Why we need Autism Education more than ever

Do you call it "awareness"? Maybe you prefer "acceptance"? Whatever term you prefer to use, you're going to be close to the same mark. You can't have one without the other and you can't have any of it without education. This is more important now than it's ever been and that's not a issue that will decrease with time. I'm writing this to provide a list of reasons that prove what I'm saying. I'm even going out on a limb to say they're irrefutable. Let's see what  you think:

Because it's on the rise:  Right now the national averages put autism at 1-88 children. In some places it's more like 1-60, others it's 1-100, but 1-88 is the average ratio. That is an increase in cases from just 5 years ago when the average was 1-100 with the variation being more 80's to around 110. It's hard to say just how the new DSM is going to affect those numbers, but I don't see them dropping. Asperger's as a term may have been dropped, but it's being called simply "autism". That actually could raise the numbers even higher as the forms are lumped together and measured by severity instead of name. Further proof comes from a simple truth that supports the increase in numbers. It's a force of Nature because:

It's hereditary: Children with autism are growing into adults with autism. Just like I did, they are having children with autism. It's the cycle of life and nothing is likely to stop it anytime soon (save a planetary disaster). While all factors of this are in controversy, the hereditary nature is agreed upon. Check out this Wikipedia article. If you hate Wikipedia, maybe the Mayo Clinic is enough to convince you? As both point out, autism has a "strong hereditary factor". So, as long as people grow up and have kids who grow up and have kids, this won't be stopping anytime soon.

Because it's controversial: Autism brings controversy in ways never seen by a medical condition in history. It's the most controversial medical condition ever. You see it in commercials, talks online, in groups, and at gatherings. The autism community is split into factions as much as religion or politics with people who defend their beliefs with equal tenacity. Just look at all the fights over Autism Speaks. There are thousands of supporters to Autism Speaks and just as many who hate them. Someone who reads this will hate me just because I mention their name. Speaking of that, the division of the community is so bad that groups will resort to borderline racial slurs of each other. So autism, not only has it's own scale of belief systems but; for some, it's almost its own ethnic race. All of this goes to the level of picket lines and huge demonstrative gatherings for each side. If there's one thing that shouts for education to save the day, it's this! Further controversy goes into the fact that there are still hundreds of people out there who don't believe autism is even real. That includes some doctors.

Because kids go to school: IEP's are going to become even more common than before. Some public school systems complain that they are overrun with IEP issues. It gets worse because most states seem to think that this is the time to cut funding to schools across the nation. Thanks to population growth and the fact that autism is on the rise as documented, they couldn't make a worse decision if it involved drilling holes in their heads. Kids with autism have vastly differing needs. That means more IEP's. That means more costs. They need more funding, not less. So there's another entire group of people who apparently need educating (and they're supposed to be educating our kids).

Because autistic kids become autistic adults: In recent years a genius leap was made where people realized that kids actually grow up sometimes. That created a whole new scale of needs, support requirements and need of education on its own. Strides are being made forward, but more is still needed. As the autism community grows you can bet the need will.

Because of the Media: Let's face it, the media hasn't always been an ally to autism. Sometimes they fudge it up and wind up creating an image for autism that's completely off mark. Some small efforts have been made to change those mistakes, but they are small. I'm talking about the mention, clear at the end of a segment about Adam Lanza that pointed out; "people with autism are no more prone to violent crime than anyone else".  Yep, one whole sentence. I'm glad they said it. Still, keep the media properly educated takes a constant and diligent effort. Not only is there the news to deal with, but an explosion in "autistic" characters in television and movies. That means we have to work even harder to make sure people understand that we aren't all like Dr. House or Sherlock Holmes. We aren't all like Will Graham (of Hannibal) or the boy from Touch. While they're interesting characters, they don't hold a candle to what all of our community is like.

Because of insane costs: Families with autism still face way too many out of pocket expenses. Some of this comes from difficulty getting the professionals to see how much help is needed. Some of it comes from insurance companies not covering all facets of treatment. Insurance companies need education like anyone else, and it appears they still  haven't got it all. Google "autism costs" and get ready for a reality check. With numbers growing, you can bet costs won't be going down.

