Why we need Autism Education more than ever

Do you call it "awareness"? Maybe you prefer "acceptance"? Whatever term you prefer to use, you're going to be close to the same mark. You can't have one without the other and you can't have any of it without education. This is more important now than it's ever been and that's not a issue that will decrease with time. I'm writing this to provide a list of reasons that prove what I'm saying. I'm even going out on a limb to say they're irrefutable. Let's see what  you think:

Because it's on the rise:  Right now the national averages put autism at 1-88 children. In some places it's more like 1-60, others it's 1-100, but 1-88 is the average ratio. That is an increase in cases from just 5 years ago when the average was 1-100 with the variation being more 80's to around 110. It's hard to say just how the new DSM is going to affect those numbers, but I don't see them dropping. Asperger's as a term may have been dropped, but it's being called simply "autism". That actually could raise the numbers even higher as the forms are lumped together and measured by severity instead of name. Further proof comes from a simple truth that supports the increase in numbers. It's a force of Nature because:

It's hereditary: Children with autism are growing into adults with autism. Just like I did, they are having children with autism. It's the cycle of life and nothing is likely to stop it anytime soon (save a planetary disaster). While all factors of this are in controversy, the hereditary nature is agreed upon. Check out this Wikipedia article. If you hate Wikipedia, maybe the Mayo Clinic is enough to convince you? As both point out, autism has a "strong hereditary factor". So, as long as people grow up and have kids who grow up and have kids, this won't be stopping anytime soon.

Because it's controversial: Autism brings controversy in ways never seen by a medical condition in history. It's the most controversial medical condition ever. You see it in commercials, talks online, in groups, and at gatherings. The autism community is split into factions as much as religion or politics with people who defend their beliefs with equal tenacity. Just look at all the fights over Autism Speaks. There are thousands of supporters to Autism Speaks and just as many who hate them. Someone who reads this will hate me just because I mention their name. Speaking of that, the division of the community is so bad that groups will resort to borderline racial slurs of each other. So autism, not only has it's own scale of belief systems but; for some, it's almost its own ethnic race. All of this goes to the level of picket lines and huge demonstrative gatherings for each side. If there's one thing that shouts for education to save the day, it's this! Further controversy goes into the fact that there are still hundreds of people out there who don't believe autism is even real. That includes some doctors.

Because kids go to school: IEP's are going to become even more common than before. Some public school systems complain that they are overrun with IEP issues. It gets worse because most states seem to think that this is the time to cut funding to schools across the nation. Thanks to population growth and the fact that autism is on the rise as documented, they couldn't make a worse decision if it involved drilling holes in their heads. Kids with autism have vastly differing needs. That means more IEP's. That means more costs. They need more funding, not less. So there's another entire group of people who apparently need educating (and they're supposed to be educating our kids).

Because autistic kids become autistic adults: In recent years a genius leap was made where people realized that kids actually grow up sometimes. That created a whole new scale of needs, support requirements and need of education on its own. Strides are being made forward, but more is still needed. As the autism community grows you can bet the need will.

Because of the Media: Let's face it, the media hasn't always been an ally to autism. Sometimes they fudge it up and wind up creating an image for autism that's completely off mark. Some small efforts have been made to change those mistakes, but they are small. I'm talking about the mention, clear at the end of a segment about Adam Lanza that pointed out; "people with autism are no more prone to violent crime than anyone else".  Yep, one whole sentence. I'm glad they said it. Still, keep the media properly educated takes a constant and diligent effort. Not only is there the news to deal with, but an explosion in "autistic" characters in television and movies. That means we have to work even harder to make sure people understand that we aren't all like Dr. House or Sherlock Holmes. We aren't all like Will Graham (of Hannibal) or the boy from Touch. While they're interesting characters, they don't hold a candle to what all of our community is like.

