let it stay that way. I told Denver Sr. that I planned to start the tradition anew. True, it would not be of the same family "blood", but family none-the-less.
I had three daughters and earned a stepson before he came and my wife agreed that his name would be Denver Justice.
He made quite an entrance into our world, three months early, two pounds, lobster red and screaming with quite a set of lungs for his little size. I've seen all my children come into this world and each one had their own way of making their presence known. Denver's was the loudest.
That was just the hairline beginning of my adventures with this little man. Oh how I had no idea what I was in for.
In Denver Jr.'s family, the first son of a first son's name had to be Denver. It was the family tradition and reached clear back into the family's roots in old France. So, it's safe to say that the city has nothing to do with it. For that matter, when this tradition started, the United States hadn't been born yet.
Denver Jr. looked so very forward to passing his name on to another generation one day. That was not to be. We lived in Henderson, Nevada when it happened. He worked and extra shift in a video store for a sick co-worker. I found out about it when I went to pick him up at 11pm.
"Sorry, I'm doing an extra shift. It's good money and the other guy is sick."
Fine by me, we could use the money since we were about to get a new apartment to officially start of our Las Vegas living and adventures. We called ourselves the DnD Brothers and we had big plans. I bought him three Mountain Dews and got him some change for the night shift and went back to his grandmother's house where we were staying.
That morning, his father woke me up and asked if I was supposed to be picking Denver up. I had expected a phone call to wake me at seven am sharp but that didn't happen. The only thing I remember was waking up at five a.m. with a strange feeling that I should get in the car. I dismissed it and went back to sleep.
Denver Sr. and I drove my car out to the video store. We could see the yellow tape cordoning off the parking lot and building from blocks away. Denver Sr. caught on right away, but I didn't. Denial? Hope springs eternal? I don't know. Maybe the thought was just too much to consider. It took me innocently asking an officer how long they would be questioning my brother before I was given the messsage.
"I'm sorry, sir, but you won't be taking him with you anywhere. He's gone."
Gone? I fell back against my car and felt reality pulling away from me. I couldn't believe it was even possible. I had just seen him before midnight.
Two thieves, high on drugs, robbed the store in the early morning hours. A man and a woman. I still know their names, but I won't waste space with them right now. Since I was one of the last people who saw him alive who knew him, I faced his killers in court for two years. I identified my brothers body for the State of Nevada. They rot in prison to this day.
Needless to say, the tradition broke, but I decided not to let it stay that way. I told Denver Sr. that I planned to start the tradition anew. True, it would not be of the same family "blood", but family none-the-less.
I had three daughters and earned a stepson before he came and my wife agreed that his name would be Denver Justice.
He made quite an entrance into our world, three months early, two pounds, lobster red and screaming with quite a set of lungs for his little size. I've seen all my children come into this world and each one had their own way of making their presence known. Denver's was the loudest.
That was just the hairline beginning of my adventures with this little man. Oh how I had no idea what I was in for.
Labels:
autism,
autistic child,
autistic parent,
autistic parent of autistic child,
family name,
parenting,
tradition
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