Feeling full of yourself? Have some delusions on how right you are? Here's an idea, offer up a 100 dollars for someone to prove you wrong. That's what Ailan Hong of Long Beach, California decided to do on the page of politician Dr. Pan regarding vaccines. Let's line this up.
First of all, what he was on about. In a method of attacking Dr. Pan he accused Pan of lying about reports of Dr. Robert Sears being disciplined by the California Medical board. That would be THIS case (click on link). He posts a letter from Dr. Sears claiming that there is no discipline against him like this:
Then he posts to me that if I can prove there is disciplinary action he'll give me 100 bucks like so:
Well, I certainly pulled that off via the link above and another .gov link leading to THIS. There is even a witness to my success who I block out for her own security.
I know, you'll point out I said I didn't need his money, but that doesn't mean he doesn't owe it. Currently he's dancing around the subject and cherry picking flimsy rebuttals as anti-vaxxers are known to do. I know I'm very unlikely to get paid here, but I'm not letting it go simply because Ailan deserves to be held to task. And I'm not the only person who thinks so via another witness as follows.
Point out what... you mean like this?:
So, Ailan Hong owes me 100 dollars because I proved exactly what he asked me to prove, that Dr. Sears was accused of the exact wrong doing claimed in the exact manner requested. An Anti-vaxxer owes me 100 dollars and he's not upstanding enough to his own word to pay it. Typical anti-vaxxer.
Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts
Tuesday, June 11, 2019
Anti-vaxxer owes me a hundred bucks (or why you should watch our mouth on the internet)
Labels:
anti-vaccine cultists,
anti-vaxxers,
autism,
crazy people,
Dr. Pan,
pay me,
politics,
vaccines
Friday, March 4, 2016
I'm begging you not to vote for Trump
I implore you, beg you, to consider what I have to say. If Trump becomes President, our country is screwed in so many ways, it may not come back for several generations. If you can look at what I'm pointing out here and just don't care, then I don't know what to say. But, at this point, know that ANY Republican is better than Trump and I'm not even voting Republican.
First, I want you to know that this information is genuine and you can fact check it for yourself HERE. That's a link to Ontheissues.org and you can see ALL the politicians stances on all 24 of the listed issues. I'm going to hit the major highlights of Trumps points.
He wants to defund Planned Parenthood. While I realize that this is a major split issue. Destroying PP will do more harm than good. PP has been a crucial ally in sex education that too many parents refuse to do themselves. That sex education includes an important factor, namely protection from STD's and learning to use contraceptives. And contraceptives are NOT just about avoiding pregnancy. Some women need to them for other additional health problems attached to the reproductive system. Arbitrarily throwing away Planned Parenthood is a bad move and not the answer. But if this isn't enough for you, maybe...
He wants to cut (as in close) the Department of Education and cut funding to education across the country, quote "way down". I don't care how you try to spin it; you can't make our country "great again" by destroying education programs. Aren't our schools in enough trouble? Aren't they overcrowded enough? I don't know about you, but I don't want my granddaughter to have to struggle through Trump's idea of school. Cutting education is radical, irrational and irresponsible. Currently, the Unites States is 14th in Education and 2nd in Ignorance. With Trump's help, I'm sure we can be the most ignorant country in World History. Doesn't that sound great? Is that what making our country "great again" means to you? It clearly does to him.
He wants to close the Environmental Protection Agency. Well of course he does! He's a corporate businessman. They hate the EPA. Remember the big oil spill in the gulf that's still ruining people's lives? If it weren't for the EPA, there would be no clean up effort. So shutting them down sounds like a good plan right?
He wants to take on China, Mexico and North Korea all at the same time. It's all in the link above. Go look. Basically, he's just going to walk up to these three and tell them how the sun goes down. He'll "force" China to come to terms on job market and trade, "make" Mexico pay for a wall around their border, and "go after" North Korea on their nukes. There's a term for this; WORLD WAR THREE. He's already given the bird to the UN over the refugees he plans to kick out as his first order of business. So here's what will happen. NK will immediately attack SK and blame us for it. We'll be in a trade war with Mexico and China will back them BOTH. I wonder how much THAT will cost? He's already got all three riled up with his insults he hurls at them in every single rally he holds. Half the world is now on edge over Trump and he's not even in full running yet.
Don't believe that? Who else is he fighting with before he even gets to the final race? Well, all Muslims so far. He wants a database on all of them. Wants to kick out ever single illegal immigrant there is. Neither will be cheap and at least one is unconstitutional. He wants to establish illegal torture methods (waterboarding), and you don't see that as a red flag? For the first time in US history, the very declaration of making someone President of the United States may be a DECLARATION OF WAR. Please ask yourself if that's what you really want. But there's more...
He supports the idea that vaccines cause autism. For any of you who know me, you know how I feel about this. VACCINES DO NOT CAUSE AUTISM. There are now over a hundred studies that show zero correlation between vaccines and autism. Vaccine injury is NOT autism. The anti-vaccine movement has already caused enough damage without the help of a President behind them. Vaccines save lives from preventable potentially crippling and deadly diseases. Please think about it.
It's punchline time. For those of you who use your Bibles to influence your voting decisions, I'd like to give you a reminder. In your Bible you will find mention of one who comes with great promises of plenty, yet yields only war, poverty, and disease. Now reread his own claims and tell me who that sounds like to you.
First, I want you to know that this information is genuine and you can fact check it for yourself HERE. That's a link to Ontheissues.org and you can see ALL the politicians stances on all 24 of the listed issues. I'm going to hit the major highlights of Trumps points.
He wants to defund Planned Parenthood. While I realize that this is a major split issue. Destroying PP will do more harm than good. PP has been a crucial ally in sex education that too many parents refuse to do themselves. That sex education includes an important factor, namely protection from STD's and learning to use contraceptives. And contraceptives are NOT just about avoiding pregnancy. Some women need to them for other additional health problems attached to the reproductive system. Arbitrarily throwing away Planned Parenthood is a bad move and not the answer. But if this isn't enough for you, maybe...
He wants to cut (as in close) the Department of Education and cut funding to education across the country, quote "way down". I don't care how you try to spin it; you can't make our country "great again" by destroying education programs. Aren't our schools in enough trouble? Aren't they overcrowded enough? I don't know about you, but I don't want my granddaughter to have to struggle through Trump's idea of school. Cutting education is radical, irrational and irresponsible. Currently, the Unites States is 14th in Education and 2nd in Ignorance. With Trump's help, I'm sure we can be the most ignorant country in World History. Doesn't that sound great? Is that what making our country "great again" means to you? It clearly does to him.
He wants to close the Environmental Protection Agency. Well of course he does! He's a corporate businessman. They hate the EPA. Remember the big oil spill in the gulf that's still ruining people's lives? If it weren't for the EPA, there would be no clean up effort. So shutting them down sounds like a good plan right?