Because of insane costs: Families with autism still face way too many out of pocket expenses. Some of this comes from difficulty getting the professionals to see how much help is needed. Some of it comes from insurance companies not covering all facets of treatment. Insurance companies need education like anyone else, and it appears they still  haven't got it all. Google "autism costs" and get ready for a reality check. With numbers growing, you can bet costs won't be going down.

Because of social ignorance: Where couldn't I go with this? How about the shocking unemployment rate among autistic adults? The reports of difficulty getting halfway considered for jobs are out of this world. It's ridiculous. Good people are falling through the cracks of equal opportunity. Other disabilities still take a hit, but it's harder to prove with "invisible" conditions. Well, employers are in for a wake up call in coming generations, aren't they? Then we can look at bullying and abuse that still happen because it's chaos growing up with autism. It's all over the internet and national news somewhere every day.

Because of apathy in emergency services: Not just apathy, pure lack of education. While there are programs touring to help police, fire and ambulance work with people who have autism; they're going to have to up the ante. Where you once had one autistic child in a household, you now have a whole family on the spectrum. As long as there are people being beaten, pepper-sprayed, and tazed for little more than having a "quirk", education will be a top concern. Obviously, someone didn't know enough and a tragedy happened. People are dying from this.

Finally, autism isn't the only community growing by leaps and bounds with hereditary issues. Bipolar is keeping a steady pace. Mental illness is on the rise in our country and around the world at alarming rates every year. Along with that is an equal increase in discrimination and stigma. It's not a fun life for people with these conditions. For those who say "just lock up all the crazy people", they best be careful. One day that might just be everyone.

To all my Autism Friends and Family

Just because you have autism or a debilitating disorder, doesn't mean you can't leave your mark on this world.

I plan to be a living example of what I just wrote above this line and I'm asking for your support in doing so. NOT monetary support, so just put that out of your mind. I'm asking for moral support in another fashion that won't cost you a thing. I'm asking for a show of numbers. Let me explain.

As some of you know, I have moved on to another project called Galaxy Zento. It is my universe of heroes, villains, fantasy and sci fi and has it's own blog (linked to the name). This universe is how I survived some of my childhood.  I want you to remember that this is the work of a man with increasing health difficulties, disability (autism, brain injury and possibly MS or related). On top of that I want you to remember that this is a man not giving up. So let my example be your example. I want to share that with you.

You are the best of readers and I have enjoyed your support in my autism writings since I started in around 2008. The works of this blog will remain online until the internet ceases to exist (or blogspot does and I hope that never happens). We have shared so much in the world of autism. We've laughed and cried and my work has actually helped a few people here and there. I do hope it helped way more than that. So here is how you can help me with my project.

1: If you have been a "follower" of this blog, please do so on the Galaxy Zento blog too. Even if you never go back to it, it shows support. I really hope you do come back and enjoy the stories I'm writing there, but just the fact that followers show is wonderful and I will be grateful to you for that.

2: Share it! If you like what you read or know someone who likes to read online, share my work where ever you want to! So long as there is a link and I'm posted as the owner, you can even print and share (not sell).  Share anywhere you like and go, Facebook, Twitter, Reddit, Stumbleupon, whatever!

3: Comment! I would very much enjoy to see comments from anyone. You can post anonymously or sign in and your email will not be spammed (I've checked on that with Blogspot). I will not use your email for anything at all. I would just love to get the interaction. The items above are more important, but this would be very cool to see.

4: If you are on Facebook, come to the Galaxy Zento fan page and click LIKE. That will also NOT spam you and shows your support. Feel free to browse the more than 200 illustrations I have drawn so far (and more to come before I lose any more use of my hands). I hope you will visit there often too. The more "likes" the better. Naturally, as above, comments and all sorts of picture likes are very welcome!  And again, share the same way if you would. On the fanpage there will be updates to all sorts of things Galaxy Zento, that includes the book work and more art.