Because of social ignorance: Where couldn't I go with this? How about the shocking unemployment rate among autistic adults? The reports of difficulty getting halfway considered for jobs are out of this world. It's ridiculous. Good people are falling through the cracks of equal opportunity. Other disabilities still take a hit, but it's harder to prove with "invisible" conditions. Well, employers are in for a wake up call in coming generations, aren't they? Then we can look at bullying and abuse that still happen because it's chaos growing up with autism. It's all over the internet and national news somewhere every day.

Because of apathy in emergency services: Not just apathy, pure lack of education. While there are programs touring to help police, fire and ambulance work with people who have autism; they're going to have to up the ante. Where you once had one autistic child in a household, you now have a whole family on the spectrum. As long as there are people being beaten, pepper-sprayed, and tazed for little more than having a "quirk", education will be a top concern. Obviously, someone didn't know enough and a tragedy happened. People are dying from this.

Finally, autism isn't the only community growing by leaps and bounds with hereditary issues. Bipolar is keeping a steady pace. Mental illness is on the rise in our country and around the world at alarming rates every year. Along with that is an equal increase in discrimination and stigma. It's not a fun life for people with these conditions. For those who say "just lock up all the crazy people", they best be careful. One day that might just be everyone.

How does this comment on autism grab you?

First of all, credit to Cracked.com for all commentary I am about to quote from them. I'm a big fan of Cracked, so this is not a hate blog. Cracked has a solid reputation for putting real facts in their comedic writing. They have a knack for showing us how absurd the world really is when it comes right down to it. So, when I saw they had an article on some of the truths about guns, I had to read it. With issues of gun control in media hysterics, it's a perfect fit to the times.

5 Mind Blowing Facts Nobody Told You About Guns

That's so you can read the whole article at your leisure. And you should.

There's another fit to the times that I'm not sure they fully noted when they wrote the section I'm going to share with you today. I was reading through the section on mass shootings when one sentence brought the entire flow of the article to a screeching halt in my head. I literally had to stop reading right there and re-read the sentence again. Then I read it again. And I read it again. Then I re-read the whole paragraph. Then I finished reading the section and re-read the last two paragraphs. I actually had a hard time reading the rest of the article because I was so flummoxed in how this sentence read.

NOTE: I don't think this is what Cracked actually thinks of people with autism. My reading constipation comes from how the sentence makes its impact. The way it comes across leaves you wondering what they mean by the comment. It stands alone and its direction is unclear. If you, like many in the autism community, have been outraged by the idea that autism made Adam Lanza go on a killing spree; you'll understand why it could be such a raw nerve. That's why I think some expansion should go into the article on that.

So before I go any further, this is what I would like from you, dear reader. I would like to know how the content reads to you.  Here it is in it's full paragraph form:

"Let's play criminal profiler for a minute. Describe the next school shooter. We know he's out there; the stats prove that. We know he's a he. But we know more than that, right? If you pay attention to the news, this shouldn't be very difficult: These guys are all nerdy or autistic loners who get bullied at school and play violent video games at night until they can't tell the difference and finally lash out. The Columbine shooters are the poster boys: goth outsiders who even made a Doom mod to simulate the shooting. These kids get picked on and can't defend themselves, and they see guns as the only way to get even."

Now, the context is hard to grab until you get clear to the next paragraph where they share facts about the Columbine shooters you probably never knew. But nothing more is said to say that none of them were autistic. That comment floats unresolved forever. However, they do state there is "no typical school shooter profile", but you know how we like clarity and resolution. Check the next paragraph:

"Except it turns out that the Columbine shooters, Eric Harris and Dylan Klebold, weren't bullied and weren't "goth" loners. In fact, they boasted about bullying the "fags" in school themselves. They didn't target bullies or "jocks" who wronged them (the bombs were supposed to kill everyone, including their friends). It turns out that Eric Harris was simply a psychopath -- an intelligent, charming mass murderer like you've seen in a dozen bad serial killer movies. Dylan Klebold was just a depressed kid who went along with it -- so even the two people involved in the same shooting had totally different reasons for doing it."

So, while it specifies that these guys weren't bullied and thus resolves the idea of bullying as a cause, it doesn't do that for the mention of autism; one of the hottest nerves in the community today.