He wants to take on China, Mexico and North Korea all at the same time. It's all in the link above. Go look. Basically, he's just going to walk up to these three and tell them how the sun goes down. He'll "force" China to come to terms on job market and trade, "make" Mexico pay for a wall around their border, and "go after" North Korea on their nukes. There's a term for this; WORLD WAR THREE. He's already given the bird to the UN over the refugees he plans to kick out as his first order of business. So here's what will happen. NK will immediately attack SK and blame us for it. We'll be in a trade war with Mexico and China will back them BOTH. I wonder how much THAT will cost? He's already got all three riled up with his insults he hurls at them in every single rally he holds. Half the world is now on edge over Trump and he's not even in full running yet.
Don't believe that? Who else is he fighting with before he even gets to the final race? Well, all Muslims so far. He wants a database on all of them. Wants to kick out ever single illegal immigrant there is. Neither will be cheap and at least one is unconstitutional. He wants to establish illegal torture methods (waterboarding), and you don't see that as a red flag? For the first time in US history, the very declaration of making someone President of the United States may be a DECLARATION OF WAR. Please ask yourself if that's what you really want. But there's more...
He supports the idea that vaccines cause autism. For any of you who know me, you know how I feel about this. VACCINES DO NOT CAUSE AUTISM. There are now over a hundred studies that show zero correlation between vaccines and autism. Vaccine injury is NOT autism. The anti-vaccine movement has already caused enough damage without the help of a President behind them. Vaccines save lives from preventable potentially crippling and deadly diseases. Please think about it.
It's punchline time. For those of you who use your Bibles to influence your voting decisions, I'd like to give you a reminder. In your Bible you will find mention of one who comes with great promises of plenty, yet yields only war, poverty, and disease. Now reread his own claims and tell me who that sounds like to you.
Labels:
antichrist,
autism,
disease,
education,
election time,
elections,
presidency,
Trump,
vaccines,
voting,
war
Wednesday, January 27, 2016
Autism, Life Lessons, and Societal Interpretation
Now there's a heckuva title, right? Well, as it turns out, this lesson just hit home for us. My dear 13 year old son is dealing with a life lesson on being caught stealing (or at least looking like he was stealing).
First let me explain something. My son has two therapists who work with him and other kids at his school. It's very helpful and he is getting more and more independent every month. One of the incentives the kids get for doing well and being respectful is a small piece of candy. Hershey's kisses or other single wrapped items are usually what is given. Please spare me any nastiness over giving food as rewards as it is only one of many incentives and the system has been very successful for him.
Now for what happened:
Over the last week, candy has been disappearing from the reward box it is kept in. On Monday, my son was caught in the room with the box in his hands. He hadn't taken anything yet, but that really doesn't matter in a situation like this. He's not being held accountable for past missing candies because no one saw him take those. But he has lost the ability to gain that incentive for the next two weeks. The primary points he needed to understand were that he was in a room he didn't belong in and had the box in his hands.
His explanation, no surprise, would make a defense attorney blush. My son is mastering semantics when it comes to trying to squeak out of trouble or get out of doing something. So I realized that this was a prime opportunity to teach him about how his actions can be interpreted and how that can shape everything.
It wasn't his "intent" to steal anything. He thought he had earned the rewards and went and got the box down to "wait for" the person he would get the reward from. Never mind that he's not supposed to do that. He's supposed to go to his next class and if there's a reward for him, it will be dealt with. It always is. So I explained it to him like this:
If it looks like you are stealing something, then it will be assumed that you are stealing something.
Intent doesn't matter when it comes to what people see. Especially when you are somewhere you don't belong. But even if you do belong, how the viewing public interprets your actions can make or break your day. How many of our kids have crossed paths with the law merely because no one understood what was happening with their subject behavior? Arguably, the number is pretty high. There are media stories of autistic kids getting handcuffed or tazed because of their reactions or badly interpreted behavior.
I picked up a poker chip from my desk area (no I don't gamble) and showed it to my son.
"Imagine that this is a piece of candy." I said and then I put it in my pocket. "What does it look like I just did, if I do this before going to to the register?"
"Stealing." He didn't miss a beat. He understood right away and I saw the light come on. I explained how that understanding is very much the same as finding him in a room he wasn't supposed to be in, holding the box of candy in his hands.
Now, he doesn't like the consequences and some people may not think they are fair. I say they are much more appealing than learning this lesson with a trip to jail or marks on a permanent record. It's better to learn how the public reacts to various behaviors now than when they are in the middle of a crowd somewhere.
Before I go, I'll leave you with one tool that can help your child understand how important public behavior can be for certain things. That tool is Youtube. I show my son videos, ask him what he thinks of what people are doing, and we discuss it. Don't be afraid to discuss it with your kids. You may save them more than just embarrassment.
First let me explain something. My son has two therapists who work with him and other kids at his school. It's very helpful and he is getting more and more independent every month. One of the incentives the kids get for doing well and being respectful is a small piece of candy. Hershey's kisses or other single wrapped items are usually what is given. Please spare me any nastiness over giving food as rewards as it is only one of many incentives and the system has been very successful for him.
Now for what happened:
Over the last week, candy has been disappearing from the reward box it is kept in. On Monday, my son was caught in the room with the box in his hands. He hadn't taken anything yet, but that really doesn't matter in a situation like this. He's not being held accountable for past missing candies because no one saw him take those. But he has lost the ability to gain that incentive for the next two weeks. The primary points he needed to understand were that he was in a room he didn't belong in and had the box in his hands.
His explanation, no surprise, would make a defense attorney blush. My son is mastering semantics when it comes to trying to squeak out of trouble or get out of doing something. So I realized that this was a prime opportunity to teach him about how his actions can be interpreted and how that can shape everything.
It wasn't his "intent" to steal anything. He thought he had earned the rewards and went and got the box down to "wait for" the person he would get the reward from. Never mind that he's not supposed to do that. He's supposed to go to his next class and if there's a reward for him, it will be dealt with. It always is. So I explained it to him like this:
If it looks like you are stealing something, then it will be assumed that you are stealing something.
Intent doesn't matter when it comes to what people see. Especially when you are somewhere you don't belong. But even if you do belong, how the viewing public interprets your actions can make or break your day. How many of our kids have crossed paths with the law merely because no one understood what was happening with their subject behavior? Arguably, the number is pretty high. There are media stories of autistic kids getting handcuffed or tazed because of their reactions or badly interpreted behavior.
I picked up a poker chip from my desk area (no I don't gamble) and showed it to my son.
"Imagine that this is a piece of candy." I said and then I put it in my pocket. "What does it look like I just did, if I do this before going to to the register?"