Now, if you want to, and you see something of my art that you really really like or want to show off Galaxy Zento in other ways, that's where you could make purchases if you want to. I do NOT expect you to. But it is available and I have done Autism art as well. The autism art and T-shirts are available on my CafePress page. Kids sizes are there too. If you want a mug or mouse pad compare prices with my DeviantArt page before you buy. I don't get much out of any sales. I get 2 bucks if you buy a mousepad at DeviantArt for example. But you could get something to show off and enjoy.

Sorry, no T-shirts on DeviantArt.  I will take Autism art requests and make them available!

 My stance will always be for autism education. Want to know who I think you should donate to on autism?   Easter Seals and your local Autism Society chapter, that's who.  If you are in another country and have a group that's helping your community (that's legally recognized and legitimate for taking donations) go with them.

So, what I'm asking to recap is for follows and likes on the blog and facebook and sharing. Commets and interaction would also be nice. So there you have it. I will be passing this around to my friends of autism on facebook and email and I hope you will consider it. Let my example be yours. And know that no one with autism is alone. You are not alone. Thanks and I hope you enjoy what you see!

How to be and not be an advocate

So you want to be an advocate. You want to help others with a cause in some way. Most advocates on the internet are volunteers, using what they know to help others. Some actually have a good relationship with schools and law enforcement; others even have some legal pull. Whichever of these you want to be, you will have to consider a few things that I strongly advise. I advise this from personal experience and events I have personally witnessed. I hope this helps you. Consider it a ‘do’s and don’ts of advocacy. I’m going to speak from the advocacy of autism, but this really does go about the same for whatever cause you support.

First of all, if you want to be an advocate with legal backing of any kind, make sure you get the education and any proper licenses you need. Take classes and obtain a degree. Don’t go out and make wild claims to puff yourself up, like claiming to be a DC Lobbyist. Things like this (all DC Lobbyists are accounted for and fully listed for the public) are easily found out and will hurt your standing as a trustworthy advocate. Be able and willing to show your credentials if you claim to be a legal advocate. The sad truth is that some people out there just want your money or to be seen as something important. They are willing to use others to achieve this. Don’t be one of them. Advocates like this can do way more harm than good.

Educate yourself on your cause as much as you can and always be ready to update that education as terms and issues change. Research, research, research, learn how to do research. The more you educate yourself, the more help you can be to others.
Aside from your working knowledge, you need to protect your image. A lot of internet advocates don’t do this. Your image is how people see you and worse, how they may choose to portray you. I can tell you that autism is as bad as politics when it comes to advocate mudslinging. There are advocates out there who see this as a competition for who you should go to. Don’t get involved in that. Let me tell you a little story, (some of you long time readers may know it already).

In late 2009, a young man with autism was restrained in his school and struggled to get free. He was charged with felony assault and the family was in turmoil. The boy’s grandmother came to the internet seeking any help she could. Advocates came together and put up a “chip in” to raise money for legal fees. During this time (into 2010) the Grandmother stated she was being harassed and investigated by a group of other “people” on the internet. I stepped in and tried to get them to stop. I tried to be Mr. Internet Hero and let me tell you something. Pay close attention to these words.

It blew up in my face. Do NOT do this.

All I did was make myself a target. I thought I should warn the autism community about my experience and that was the wrong thing to do to. I had my past dug into and slathered on the internet (20 years into my past). There was a case where I filed a suit against and an employer. Naturally they made several accusations against me to protect themselves. Those digging, took those accusations and posted them on the internet for all to see. Accusations that are not an accurate reflection of who I am were posted and they were damaging. I’ve been fortunate to have readers who know me and were able to see how much hostility were in the postings. Since then, to this day, I’ve been hounded, harassed, and even threatened. I’ve been accused of being some ringleader of white collar crime and had everyone who wants to put me in their own internet court room pop out of the woodwork. I’ve had some of the nastiest comments and postings you could ever think of posted at or about me. It’s not pretty, not nice, mature or ethical. All because I thought I was standing up for someone else.