Let me repeat myself, that I don't feel it was their intention to slam autism in any way. I don't want people to plague the site with ugly comments (they get plenty of that and are quite used to it).  I want to know if I'm alone in how this hit me. How does it connect to you?  I do strongly recommend that you read the whole section to get a full feel for it before making any decision. In fact, I beg that you do so.

My autistic view of equality in marriage

Maybe that's all this is; my autistic view. Maybe it's just a rant. I've had my attempts at autism education viewed as rants before; not that it stopped me. Maybe there's a hundred ways to diminish what I'm about to say, to dismiss it, belittle it. Maybe this is a bad time for me to take a stand on what I see, but I've seen too much.

There's this red equal sign for marriage equality exploding across the internet right now. I've decided I finally have something to say about this. It's like this:

We need to stop putting our hatred into things like this and turn to actual and real problems.

I'm sure I just ticked off a lot of people by saying that, but you know what... it's true and I have the comparisons to prove it.

Are you worried about your children seeing gay couples who are married? How is that any different from just being a gay couple? It's really not. They were gay before they got married and will be afterward. If you are that worried about what your kids see out in the big bad world I have a novel idea for you: EDUCATE THEM. I know, Heaven forbid we actually talk to our kids.  Apparently it's a better idea to form picket lines at funerals of gay soldiers who died for your right to congregate on the matter in the first place.

Well, before you tell me the evils of being gay I want to know something. What do you think of prostitution, drugs, gangs, drunk driving, murder, national job loss, failing educational systems, and freaking starvation in our own streets?  Maybe I'm on another planet, but it seems to me (by raw statistics) that any of those does far more damage; destroys thousands more families, and (some) even kill thousands of kids every year. Just one of those examples causes way more destruction, financial damage, and heartache than all the gay couples of our nation put together.

Oh wait, maybe it's a religious issue. Well, besides the obvious issue of separation of church and state I'd like to ask you about The Ten Commandments. You know, the ten rules set by God that we are to follow at all costs? Again, I'll point you to my bolded question above to compare which issues are actually worse.

How about the Seven Deadly Sins? You know; LUST, GLUTTONY, GREED, SLOTH, ENVY, PRIDE, and WRATH?  Where in those is there anything remotely attributed to being gay? None. Zero. Zip. Oh sure you can tell me it's an unnatural thing and a "lust" of some form; but I'll trump that with prostitution that destroys families and involves gangs, drugs, guns and murder.

Better yet, if you want a real problem in the sanctity of marriage, why don't you try tackling the national DIVORCE RATE? You know, the one thing that breaks 50% of all marriages today. You know, where some of these same people stand in a church and swear an oath to each over before the Eyes of God?  You know, only to break those oaths within two years? If you really want to "preserve the sanctity of marriage" it seems to me that would be a better place to start.

So gay people want the right to get married. What does it say about us, that we will take up picket signs and congregate is mass groups in offense at this when there are 15 far deadlier snakes in our own back yards waiting to strike us? What do you think might happen if we put that much energy into just one of those other problems? I find it mind boggling.

Autism and Violence

In my last posting, I discussed the deadly crime of Adam Lanza. I discussed that having autism by itself does not indicate a tendency to become homicidal. Anyone who does become a murderer has a list of factors that led to their actions. That's not to condone those actions, rather to show that there is no single factor that makes one a homicidal maniac.

Today I want to talk about violence that does occur with autism and other inhibiting conditions similar to autism. Just like anything, there is a spectrum or scale of violent tendencies that can occur and they are not what you would normally expect.

Involuntary Stress Reactions: Consider a young man heavily affected by autism. He needs assistance in practically every facet of life. In each step of his day, a great deal of patience is required to work with him. If pressed too hard or if someone gets in a hurry, they risk a violent outburst. This could be flailing, kicking, biting, and even throwing things. It comes from severe difficulty relating to the world around them. This is a person who lives under constant stress in trying to function each day. He requires consistency in all things, from how he brushes his teeth to how he puts his shoes on. Everything has a delicate routine and he is so sensitive to it, that the slightest variation risks an overload to his stress limits and senses. With consistent therapy and support, some people's outbursts can be controlled. Some can even learn a limited sense of self control.