"Stealing." He didn't miss a beat. He understood right away and I saw the light come on. I explained how that understanding is very much the same as finding him in a room he wasn't supposed to be in, holding the box of candy in his hands.
Now, he doesn't like the consequences and some people may not think they are fair. I say they are much more appealing than learning this lesson with a trip to jail or marks on a permanent record. It's better to learn how the public reacts to various behaviors now than when they are in the middle of a crowd somewhere.
Before I go, I'll leave you with one tool that can help your child understand how important public behavior can be for certain things. That tool is Youtube. I show my son videos, ask him what he thinks of what people are doing, and we discuss it. Don't be afraid to discuss it with your kids. You may save them more than just embarrassment.
Saturday, October 24, 2015
There's a Muppet with Autism and the Sky is Falling!
It's not hard to make an anti-vaccination supporter have a complete mental blowout. Their collective sanity sits on a feather ledge to begin with and they have no qualm with demonstrating it. So, when Autism Daddy and Sesame Street worked together and brought us the first muppet with autism... well...
BOOM.
Louder than the hurricane that recently tore into Mexico is the sound of anti-vaxxer heads exploding. Of course, they believe the only cause for autism has been vaccines (never mind that such has been thoroughly debunked over and over again). They believe if you have autism and you aren't an anti-vaxxer that you're some kind of traitor to their cause. So it's not surprising that they think Sesame Street is in cahoots with "big pharma" to push vaccines.
Of course, that's absolutely untrue. But you'll never get through the concrete fog around an anti-vaxxer's brain to show them that.
Just when I think I've seen all the sickening stunts they can pull, they do this.
I personally love the fact that there is a muppet with autism. No, she doesn't represent every single form of autism in every single person (one of their unrealistic arguments because she can talk) but she does represent autism.
One of the most wonderful things about Sesame Street is their belief in INCLUSION. They believe that we are all wonderful people and everyone should be taken for who they are and accepted as such. That is the Sesame Street way. To see it as anything else takes either ignorance or a twisted mentality.
Oh, but they say there's evidence! Apparently Elmo promotes vaccine safety.
Well, that's all it takes to make AVrs hate you. Well, never mind that the two events are not connected in anyway, nor is there any proof that they are; but I just don't care. I promote vaccine safety, I accept actual science, and I know that VACCINES DON'T CAUSE AUTISM. Never have and never will.
BOOM.
Louder than the hurricane that recently tore into Mexico is the sound of anti-vaxxer heads exploding. Of course, they believe the only cause for autism has been vaccines (never mind that such has been thoroughly debunked over and over again). They believe if you have autism and you aren't an anti-vaxxer that you're some kind of traitor to their cause. So it's not surprising that they think Sesame Street is in cahoots with "big pharma" to push vaccines.
Of course, that's absolutely untrue. But you'll never get through the concrete fog around an anti-vaxxer's brain to show them that.
Just when I think I've seen all the sickening stunts they can pull, they do this.
I personally love the fact that there is a muppet with autism. No, she doesn't represent every single form of autism in every single person (one of their unrealistic arguments because she can talk) but she does represent autism.
![]() |
| Julia of Sesame Street |
One of the most wonderful things about Sesame Street is their belief in INCLUSION. They believe that we are all wonderful people and everyone should be taken for who they are and accepted as such. That is the Sesame Street way. To see it as anything else takes either ignorance or a twisted mentality.
Oh, but they say there's evidence! Apparently Elmo promotes vaccine safety.
Well, that's all it takes to make AVrs hate you. Well, never mind that the two events are not connected in anyway, nor is there any proof that they are; but I just don't care. I promote vaccine safety, I accept actual science, and I know that VACCINES DON'T CAUSE AUTISM. Never have and never will.
Labels:
anti-vaccine movement,
anti-vax,
autism,
Julia,
muppets,
Sesame Street,
vaccinations
Wednesday, September 23, 2015
And yet we are blessed
This is a really tough blog to write. I'm going to explain something I haven't yet because of several reasons. As I explain this, though, I want you to understand how blessed we are because of the assistance we have had and the people who are working with my son now. Yes, we are blessed in spite of the situation.
I used to be able to order and give out free stuff in my Galaxy Zento biz. I can't now. I've told people that we are bent over a barrel and there have been some medical issues with myself and my dear wife, but I haven't explained this part of the story. Why? Because I'm not looking to bitch or sob. But I have contained this long enough that I really can't just stay shut down over it any more. I need to talk. There are names I still cannot say, so forgive that and just bear with me.
As many of you know I have a super 13 year old son with autism. He's a great kid and we are so proud of him every day. He's gone through so much. Right now he's in a "private school" that specializes in his educational needs. The reason our family has no money for any extras (and barely enough for some essentials) is that we are paying 298 dollars a month to put him through school.
It could be worse, but a wonderful, wonderful company fronted half the years tuition. So why don't we have him in public school? This is the hard part. The part where I can't name names. But it's like this; about two years ago, my son had to spend a few months in a hospital for the heavy stress related injuries caused by the school system. Without going into a ton of details, it's as simple as that.
I've been asked why I can't afford to buy copies of my own game or pay for pro artists etc, well that's why. And frankly, my son is just a little more important than how they think I should try to start my business. But that's just a side frustration. I digress.
Sue them? No. Believe it or not, that would actually hurt quite a few people. I spoke to a very good attorney who won a case for another family against the same system over 5 years ago. That system owes said family over a hundred grand and has yet to pay a single penny. Not only that, but the system will retaliate and drag my son's current school under a microscope to "see if he's getting proper education there". That would hurt every student there that this wonderful school has helped. So, the way we are doing this is the best way we possibly can.
We live by circulating credit cards, not having cable, and keeping it at the bare essentials. And it's totally worth it. My son has been helped so very much, that I love that place. I would rather be house poor than see them hurt him. Because they told me, to my face, that middle school here would not follow his IEP and they had no fear in telling me that because there is just no damned enforcement here. And my family is not the only special needs family they have done this with. They scare families away so they don't have to deal with them.
So, for you IEP warriors out there. PLEASE don't ask who they are. I won't tell you. If you find out, please don't contact them, you will hurt us and countless other families. I just needed to talk it out. I know many of you will understand.
What saddens me is how much some people don't understand (like the elitists of Kickstarter and board games who ran me off). Finding out only that I'm disabled was enough for them to say I was full of excuses and to go away. God only knows what they'd say about my son. Again, side frustration. Sorry.
But we never give up. I fight to show my son that it's always worth it to keep going. I'm so proud of his accomplishments and overcoming. And before anyone asks. We never told him to blame his school system even though he's fearful of certain people if he sees them in public. He sees his time at the hospital as something he needed to help aim in the right direction and learn important life skills. He does not consider himself a victim, rather a growing boy with his own difficulties. Now we just have to figure out what we are doing about High School once we have him caught up, because if we can't move, he will be back in that system again. Not sure what we'll do about that.