If you want to stand up for someone’s rights, do it with the people who matter to those rights. Tell your client to block all attackers, that’s what the block button is for. And then block them yourself. Do not confront, you have no idea what kind of mentalities you will be dealing with and they will attack your image and anything else they can.

I have found that my advocacy is best done as simply giving out the information that may help others. I give advice where I can and will no longer ever engage in trying to “protect someone” on the internet. I can’t. I will give advice on what to do. Block them, ignore them, and keep up on what’s important. There are many internet advocates who go out and pull the “rallying” card to get people to shut so and so down, etc. It’s not worth it. All you’ll do is make yourself a target. Put the time into actually helping others, a far more rewarding issue. I’ve gone so far as to remove all mentions of negativity and other “advocates” or attackers from my blog for sake of being a more positive place for others. The same cannot be said for my pursuers. So learn something from my mistake, okay? Avoid the dramas the best you can.

So, hopefully, this gives you some ideas on what you should and shouldn’t do to be an advocate. Remember there are several types of advocates, research them to see what you can do best.

Autistic student: Reeling them in for homework

Staying on task is hard for many of our spectrum students. It's even harder when the topic at hand isn't their main interest or an interest at all. There's a lot of redirection involved, especially at first and early in the year. It's frustrating, mentally taxing and can leave you drained. It can still pay off, though, so it's important to never give up.

The first problem we face is the time of year. It's only the beginning of the school year so this is a change in routine. It's not a small change either. There are many expectations that just weren't there for the summer. Try as you might, even with some extra activities and camp, you just can't recreate those expectations (on your own anyway) during off-school months. So this will be a period of adjustment with new routines. Thankfully, we have been blessed this year with good mornings in the way of getting up and getting dressed without fits. And now he's learning to make his own breakfast (cheers!). So, as years go by, improvements are quite possible.

The second is making the switching of tasks through the day part of his routine. It's all routines inside of each other and he balks at them. My son has had difficulty calming down for class in the mornings, (no doubt because of all the sensory input from excitement and hustle bustle) and has had to leave class a few times to recalibrate. I will say his teachers are on the ball with him. We are blessed to have such proactive teachers this year. But for all of our kids, we have to remember this goes hand in hand with number three.

The third is major sensory input. Crowds of children are loud and noisy. Hallways echo, and there's constantly someone bumping into you. At some ages, our kids are starting to put on deodorants and colognes and our sensitive kids will smell this at a distance. Kids with hygiene problems will be there as well and add to the mix with smells of their own. Not all of them will be triggers, but some will be and likely have been for some time. And let's not forget temperatures, those can have drastic effect too. Especially heat as it increases irritability.

Now I get to homework. It's another area of routine that we know our kids hate. It's more school after the school day has let out. What kids wants that? Well, it's a fact of life and they have to do it. For us, toward the end of the day, my son is more embroiled in fantasy from holding back all day (or being steered back to reality all day) and he just wants to play. Bringing him in from fantasy to get started on that homework is kind of like reeling in a really big fish. It's a fight for a bit, but once he's in the boat it gets easier.

The next issue in homework is getting overwhelmed and giving up repeatedly. He still has to learn to slow down and take his homework or any problem a bit at a time. He wants to rush, skip steps and be done. This is pretty common of our spectrum kids. It's especially common with Asperger's or ADHD kids. You get the idea. Ours may throw a fit and close down. We give him a break, but he can't go back to play or have privileges until he does that homework. So, piece by piece it gets done. It can be tedious and tiring for everyone involved too.

Handwriting is still a vexing issue too. It's like having something to concentrate on inside of everything else. My son is working on it, but it takes as much redirection and do-overs as anything else. Sometimes, by the time he has to rewrite something, he's forgotten the what the problem was and has to rethink it too. That's frustrating for him. I'm sure it's the same for many of our kids. Think about it, how much can your brain juggle?