Why does this happen: Imagine all your senses and your limitations on stress at their near maximum just because you woke up today. You live on a proverbial balance beam where a hair out of place means a long fall. And that's what it feels like. I feels like your world just fell apart because someone move your alarm clock one inch out of place. That's giving you the most extreme possibility, but it does exist.

Involuntary stress reactions are not always violent either. What I am talking about is an automatic response to stressors, like tapping a nerve in your knee. It can be as simple as an odor that always makes you gag. You may not be able to control it without years of practice, if ever. When ever you come across that odor, you gag uncontrollably. Phobias are involuntary without treatment. It's an uncontrolled and severe fear. It's an uncontrolled response to that fear.

Young autistic children, even if high functioning, struggle in social development. This, as you might imagine, has to be very stressful. Our high functioning kids can learn not to be violent however and that is usually what is required. No, not all are violent. But it stands to reason that kids do go through phase where they will hit or kick other kids because they don't know how to react to the situation at hand. From what I have personally seen in autistic youth, it seems this phase can be drawn out.

Take a kindergartner who bites another student because he is angry. It could be for anything. They could have just bumped into each other. If this kindergartner has autism, that could be a sensory issue. He could have misunderstood and thought the other child did it on purpose. Maybe he reacts to being touched by surprise. Clearly, many factors could take place to the involuntary response. Regardless of them, it's a response from a sudden stress. In most cases, the behavior is correctable and treatable over time. This is involuntary because you combine a sudden stress with lack of developed impulse control.

This is the kind of violence that can be found in autism. It is not calculated or homicidal. It's not meant to be cruel either. It's nothing more than an automatic response to stress. So, when someone wants to talk about violence and autism in the media; it's time to get more of an education on just what kind of violence really happens in autism alone. Autism, by itself, is not a contributor to homicidal or psychopathic tendencies.

Connecticut school shooting and autism?

On Friday, December 14th, 2012, in Newton, Connecticut, Adam Lanza embarked on a mission of death and destruction. He took two 9mm handguns and shot his mother to death. That wasn't enough for him as he took those guns to Sandy Hook Elementary and opened fire in two classrooms. 20 children of ages 5-10 and 6 adults lost their lives.

The media calls this the second worst shooting of it's kind due to the death toll. I say it is the absolute worst of its kind due to its depth of depravity. Historically school shootings have taken the lives of adults. Horrifically, Adam Lanza chose to kill small children.

I am personally horrified at what has happened and my heart goes out to all the families who have suffered such a terrible loss. It's the worst loss any parent could suffer.

But what about the report that Adam had autism? If you read this Huffington Post article, you'll note that there are many discrepancies being mentioned. Just compare to this AP article (sorry I lost the link and now cannot find it, but you really should google search and compare for yourself).

-Huffington reports that he may have autism OR a personality disorder. This tells me that no one knows what he had or how. This is very important! When the media reports that some spree killer gunman was autistic, they create stigma among the uneducated that hurts the autism community.

-Reports on the guns being properly registered is also debated. Some sources say they weren't and at least one says they were. Not that it matters how they were registered at the bottom line. Adam clearly would have used them either way.

-Reports that his mother worked for the school are debated. Apparently there is report that no one at the school knew who she was.

Obviously, the media is not the best source to learn about autism. And I'll say this too: autism does not mean homicidal. Honestly, anyone can become homicidal and there are a wide variety of factors that add together to explain why. Until the media can get the story absolutely straight, we aren't going to know why he did what he did. There's only one thing that matters; what he did was heinous and an act of despicable terror. We need to remember this.

Again, my heart goes out to the families. My own youngest is 10 and I know all of you parents out there share the sentiment. Adam Lanza, for what ever he was dealing with, decided to become a killer. Now there are so many young minds scarred from his final acts in life. I hope they concentrate on the lives and minds of those poor kids. I also hope they eventually get the story straight.

You sent this 10 year old to meet Stan Lee!

Yes you did! I'm talking to all the wonderful people who donated to this cause and gave my son the morale boost and memory of a lifetime.  Today I show you how the convention went for my son. I really hope this makes it around to everyone who pitched in to this cause. I will share it several times to try and make sure.