I used to be able to order and give out free stuff in my Galaxy Zento biz. I can't now. I've told people that we are bent over a barrel and there have been some medical issues with myself and my dear wife, but I haven't explained this part of the story. Why? Because I'm not looking to bitch or sob. But I have contained this long enough that I really can't just stay shut down over it any more. I need to talk. There are names I still cannot say, so forgive that and just bear with me.
As many of you know I have a super 13 year old son with autism. He's a great kid and we are so proud of him every day. He's gone through so much. Right now he's in a "private school" that specializes in his educational needs. The reason our family has no money for any extras (and barely enough for some essentials) is that we are paying 298 dollars a month to put him through school.
It could be worse, but a wonderful, wonderful company fronted half the years tuition. So why don't we have him in public school? This is the hard part. The part where I can't name names. But it's like this; about two years ago, my son had to spend a few months in a hospital for the heavy stress related injuries caused by the school system. Without going into a ton of details, it's as simple as that.
I've been asked why I can't afford to buy copies of my own game or pay for pro artists etc, well that's why. And frankly, my son is just a little more important than how they think I should try to start my business. But that's just a side frustration. I digress.
Sue them? No. Believe it or not, that would actually hurt quite a few people. I spoke to a very good attorney who won a case for another family against the same system over 5 years ago. That system owes said family over a hundred grand and has yet to pay a single penny. Not only that, but the system will retaliate and drag my son's current school under a microscope to "see if he's getting proper education there". That would hurt every student there that this wonderful school has helped. So, the way we are doing this is the best way we possibly can.
We live by circulating credit cards, not having cable, and keeping it at the bare essentials. And it's totally worth it. My son has been helped so very much, that I love that place. I would rather be house poor than see them hurt him. Because they told me, to my face, that middle school here would not follow his IEP and they had no fear in telling me that because there is just no damned enforcement here. And my family is not the only special needs family they have done this with. They scare families away so they don't have to deal with them.
So, for you IEP warriors out there. PLEASE don't ask who they are. I won't tell you. If you find out, please don't contact them, you will hurt us and countless other families. I just needed to talk it out. I know many of you will understand.
What saddens me is how much some people don't understand (like the elitists of Kickstarter and board games who ran me off). Finding out only that I'm disabled was enough for them to say I was full of excuses and to go away. God only knows what they'd say about my son. Again, side frustration. Sorry.
But we never give up. I fight to show my son that it's always worth it to keep going. I'm so proud of his accomplishments and overcoming. And before anyone asks. We never told him to blame his school system even though he's fearful of certain people if he sees them in public. He sees his time at the hospital as something he needed to help aim in the right direction and learn important life skills. He does not consider himself a victim, rather a growing boy with his own difficulties. Now we just have to figure out what we are doing about High School once we have him caught up, because if we can't move, he will be back in that system again. Not sure what we'll do about that.
Wednesday, August 19, 2015
Autism and Back to School
Across the nation we are officially back to school. Maybe a few aren't, but most are. Going back to school means change in schedule and likely a few meltdowns and tantrums. I'm writing this today to touch base on a few reminders that may help you through the transition.
Remember what you learned last year and the year before that. If you've done this more than 3 or 4 times, you should be prepared for resistance. That won't make it any more fun to deal with, but better prepared thinking than not. Consider techniques you used last year and use them again this year.
Don't engage the tantrum: This is especially true with autistics. We can be a very argumentative bunch. Kids already have this angry debating skill. Do your best to stay cool and not react to the tantrum. State your expectations and then drop it. Apply consequences after you get what you want out of the situation and when everyone has calmed down.
Don't apply consequences before going to school if it only further triggers your child into a fit. I have direct experience with this. The idea is getting your child to school, hopefully in a mood that won't destroy their school day. Leave discussing their behavior and any consequences for when they get home. "Remember how you used all those swear words this morning? No video games tonight." This way, you got them to school and gave consequences at a time where you have more time and control.
Remember to reward the behaviors you want. If your kid is handling transition better than last year, tell him! Be happy with what he does right and praise it. Give rewards. A good reward system is always important, even if it isn't worth a hundred bucks. You don't have to spend lavish funds to give rewards. The simple things can be very effective.
Give down time after school. Don't expect your child to go straight to homework the second they walk through the door. He or she has spent the last 8 hours struggling to behave and jump through school hoops. A break after school is welcome and kind. Set up a routine. Offer half an hour of break time to do what ever they want (save anything they can't do because of behavior) with the knowledge that it's homework time after that. My son actually prefers to get right to it, but he always has the option of that after school break.
Hopefully, these tips help you handle the new transition that we all have to wade through. Age doesn't seem to help, so we must be vigilant parents. Have tips you'd like to share? Post them in comments!
Do you or your kids love heroes? Add the Galaxy Zento page! Books and games for ages 8 and up are available. The work of GZ is dedicated to showing our autistic youth that you CAN DO even with a few struggles. Life get's better so never give up. The GZ page is loaded with cool artwork and updates!
Remember what you learned last year and the year before that. If you've done this more than 3 or 4 times, you should be prepared for resistance. That won't make it any more fun to deal with, but better prepared thinking than not. Consider techniques you used last year and use them again this year.
Don't engage the tantrum: This is especially true with autistics. We can be a very argumentative bunch. Kids already have this angry debating skill. Do your best to stay cool and not react to the tantrum. State your expectations and then drop it. Apply consequences after you get what you want out of the situation and when everyone has calmed down.
Don't apply consequences before going to school if it only further triggers your child into a fit. I have direct experience with this. The idea is getting your child to school, hopefully in a mood that won't destroy their school day. Leave discussing their behavior and any consequences for when they get home. "Remember how you used all those swear words this morning? No video games tonight." This way, you got them to school and gave consequences at a time where you have more time and control.
Remember to reward the behaviors you want. If your kid is handling transition better than last year, tell him! Be happy with what he does right and praise it. Give rewards. A good reward system is always important, even if it isn't worth a hundred bucks. You don't have to spend lavish funds to give rewards. The simple things can be very effective.
Give down time after school. Don't expect your child to go straight to homework the second they walk through the door. He or she has spent the last 8 hours struggling to behave and jump through school hoops. A break after school is welcome and kind. Set up a routine. Offer half an hour of break time to do what ever they want (save anything they can't do because of behavior) with the knowledge that it's homework time after that. My son actually prefers to get right to it, but he always has the option of that after school break.
Hopefully, these tips help you handle the new transition that we all have to wade through. Age doesn't seem to help, so we must be vigilant parents. Have tips you'd like to share? Post them in comments!
Do you or your kids love heroes? Add the Galaxy Zento page! Books and games for ages 8 and up are available. The work of GZ is dedicated to showing our autistic youth that you CAN DO even with a few struggles. Life get's better so never give up. The GZ page is loaded with cool artwork and updates!