It's easy to feel like this will never improve, but the truth is, that it can. If he's able to keep trying over and over again, then he may and likely will improve. That's not a guarantee of course. But, look back over your child's school history and make it appoint to notice the improvements. Has your child improved while moving up in grades? Then there's distinct hope. Has he improved despite lack of support or in the face of other difficulties? Then there's major hope.

So here's to moving on in a new school year (or getting started for many of you). Keep your chin up and never give up.

Autism and Fear of Storms

I received a message from Ashley who said: "I'm wondering if you've had the experience of maybe you child becoming overly obsessive about bad weather conditions? With the tornado warnings and every thing recently my son has been really worried about it... thanks for any help you could lend."

The weather is a larger than life and ominous force to a child. If your child is on the spectrum and is sensitive to routine (almost all of them are) then the weather serves as even more of an anxiety. It's hard to feel safe and secure with something a million times your size that you see no routine in. If you think seasonal changes are tough, try having your child obsess over daily weather conditions.

Now add in seasonal conditions like tornadoes and floods. We see their destruction on television all the time. Our kids see that and say "oh no!". They associate the condition globally. What happens in one place, happens everywhere. My son is afraid of floods. For a while, rain water that could fill just the gutter, was enough to incite panic. It still takes some reassurance today when rain starts coming down hard. Now, he studies tornadoes, volcanoes, and other giant weather factors as a source of fascination. It helps that school has supported educational issues on his fears as well as myself.

First, we have to understand that this is a real fear and we shouldn't diminish it or punish it.

Second, we have to understand that resolving this will not happen overnight. It will take some time and repeated application of education and support.

Third, use education. Find age appropriate books about weather that he can look at for himself (yes, or herself). Teach him about weather as it applies to where you live. There are even books on fearing weather as children. I don't have the titles but your local library can help you.

Teach him what to do in bad weather and give him his own weather kit with blanket, flashlight, and radio. Reinforce that he has a family that loves him and will protect him. Show him that safety from weather is done as a family at home or a team effort at school.

If he's old enough, show him how to check the weather. If, not, check it on your internet and show him. Education is the answer. Love, support and education will help your child understand that the weather is something we have to live with, but we understand it and know what to do for safety in bad weather.

Remember, our autistic kids work best with direct simple facts. It also helps to make learning about weather an accomplishment of some kind to boost confidence. Use lots of praise for learning, even if it doesn't seem to affect your child because of their autism.

Police, Emergency services and Autism, what you can do

I recently had some interesting responses to an old Hub Pages article I wrote on what to do about an autistic meltdown, should you (as someone who isn't necessarily experienced) be faced with one. That article is HERE for the reading.

Amongst responses is the general disagreement on calling police in the situations for fear they'll only make things worse. Thanks to media sources and happenings across the globe, this is a legitimate fear. Even with good programs available to help all of our emergency services, too many departments still aren't educated on autism. Reports of autistic persons being tazed or tackled still come up.

With police, the simple fact is that training is meant to keep them alive. It is not geared toward handling autism in the first place. So when they come across a weird and escalating situation, they will subdue first and ask questions later. Remember, police routinely face situations were a gun or knife could pop out of anywhere. People go violent on them all the time. It's a high stress environment that can and will kill you if you aren't on your toes.

What we need to do is offer the education to our departments. There is no reason that any of you can't take this information, walk into the police department and make them aware of it (nicely). The same goes for any emergency department. Offer it to City Hall for that matter. Make it known and always approach as a 'friend'. We can make changes and make a difference. So, first, what are these sources?

First let me introduce you to the work of Dennis Debbaudt (yes, click on his name for the website). Dennis is nationally known now for his program geared toward helping emergency services with autistic persons. He has a series of books and videos and a very impressive resume of appearances. You could say that Dennis is loaded with information. You can even write or call him directly for additional information or advice on approaching your emergency services.