The autograph signing and photo were done at two separate times. Both times required one of the hardest things a child with autism can do; wait in line. The autograph happened first and we got in line early. Lots of people were there to capitalize on getting Stan Lee's autograph and it amazed me. There was a man ahead of us with two huge stacks of comic books to be signed. What's even more amazing about that is that he had to pay 55 dollars for each one. I'm sure he must have paid over a thousand dollars for all those autographs. Seeing people do this explained clearly for me why it cost so much. All these people wanted was for their collections to be worth more money. Stan Lee deserved every dollar he got from them and more.

We had a copy of How to draw comics the Marvel Way, by Stan Lee and John Buscema. I let Denver hand him the book when our turn came. Denver tried to tell him about the class project he did where he pretended to be a statue of Stan Lee (class wax museum project) and he couldn't get his voice up over the crowd. I helped him and Stan Lee said; "Well I hope he got a good grade!" with a wide smile. I said he did and we were on  our way. It was a great experience but it would be topped.

When time came to stand in line for the photo ops, it was another long line and it took some time. There were lots of people who paid "VIP" so they could go first (just as many as who didn't) so that seemed a little ridiculous but it mattered little once we got there. One of the volunteers came through and told everyone that no one was to shake Stan Lee's hand. I could understand this because we are talking about an 89 year old man. A hundred people squeezing his hands would have to really hurt in short order.

Once our turn came, Stan Lee recognized Denver from before and we were to stand on either side of him. Denver wasn't sure where to stand exactly and that's when Stan Lee reached out and put his arm around Denver. "Come on over here, bud. Now look right over there at the camera." Denver heard  loud and clear, that no one was allowed to touch the man. Having Stan "the Man" Lee put an arm around him after that announcement made it just that much more special. You can see it on his face in the photo and he came away from it ecstatic. Stan Lee made this a very special occasion and he has my thanks. What an amazing achievement for this 10 year old! And that's not all he got to do. I submit this series of photos of Denver's convention adventure after the events with Stan Lee. Hey, we still had the weekend to work with!

Hanging out with Nightwing

It's Lego Deadpool!

Denver ran circles around us from this guy, but he was laughing so it was all good.

K-9 and the Tardis from DR WHO!

Also from DR WHO

Adventure time!

Awww, what a nice alien

More pictures will be posted today at my Facebook Page

Haters Gonna Hate, Time to Start Laughing

There are people out there who manage to consistently do one thing above all else when it comes to me. That's the fact that their antics completely blow my mind. They blow my mind because I can't believe they have time to come up with drivel and tripe about other people when they could be simply taking care of themselves. I guess I should be honored that I own so much of that person's brain and attention span, right?

Recently there have been some interesting accusations brought to my attention and I almost blew my iced tea right out my nose. Yeah, I laughed that hard.

Many of you out there are likely trying to build yourselves and make a good life for yourselves. You may be artists, writers, advocates, or any other thing really. What you need to know is that someone is always going to come along and try to take the wind out of your sails. Why do they feel the need? Who or what are you to them? Here's what you need to remember: these are unhappy people. They are jealous of every single thing that anyone else around them  does or succeeds at. They have nothing better to do than spread lies and drama and try to bring other people down. Instead of just living good and taking pride in their own achievements, they have to bring other people down.

Allow me to give you some recent examples but first: I am an advocate for autism education, a writer and illustrator. I have bridged these from time to time in order to show support for people with autism and to educate. Just because I have autism (and yes other medical conditions) doesn't mean I can't do anything.  The same goes for you. Anyway:

Accusation: Never diagnosed as autistic.   This is what made me spew tea today. I was diagnosed with Asperger's Syndrome (explained as a high functioning form of autism and still accepted that way by every doctor I talk to today) right after my son was diagnosed. This person is someone that I have never met in person; doesn't live anywhere that I have lived; doesn't know any of my doctors; and has no access what-so-ever to any of my medical history as in the actual medical files. Hello, HIIPA anyone?  They weren't there as I was diagnosed. They witnessed me in real life. Most importantly this person is not a doctor. I think some far out imaginations are at work here. Maybe they dreamed that they talked to all my doctors and got certified copies of everything I was ever diagnosed with. Ah, but then they wake up. How does this person even get close to such a ridiculous leap (other than being a bold faced liar)? Well, here's the main excuse:

- has other medical conditions: Apparently there's a special law in the fabrics of reality that says you can only have one psychological medical condition. Well someone get me a lawyer! I want to sue the universe for not following it's own law! Well, while this seems to be a brand new surprise to my haters, medical science seems to have known about it for decades now. You can absolutely have more than one condition. There are scales of details and factors that go with it, but hey, I'm not the doctor here. You can have bipolar disorder, Asperger's, a TBI and MS all at the same time. I know this, because I live with it. Ah, but this person thinks that if I were seen by a doctor today I would lose the autism diagnosis. What Hater doesn't realize is that I've been under a doctors care (getting MRI's and such) for quite some time. Not only have I not lost any diagnosis but my doctors have no question about them and they have all my records. So that's that. I have been diagnosed officially every step of the way, end of story.

Accusation: Trying to use autism to sell to people:  Say wha? You know, while there are people out there who demand that you pay attention to what they do because of a medical condition, not everyone is like that. The only reason that I point out my autism or my son's with my work (as posted on my blogs) is because what I'm doing now is my way of overcoming my conditions. The message is meant to be that I am not sitting in a corner going "boo hoo, I have medical conditions and I'm helpless in life" rather just the opposite. I don't want anyone to say "well, he has autism so we better buy his books and art". I would hate that. I would prefer people buy what I have for the sake of what it is. Hater seems to think that everyone is affected the same way by autism and that's not true. There are a lot of people who are having a hard time in life who aren't sure if they can make it. My message is for them. Past that, I support autism education and I'm proud of that. I want what I do to always support autism and mental illness and education for it. For every person that I help to find answers or ease their suffering because of what I do... that's a great success to me. I have outright donated my work for free for just that purpose. So I have stuff for sale, big deal. Some of it is for sale for my own use anyway.

Accusation: Trying to use autism to publish books:  Now if I laugh any harder I'm going to have a migraine. But hold on, let me share something about this hater with you. This one has published several books on and through Amazon. I don't want to knock that because who knows, I might try that one day too. But here's the cold hard fact about self publishing through Amazon. Anyone can do it. I mean anyone! No agent, no editor, no acceptance process except maybe for age range, you just put your book on Amazon and make some selections for covers and stuff. Then BANG! you're published. From what I know this is the only way this person has ever published anything (not that it's a bad thing). I would prefer not to go the self publishing route myself but that's just me.  Now, if you go and start researching agents and consider sending them a query about your work, you might notice they want to know if you've been published. I can't tell you how many times I've seen the words "not on Amazon or internet self publishing". That's because anyone and their dog can publish this way with complete abandon. That's also not to say that there are no good authors on Amazon, I actually know of a couple who are pretty good. All that being said, back to the point of the accusation, the idea that I could sway any self respecting agent with "I have autism" is ludicrous at best. For that matter, it's just flat stupid. And yes, this hater likes to bash away at my work as well.

Special note: I have not read any of this writer's work, nor will I. And why should I? Would you feel like buying anything from someone who targets you like this? I wouldn't.

So, there you have it. Now, while I wrote this all out, I want you to know that I've done this for the good of the reader. Your haters don't deserve your time. They'll call you a fraud, smear you, tell lies, and you'll think they must sit up all night long hunched over books trying to dig for dirt and mud. They'll say you have not talent and try with all their might to belittle and degrade you. Don't let them. I think they've read too many tabloids and believe every word. Don't let them stop you. Don't let them become your demon that gets in the way of your goals. Here's a very important note:

You do not owe these people anything. You do not have to prove yourself to some hater who really doesn't know you close enough to be accurate about you in the first place. It doesn't matter if you are a writer, artist, or just an at home parent. It doesn't matter if you have a medical condition or not. If you are an advocate and trying to help others, then help them. You'll be ahead of the game while haters waste obsession on you instead of their own lives. These haters are laughable and don't deserve anything from you.

And one final chuckle. I was called an "avid reader" of one hater's blog. Hilarious. Just because you look at a page (legal documentation reasons) doesn't make you an "avid" anything.