Labels:
advice,
autism,
autism parenting,
back to school,
behavior advice,
parenting,
school
Saturday, June 6, 2015
Knowing yourself: warning of sensory overload
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| Stock photos |
I mentioned in my last post that there is a prickly sensation in the back of my neck that is one warning. Another, if I'm paying attention to myself, is that I become less of a generally pleasant person to be around. I may experience feelings of anger that have no apparent trigger. I don't like feeling this way, so I've learned to recognize it most times. If I'm sick, I may need help seeing it. But then, who is pleasant when they're sick?
Trigger factors:
Stress: If a lot of things are a stressing me out, I have to be more mindful.
Heat: Thanks to my MS, heat is a threat. I can't be out in direct high heat for a very long time. It wears me down fast and leads to other triggers.
Exhaustion: The more tired I am the more at risk I am. It's important to pace myself. But I am a stubborn man at times. It's not easy losing your independence to MS or any other condition.
Signs:
Snappy disposition: If I'm getting cranky it's a sign.
Dizziness: Vertigo is not my friend. It's a sign that I'm overloaded.
Tilting vision: My view actually tilts on a weird slant to the right and happens with bursts of dizziness.
Extra tremors: The more I'm having, the more careful I need to be, but I have tremors for multiple reasons, so I have to watch for tremors that come with the rest of the issues here.
Rapid breathing: Also comes with an accelerated pulse rate that I can actually feel in my neck.
Loss of coordination: Unable to grasp things properly, dropping things, and extra stumbling beyond what I normally have with MS.
How it feels. I get hot. Really hot. Hot to the touch even. I lose cognitive function and get confused. Nothing I see, feel or hear seems right or makes sense. Fight or flight is being triggered with no physical threat apparent. My only hope is to get somewhere dark and cool.
I use a fan for two purposes. One is temperature and the other is to dull my other senses, like my crazy hearing. White noise from a fan is very helpful. I use the same to sleep at night.
People who suffer from sensory overload have a tough job/responsibility in controlling it before it controls them. In its full grip, it's a blind rage like no other where nothing makes any cognitive sense any more. Everything is closing in on you. Everything; every color, every sound, every sensation on your skin, every light, EVERYTHING.
It takes years to decades to come close to controlling it completely. Some are luckier with it than others, of course. Many never completely control it.
What seems to be a problem out in the public still today, is that this is a real medical condition. It really affects people. Once in a while, I get the chance to educate someone. We can only hope to keep educating and getting the news out that these situations are real.
If you are suffering from sensory disorders, it falls to you to have a home protocol where you can escape and destress.
If your child has a sensory disorder, it falls to you to teach your child how to develop the same home protocols. Fortunately, there are tons of tip sites and assistance growing on the internet every day. I posted links to a couple of sites on my last entry.
Remember, you are not alone. It's real. And there are more of us out there, than most people realize.
Labels:
add,
autism,
fight or flight,
ms,
self preservation,
sensory disorder,
sensory overload,
spectrum disorders
Wednesday, June 3, 2015
Freakout Kid is actually a sober reminder
With over 83 million views since 2009, who hasn't seen the Freakout Kid? If you haven't , take a moment to watch the video:
What you are seeing was staged. It was meant as humor. I have a dark side to me and I admit I laughed. My wife didn't find it so funny. To her, it was a sober reminder of what she's seen at the worst points of an autistic meltdown. Whether from sensory overload or acute stress, an autistic meltdown is nothing to laugh at. As an important note, it's often worse that what you see in the video.
Here are a couple of things to remember about autistic meltdowns. Unlike throwing a fit or a simple temper tantrum, they are involuntary at many of their worst points. Studies have linked autistic meltdowns/sensory overloads to seizure-like conditions. They are a medical issue every bit as much as they are a behavioral issue (depending on individual).
These fits run high risk of self and bystander injury. The flailing and agony is real. The triggers can seem microscopic to the onlooker.
Learning to live with this part of the disorder is important from early life. Stressors have to be managed differently and more acutely than with a average person. It can take years longer to learn how to live with it and recognize your own alarm signals and that's if you're high functioning like me. There are just as many who will never learn to control the overloads in their entire lifetime.
Here are a couple more links for extra information:
It's important to also understand that Sensory Processing Disorder does not only occur with Autism. I happens with several medical conditions and takes on several forms. ADD and Epilepsy have their own versions of the issue.
The pain is real. The condition is real. It's not just a matter of some kid being a brat. Can it be triggered by not getting his toy at the store? Yes it can, which is why therapy and firm parenting are still very important. Get what I'm saying here? I'm not saying let the kid have their way or don't use any discipline. I'm saying you have to use different approaches than with a typical child. You can't just beat them into submission. Hitting is nothing more than a sensory trigger, right along with having to hold or restrain them in the first place.
Do I still have sensory overloads at 44 years (almost 45) of age? Yes. I am still at risk. I have had them. My wife has had to take me to my fan where I can destress and escape the sensory input that I'm being flooded with. Hard to imagine for an adult, isn't it?
It's why I have a permanent brain injury. I've struggled with the attacks since I was 6 years old. Before I got medication to assist, I had attacks every couple of weeks, though sometimes I could stretch to a couple of months. So I'm not just talking out my rear end here. I've lived it and now I work to help my son learn to get far past it and control it for himself. I know there are many of you out there who know exactly what I'm talking about. This blog is for you.
I know what you are asking now. How do I know I'm going to have an attack? I'm pretty well practiced now at feeling what it's like before it gets here. I very rarely have to have assistance. I don't burst out in public. It starts at the nape of my neck, moves into my spine and it's a sensation across my body that I have a hard time describing. Have I been stupid and ignored the signs before. Yes, a couple of times. My wife has set me straight on that though, let me tell you (my wife is a warrior). I also have to use extra care in how my MS wears me down because fatigue is a contributing factor. But I'm getting long in this post, so I will go more into how it feels and how I know it's coming in my next entry. Thanks for reading.
Labels:
add,
autism,
epilepsy,
freakout kid,
sensory disorder,
sensory overload,
spd
Saturday, May 16, 2015
How did I get here?
At times I find myself reflecting on what I survived and how I got here. Memories don't like to stay away, but then sometimes it's important to remember. It's important to remember that I survived this long for a reason. Bigger and badder events have tried to take me down. They failed. Why should current events be any different?
Not that anything really bad is happening right now. I've had a few difficulties in recent days and struggling with MS has been nothing less than frustrating.
Yesterday I wanted to bag up some of the leaves that have been in my yard for months. I managed to pull off a bag and a half before nearly reaching collapse stage. I was furious; mostly at myself. How weak it seems that I can't bag some stupid leaves. Yes, they were wet and rotting, therefore heavier. Yes, it was 84 degrees outside and MS hates heat. But still, I wanted the work done. I still want the work done. Oh, I did also use the push mower to do the front yard (by push I mean no engine) which is a staircase of tree roots. I probably should have stopped there.