Next, Bill Cannata who is with the ALEC program. That stands for Autism and Law Enforcement Coalition. Click on the name to see the website. Bill has direct experience as the Captain of a fire department. ALEC offers a training program for all forms of emergency services in handling persons with autism. Make sure to check out the website and take it down in notes to offer to your emergency divisions.

Next I'm going to actually direct you to another blog; Autism 101 for Fire and Rescue. Yep, another link there. It's a long posting and offers some of the info I've given here, but you'll also find a couple of informative checklists further down as well as a host of more links. Take this info to offer to your local services.

With all that, how do you approach them? How do you get them to take part? Well, here's my take on that.

1: Always approach as a friend. You purpose is not just for your own autistic family members, but for the community as a whole. Understanding of autism can increase officer safety, civilian safety, and save critical time in emergencies. As a member of the autistic community, you can get organized and offer this information for all involved.

2: Show numbers. Help them to understand just how many members of the community have autism. Help them see a need. Use current news of the area and incident reports to support the interest. Remember, be friendly! Anger or outbursts will get you shut out or in legal trouble.

3: If you are treated poorly or turned away (rudely perhaps), use the "chain of command". Go to the head of the hospital, Mayor's office of your city, Representatives, Senators, or even Governor. Offer them the same information and show concerns and numbers accordingly. Tell them about your experience with the people who work under them and your disappointment.

4: Don't give up. You can be heard and improvements can be made. Just always be friendly and polite. Give flyers and information packets. Be organized and neat. And contact the resources I've listed here for their input on that matter too.

It's also a good idea to let emergency services know there is an autistic person in your home. It's okay that they know you or your autistic family member. Some people even have stickers on their door for emergency information.

Hopefully, this information helps you make better connections with your local agencies for the betterment of community. Please feel free to share your own ideas and this blog.

Autism spotlight: A list of Autism information

I was recently contacted about a list of fifty sites for autism teachers (and families) to learn more about autism. I posted a link on my Facebook page, but if you haven't added me there, then you can find the information at the link below:

Doctoral Degrees: 50 Great Blogs for Autism Teachers

This is an in depth list of autism material. There are plenty of names you may recognize, like Autism Speaks and some that you may not (and that's any guess depending on what you personally will recognize).

In any case I strongly suggest perusing this list for information. I will say, if you are new to autism, 50 blogs in your lap might seem a bit overwhelming. Just take your time and start with general information first. The best places for this can be found in this list but I will just say Autism Society and Autism Speaks for some starting points.

If anything, this only goes to show that you are not alone and there is plenty of information out there with people willing to help you.

Photo credit to same site.

Understanding Autism for Dummies in depth

So what does this book really have to offer? In my last blog article I told you about one in particular section. Today I am going to tell you just what this book has to offer you and why I think it will help a lot of families.

First of all, the "For Dummies" franchise has a reputation for making information simple enough for the "layman" who doesn't know jack about the subject at hand. This book carries that reputation nicely. I have to admit, I will likely be quoting this book often as a resource in the future. This book is written by Stephen M. Shore and Linda G. Rastelli (and EdD and MA respectively).

In the beginning of the book is a handy cheat sheet with exceptional information listed as: Inquiring about Interventions, Important Acronyms, What to have on an emergency ID card, Helpful autism websites, Getting the most out of your child's education, Preparing for emergencies, Communicating with autistic people. And the ID card has a front AND back with great info.

The foreword is written by Temple Grandin, nuff said on the department. It compliments the book nicely and you just have to read to see for yourself on that one.

The rest of the book is neatly arranged and meant to be read in the parts you need. You don't have to read the book cover to cover thanks to the indexing and chapter positions. Each part of this book and it's chapters are clearly labeled. Here they are:

Part One: Understanding Autism: This section is all about classifications, treatments in general, ideas on where autism comes from, getting a diagnosis, and where Asperger's fits on the spectrum.