I remembered that I used to be a soldier. I used to do 50 pushups at a time. I can do 20 now, but it wipes me out for hours. I went to basic training in South Carolina where we marched in 90+ degree heat. Now I can hardly tolerate just standing in 90 degree heat.
But I'm still breathing and functioning. I'm still doing a lot of things that defy the odds. I've lived my life doing this. I've been put down and kicked while down and still got back up. So maybe I need a check list that reminds me?
Abusive alcoholic/drug addict stepmother: Survived.
Severe and violent bullying through school years: Survived
Run away from home and become a street urchin child: Survived
30 years of chaos and loss because I didn't know I had Asperger's: Survived
All that and managed to stay away from drugs, alcohol and crime. So I have a lot to be thankful and for and a lot that didn't take me down in the first place.
I know I can only hold back MS so much. I know I can only keep doing my artwork for so long. I just need to remember how I got here and what's important today. Bit by bit and piece by piece is how I have to do things. That's just the reality of it.
So maybe sometimes, the musings over the past can reflect on the present. It all depends on how I utilize those memories. Or something like that.
Not that anything really bad is happening right now. I've had a few difficulties in recent days and struggling with MS has been nothing less than frustrating.
Yesterday I wanted to bag up some of the leaves that have been in my yard for months. I managed to pull off a bag and a half before nearly reaching collapse stage. I was furious; mostly at myself. How weak it seems that I can't bag some stupid leaves. Yes, they were wet and rotting, therefore heavier. Yes, it was 84 degrees outside and MS hates heat. But still, I wanted the work done. I still want the work done. Oh, I did also use the push mower to do the front yard (by push I mean no engine) which is a staircase of tree roots. I probably should have stopped there.
I remembered that I used to be a soldier. I used to do 50 pushups at a time. I can do 20 now, but it wipes me out for hours. I went to basic training in South Carolina where we marched in 90+ degree heat. Now I can hardly tolerate just standing in 90 degree heat.
But I'm still breathing and functioning. I'm still doing a lot of things that defy the odds. I've lived my life doing this. I've been put down and kicked while down and still got back up. So maybe I need a check list that reminds me?
Abusive alcoholic/drug addict stepmother: Survived.
Severe and violent bullying through school years: Survived
Run away from home and become a street urchin child: Survived
30 years of chaos and loss because I didn't know I had Asperger's: Survived
All that and managed to stay away from drugs, alcohol and crime. So I have a lot to be thankful and for and a lot that didn't take me down in the first place.
I know I can only hold back MS so much. I know I can only keep doing my artwork for so long. I just need to remember how I got here and what's important today. Bit by bit and piece by piece is how I have to do things. That's just the reality of it.
So maybe sometimes, the musings over the past can reflect on the present. It all depends on how I utilize those memories. Or something like that.
Labels:
autism,
blogging,
bullying,
disability,
living,
ms,
multiple sclerosis,
survival
Monday, May 11, 2015
Facebook commentor says autistic children deserve incineration
First, you need to see this story about the Tigard family and how they were forced off a plane because of a child with autism. Oh and language warning for the quote below.
Link HERE.
Get Mrs. Tigard's full explanation of events HERE.
I want to point out that the child in question, never harmed anyone. The Tigard family were in an unfortunate set of circumstances that are not possible to fully control. Imagine being that family for just a second. Okay, try for longer than a second. Your child is headed for a meltdown and you are frantically trying to make any arrangements you can to avoid a very embarrassing and public situation. You have a special needs child. But the world doesn't stop for that. Planes still board and expect to take off on time. So when your child is refusing to eat (under the influence of their condition) and you are faced with missing your plane. What do you do? If you just spout off that you would miss your plane, you clearly don't live your life with a special needs person. And how many flights are you willing to miss? The treatment of this family is appalling, but then you get people Josh.
Josh posted a comment on the second link above and it was as follows:
Josh comments from Houston, Texas. Note the f-bombs for extra class. Note the severe lack of empathy or understanding by calling a child 'it' and using a word like 'deserve'. I don't know where his hatred of disability comes from, but it's quite a shock to the system. It's comments of that kind that show us our job is not done when it comes to awareness for autism. Maybe Josh just likes to be a troll? Hard to say. If you look at his page, you see that he at least cares about police officers being shot.
But clearly, he has no idea what a person with autism struggles with. The lower the function of the person, the greater the struggle. Maybe our schools need to start teaching humanities? Maybe there needs to be special classes?
People like Josh, make life 10x harder out in public for special needs families. Usually because of lack of tolerance for the needs of other human beings. This is why awareness campaigns much continue. The must continue for the education of the steward and captain on the plane and bystanders like Josh.
UPDATE:
Josh's account may be fake! First see it for yourself: LINK.
Now, if you do an image search you will find THIS. And more because it's a stock photo being used on thousands of websites. How creepy does a person have to be?
Now this is either a stolen photo or actually his face in Wikipedia. Hard to be certain. But there are some interesting things on his FB page.
He likes the Bay City Texas, Police Dept. Which suggests he may live in Bay City instead of Houston. He like Texas A&M University and is on their AG Confessions page. He likes the Eyeworks optometry center? HERE. Take a look.
The real name of the mug in the photo is apparently Jack Hills. Are the one and the same person. Hard to say
What this does say, is something for the apparent cowardice of people who behave like this online.
Link HERE.
Get Mrs. Tigard's full explanation of events HERE.
I want to point out that the child in question, never harmed anyone. The Tigard family were in an unfortunate set of circumstances that are not possible to fully control. Imagine being that family for just a second. Okay, try for longer than a second. Your child is headed for a meltdown and you are frantically trying to make any arrangements you can to avoid a very embarrassing and public situation. You have a special needs child. But the world doesn't stop for that. Planes still board and expect to take off on time. So when your child is refusing to eat (under the influence of their condition) and you are faced with missing your plane. What do you do? If you just spout off that you would miss your plane, you clearly don't live your life with a special needs person. And how many flights are you willing to miss? The treatment of this family is appalling, but then you get people Josh.
Josh posted a comment on the second link above and it was as follows:
Josh comments from Houston, Texas. Note the f-bombs for extra class. Note the severe lack of empathy or understanding by calling a child 'it' and using a word like 'deserve'. I don't know where his hatred of disability comes from, but it's quite a shock to the system. It's comments of that kind that show us our job is not done when it comes to awareness for autism. Maybe Josh just likes to be a troll? Hard to say. If you look at his page, you see that he at least cares about police officers being shot.