Part Two: Addressing physical needs: Medications and treatments are talked about here. Biochemistry and nutrition are also touched on in this section.

Part Three: Enhancing learning and social skills: I'm going to list the chapters as they appear, should tell you all you need to know about this section:
-Choosing an appropriate behavioral, developmental or educational intervention.
-Dealing with learning and sensory differences.
-Finding a learning environment that fits your child's needs.
-Legally speaking; Making the most of your child's education.
-Fostering healthy relationships.

Part Four: Living with autism as an adult: This is about life after high school and touches on special needs planning and getting into healthy relationships. It even talks about romantic relations and adult friendships.

Part Five: The part of tens: This section is where the quotes are in dealing with things that people say and do in public regarding you or your child. It includes the first ten things you should do after a diagnosis.

The appendix lists a long line of places to go for more help. The whole book goes farther and deeper into the information that I show here. It's a book with more than 300 pages and all of them are very useful.

Nothing is perfect for everyone, but if you wanted to get a guide on autism, this is the place to start. I got my book for less than fifteen bucks (including shipping) on Amazon. It's cover price is still affordable at 19.99. You may be able to find it at used book stores too for even less. Check around and get this book. I can't advise it enough. Every autism library should have it.

Risks of advocacy

My purpose in advocacy is to inform and assist families and people in finding helpful information. I want the general public to simply know and understand more about autism. In doing this, I discovered those who victimize people on the spectrum and their families. I decided that people need to be informed on them as well. Even in that, you have to be careful who you get involved with. Especially who you get involved with on the internet. You have to be careful who you trust. And sharing information on people who may rip you off will make you some enemies. Those people don't like being exposed.

Seeing the depths that such people will go to when they claim to be advocates themselves, has been a real learning experience for me. It's shown me where I need to have a thicker skin to shrug them off. When you are autistic yourself, that's not always so easy. You can get hung up on the injustice of it all and it can get under your skin. But it really is amazing what these people will spend their time on when they could be educating on autism themselves. So this blog is dedicated to all of those advocates who struggle to do the right thing in spite of these behaviors from haters. Also to those of you who want to be an advocate.

Because some people take being an advocate and turn it into the chasing of the spotlight. They think it's supposed to be how they become famous and anyone else who gets any attention besides them is an enemy. It may be anything from jealousy to serious mental illness that drives them. They will go out of their way, spend months of time and even money to do low and terrible things. In short, they resort to internet bullying. At that point, they are not advocates any more and stand for nothing good what so ever. They only care about themselves. Some are full of audacity and false authority at the same time and will try to make you answer to them as if they are some special court. That's different from simply informing on your personal experiences or someone asking for your money and the things they are doing recently (compared to umpteen years ago).

I've already talked about these people in my blogs and anyone who has been following my writing knows the details in and out. My point is that, if you want to be an advocate, you may face people like this and there's more than what I've even posted.

You may, for example, stand up for someone and their rights. You may be supportive to that person and even a friend. That person may turn out to be one of the fame seekers who will turn on you and stab you in the back. When you see those true colors emerge, the best thing you can do is walk away. And that won't feel good. And sometimes, that won't be enough to stop that person. They may go to lengths of posting comments about you under pseudo identities all over the internet. They may follow your blogs and stalk on them just as badly as the pseudo authoritarian.

The reality is that they feel you somehow threaten their success. They want you to fail. What you need to understand and keep in mind about them is this: They are the ones who will ultimately fail. They are on a course of self destruction. You have to keep that in mind and not let that stop you from helping someone else. Don't let them push you down for any reason. Your work will show what you are really about to anyone with any cognitive thinking ability. The same goes for your reasons for doing that work. It will show for anyone who wants to give you a fair chance to be known.