But clearly, he has no idea what a person with autism struggles with. The lower the function of the person, the greater the struggle. Maybe our schools need to start teaching humanities? Maybe there needs to be special classes?
People like Josh, make life 10x harder out in public for special needs families. Usually because of lack of tolerance for the needs of other human beings. This is why awareness campaigns much continue. The must continue for the education of the steward and captain on the plane and bystanders like Josh.
UPDATE:
Josh's account may be fake! First see it for yourself: LINK.
Now, if you do an image search you will find THIS. And more because it's a stock photo being used on thousands of websites. How creepy does a person have to be?
Now this is either a stolen photo or actually his face in Wikipedia. Hard to be certain. But there are some interesting things on his FB page.
He likes the Bay City Texas, Police Dept. Which suggests he may live in Bay City instead of Houston. He like Texas A&M University and is on their AG Confessions page. He likes the Eyeworks optometry center? HERE. Take a look.
The real name of the mug in the photo is apparently Jack Hills. Are the one and the same person. Hard to say
What this does say, is something for the apparent cowardice of people who behave like this online.
Labels:
airlines,
autism,
discrimination,
inhumanity,
Tigard family
Monday, January 26, 2015
Sensory APP for therapy worth a look
Routine, routine, routine. If anyone is sensitive to routine, it's our autism kids. Not only that, there's a massive amount of sensory built into this. It can make your world chaos in more ways than one.Recently I was approached through my Galaxy Zento page and told about an app that helps with schedule and sensory routines. I don't have an iphone because I'm archaic, but if you do you should check this out. LINK.
Sensory Processing Therapy is by Sensory Treat Ltd. Not only does the app have suggestions for activities but you can schedule and tailor to your child's specific needs. It boasts over 100 color coded activity illustrations. The activities are designed by occupational therapists (be sure to click on the description on the page for a very comprehensive list of possibilities).
Of course I'm posting some of the screen shots here, but if you scroll sideways on the page where the screen shots are, you will see several more.
I'm amazed at what's possible here and the suggestions for kids activities. Not only can you form a routine that works with your day and your child's needs, but they all have therapeutic value. I'm impressed.You can put in your child's entire daily routine, enhance it and schedule the simplest of tasks or events. We all know how the littlest things have a mountain of effect on our kids. This is like having an assistant to help guide you while you spend your time redirecting and working with your child. It looks to me like an app that can help regardless of your child's functioning level.
Our kids' success is all about having the proper supports. This may just be one of them. Now it is pretty new so there aren't reviews to show. But I think they have demonstrated the possibilities very well in what you see.
One of my exact purposes in writing this blog is bringing things to my fellow autism parents that may be of help to them. I think this is worth a good look.
Labels:
adhd,
apps,
asd,
autism,
occupational therapy,
sensory,
sensory app,
therapy
Sunday, December 28, 2014
How Multiple Sclerosis affects my artwork
Recently a very cool friend of mine received the honor of an article in the Daily Light paper about how MS affected his music and ability to play. You can check it out HERE. I am so proud of my friend, Chris and all he's accomplished on explaining MS to people and raising awareness. It's an inspiration to me.
Now I'd like to share an online quote directed at me some time back.
"I don't think your condition is an excuse for bad artwork."
As many of you know, I'm the creator/writer/artist for my own universe of characters called, Galaxy Zento. To suggest my artwork is perfect would be a lie. I'm not perfect and I do my best with what I have left. The person who made that comment had no idea what they were talking about. So let me explain what it takes for an artist to put out awesome artwork.
Knowledge of form, good hand eye coordination and cognitive ability to transfer and translate from mind to paper. Seems simple right? Now lets look at that MS does to a person.
It destroys your freaking nerves. So hand coordination is shaky at best. If you look close enough at my work, you will notice that all my lines are wavy. All of them. Circle? Wavy circle. Oval? Wavy oval. Arms? Musculature? All with little waves everywhere. I can correct some on digital but even there I have to do what my messed up system allows if I ever want anyone to see it (this year).
Cognitive function is a mess. It's like trying to strain your thoughts through a colander or sifting mechanism and then make sense of the resulting mess. What I try to see in my mind and translate, is a fog. So I'm literally making up details as I go. Sometimes I can see it in my head really well. Other times, I can't see my character's faces. Try to figure THAT out. I get basic forms and basic shapes, then I have to muddle my through to make them work.
Now I tell myself that I simply have to own my own style and never give up. But it's not always that easy. There's so much of the story to tell and I don't know how much time I have to tell it. I'm racing against a clock of unknown time. It's headed for a point that I won't be able to draw a stick figure.
If you follow the link about and go through the albums, you can see differences in the pictures that show days that my poor head wasn't quite up to the job at hand. Sometimes I come up with good looking stuff, sometimes I don't and I have a lot of trouble fixing it.
"Just find an artist." I do have someone on board, but please don't say this to me. I don't have up front funds and it dismisses the fact that this is a huge piece of myself that's fading decades before it should.
So, as you view the artwork of Galaxy Zento, know that every success is dedicated to others like myself (especially youth). Someday, I may have artists who put in because they believe in my reasons and can fall in love with the characters, but until then (and even after) I will continue this fight.
Now I'd like to share an online quote directed at me some time back.
"I don't think your condition is an excuse for bad artwork."
As many of you know, I'm the creator/writer/artist for my own universe of characters called, Galaxy Zento. To suggest my artwork is perfect would be a lie. I'm not perfect and I do my best with what I have left. The person who made that comment had no idea what they were talking about. So let me explain what it takes for an artist to put out awesome artwork.
Knowledge of form, good hand eye coordination and cognitive ability to transfer and translate from mind to paper. Seems simple right? Now lets look at that MS does to a person.
It destroys your freaking nerves. So hand coordination is shaky at best. If you look close enough at my work, you will notice that all my lines are wavy. All of them. Circle? Wavy circle. Oval? Wavy oval. Arms? Musculature? All with little waves everywhere. I can correct some on digital but even there I have to do what my messed up system allows if I ever want anyone to see it (this year).
Cognitive function is a mess. It's like trying to strain your thoughts through a colander or sifting mechanism and then make sense of the resulting mess. What I try to see in my mind and translate, is a fog. So I'm literally making up details as I go. Sometimes I can see it in my head really well. Other times, I can't see my character's faces. Try to figure THAT out. I get basic forms and basic shapes, then I have to muddle my through to make them work.
Now I tell myself that I simply have to own my own style and never give up. But it's not always that easy. There's so much of the story to tell and I don't know how much time I have to tell it. I'm racing against a clock of unknown time. It's headed for a point that I won't be able to draw a stick figure.
If you follow the link about and go through the albums, you can see differences in the pictures that show days that my poor head wasn't quite up to the job at hand. Sometimes I come up with good looking stuff, sometimes I don't and I have a lot of trouble fixing it.