Another risk is the people you defend and their enemies. People who are discriminating or attacking someone you are trying to help, will turn on you as well. It comes with the territory. You must keep in mind that these people have a mob/pack mentality and will act like animals of the same. You cannot educate them and they often have their own agendas. Some, because they think they are better than everyone else when they're just a bunch of dangerous fanatics. They will resort to stalking just like the others and other immature and sometimes frightening behavior.

They will twist your words and post partial quotes from you in manners that completely alter your context. They will post web pages dedicated to you with inappropriate photos, slurs, slander, libel and any other insulting insinuations they can invent. Some of the really sly ones will skirt just short of the laws that would have them prosecuted. Why? Because their true intent is to do harm. Anyone who gets in their way is a target for their rage. They're selfish and psychologically imbalanced. Be prepared.

Now, remember this: Words on a screen, photos posted on a website, insinuations and insults, cannot kill you. They are stressful and they are wrong, but you can brush them off. I have recently had to learn this the hard way myself. You can seek legal action, but under most circumstances, it will be very expensive. You have to balance what it is really worth to you and what that person can really do to you. Even if they take something deep in your past and splatter it like fecal matter all over the internet, calling you a criminal and trying to make it look like you're a total low life, it can only hurt you with people who aren't fair enough to look at the whole situation or the person you are today. There are points where you can report them to the authorities and there are laws regarding misuse of public information that you can report as well. Past that, you have to carry on and not let them stop you.

For example, many of you know that I have a group of stalkers following along and reading my blog. They will read this posting too. They take snippets of what I say and post them with insinuations, accusations and exaggerations for no other purpose than to try and hurt me. They want me to look bad. They want to do damage. But, thanks to the overwhelming number of supportive messages I have received, I have learned something. A few things actually:

1: They cannot hurt me. All they have shown the power to do is alter the light and image of things to try and make them look like something more than what they are, or blatantly what they are not. At this point, the more they do this, the worse they look themselves.

2: They cannot STOP me. Nope. I'll click publish post on this blog and it'll post just like the rest and I'll do the same for the next one and the next one. I have a long history of helping others and will continue to do so no matter what they do. And, as stated above, my work will stand on it's own.

3: They're helping me. Surprised? Consider this: my stalkers continuously post my name in taglines and the subject matter of their blogs. Any reasonable person who reads their work about me is likely to come and look because they simply want to see for themselves. I know this, because people actually found me by googling my name after reading that work. Those persons are some of who sent those supportive messages after reading what they found. So, in the end, I got free marketing out of it. Not that I'm seeking fame, my purpose is stated way above, but even negative publicity is still publicity. So, the more my name is posted, the more it can actually be found. The more my name is posted, the larger my internet presence becomes. And that's despite the negative intentions.

So, if you are considering becoming and advocate, take all these things into consideration. And please, become an advocate for the right reason. Helping others is what it's about.

Autism checklist for your child in school

So here we are at a new school year. This means new routines and people are coming into your child's life. Not only should you be preparing and discussing with your child, these new events and changes, but you should be doing things to make sure that his or her education team is all on the same page.

One way of doing this is to make a personalized check list for your child and all their quirks or behaviors. It's kind of like a list of forewarning and notice of various behaviors that anyone who works with your child are going to see.

The idea is to help others not be so surprised when your child with autism or any other disorder does something out of the ordinary.

Things to list:

-reactions to sensory, students, frustrations, and any sudden changes.

-behaviors of any kind that are habitual to your child and when they might come about.

-how long it might take to get into school routine

-how to handle outbursts and redirect your child in ways that you have seen work the best.

I'm sure with this list you can see the possibilities of what you can point out to help your child's educational team. And that's what they need to be along with you, a team. This is a short blog, but I think many of you will find it quite helpful.

A couple of tips in writing this list.

-write it like a "list" as I've done with the little dash marks here. It's easier to read than a giant block of paragraph text.

-check spelling and use your word processor. Avoid hand writing it if you can.

-be sure to request that a copy of the list is given to everyone who will be working with your child.