"Just find an artist." I do have someone on board, but please don't say this to me. I don't have up front funds and it dismisses the fact that this is a huge piece of myself that's fading decades before it should.
So, as you view the artwork of Galaxy Zento, know that every success is dedicated to others like myself (especially youth). Someday, I may have artists who put in because they believe in my reasons and can fall in love with the characters, but until then (and even after) I will continue this fight.
Labels:
autism,
blogging,
disability,
DJ Wilde,
Galaxy Zento,
ms,
multiple sclerosis,
overcoming
Thursday, December 11, 2014
The Church of Anti-Vaccine
Thanks to the pure abuse of scripture, thousands of idiots are exempting their children from vaccines. I wondered just how there could be anything in the bible that applies to vaccines, but then I underestimated the sheer power of crazy. Here they are:
I Corithians 6: 19-20, “Do you not know that your body is a temple of the Holy Spirit who is in you, whom you have received from God? …Therefore honor God with your body.”
II Corinthians 7:1, “…let us purify ourselves from everything that contaminates body and spirit, perfecting holiness out of reverence for God.
So, essentially, they take their unproven ideas that vaccines are somehow malevolent poisons and apply them to these scriptures. Then they put it all into a tidy little letter to the schools or whoever and get themselves exempted. This is just one reason that 45% of Michigan residents are living in areas of high risk for outbreaks. Just check out THIS article on the matter. OH, and they're actually HAVING outbreaks and NO the sick people aren't vaccinated.
This got me thinking. Just how do you make anti-vaccine belief into a religion? What would the requirements be? Well, wonder no more. If you want to be part of the Church of Andrew Wakefield, here's all you have to do!
1: As the name suggests, you must worship Andrew Wakefield. Tell everyone else it's about God, but you really pray to Andrew because he's the guy!
2: Dismiss science as fakery unless it comes from Andrew Wakefield. Because only those who follow Andrew know real science.
3: The official prayer is not putting your hands together; rather it's putting your fingers in your ears and shouting "LALALALALALALALA".
4: Believe that shaken baby syndrome is really because of vaccines. The broken bones occur because vaccines let the demons in and they fly the baby around the room.
5: If injured you must bathe in colloidal silver. Never go to the doctor unless they are vetted and accepted by Andrew Wakefield. So just stuff your guts back in your stomach. Natural healing is always better.
6: You must have two shrines to Andrew Wakefield in your home. One must be in the living room and one in the bedroom (wink wink).
7: Thou shalt embellish and exaggerate everything in support of condemning vaccines. If it sounds like facts it's good enough.
8: If someone comes close to proving you wrong you must go into a rage and accuse them of being government shills. They probably are anyway.
9: You must know the 28 studies that support Andrew Wakefield. You must frame them, put them on your wall, and recite them every day.
10: You must learn cherry picking. It's okay to accept information that seems like it supports your beliefs, even if that information comes from someone you condemn on all else. By the way, the annual cherry picking contest is every spring.
11: Forget the Father, Son and Holy Ghost, we like Andrew, Mother Nature, and the CDC Whistleblower.
12: No matter what, the possibilities of death and blindness are way better than ever having autism. Same goes for becoming a vegetable.
I think that's a pretty good start for the church and hey, freedom of religion right?
I Corithians 6: 19-20, “Do you not know that your body is a temple of the Holy Spirit who is in you, whom you have received from God? …Therefore honor God with your body.”
II Corinthians 7:1, “…let us purify ourselves from everything that contaminates body and spirit, perfecting holiness out of reverence for God.
So, essentially, they take their unproven ideas that vaccines are somehow malevolent poisons and apply them to these scriptures. Then they put it all into a tidy little letter to the schools or whoever and get themselves exempted. This is just one reason that 45% of Michigan residents are living in areas of high risk for outbreaks. Just check out THIS article on the matter. OH, and they're actually HAVING outbreaks and NO the sick people aren't vaccinated.
This got me thinking. Just how do you make anti-vaccine belief into a religion? What would the requirements be? Well, wonder no more. If you want to be part of the Church of Andrew Wakefield, here's all you have to do!
1: As the name suggests, you must worship Andrew Wakefield. Tell everyone else it's about God, but you really pray to Andrew because he's the guy!
2: Dismiss science as fakery unless it comes from Andrew Wakefield. Because only those who follow Andrew know real science.
3: The official prayer is not putting your hands together; rather it's putting your fingers in your ears and shouting "LALALALALALALALA".
4: Believe that shaken baby syndrome is really because of vaccines. The broken bones occur because vaccines let the demons in and they fly the baby around the room.
5: If injured you must bathe in colloidal silver. Never go to the doctor unless they are vetted and accepted by Andrew Wakefield. So just stuff your guts back in your stomach. Natural healing is always better.
6: You must have two shrines to Andrew Wakefield in your home. One must be in the living room and one in the bedroom (wink wink).
7: Thou shalt embellish and exaggerate everything in support of condemning vaccines. If it sounds like facts it's good enough.
8: If someone comes close to proving you wrong you must go into a rage and accuse them of being government shills. They probably are anyway.
9: You must know the 28 studies that support Andrew Wakefield. You must frame them, put them on your wall, and recite them every day.
10: You must learn cherry picking. It's okay to accept information that seems like it supports your beliefs, even if that information comes from someone you condemn on all else. By the way, the annual cherry picking contest is every spring.
11: Forget the Father, Son and Holy Ghost, we like Andrew, Mother Nature, and the CDC Whistleblower.
12: No matter what, the possibilities of death and blindness are way better than ever having autism. Same goes for becoming a vegetable.
I think that's a pretty good start for the church and hey, freedom of religion right?
Labels:
anti-vaccine,
anti-vaccine movement,
anti-vax,
autism,
disease,
toxins,
vaccines
Friday, November 7, 2014
Autism is not a reason to murder children
I figured there were enough people talking about this already, but the media is making this look like a trend and it has to stop!
London McCabe's mother, pressured by taking care of her disable husband and a six year old non-verbal with autism, threw him off a damn bridge. Then she called the police and turned herself in claiming voices told her to do it. It's debatable that she's been at the snapping limit for some time from snippets of her blog still floating around. She even had people sending donations to help her. I'm sure they just weren't enough. All the same, I'm not buying that she had any good reason kill her child. Why not call the police and tell them she's at the bridge and ABOUT to kill him? Maybe then he wouldn't be dead. Yes, it would be traumatic, but even as an autistic myself, I say that's better than dead. I have no compassion for this woman for the death of her child who was seen as pretty well behaved by witnesses. Anyway....
Katie McCarron's case is a bit older by way of 2006. Her mother smothered her with a plastic bag. Katie had autism. The woman is currently incarcerated. I can only hope her child's memory haunts her every day as it should with anyone who kills their own child. Her mother Karen cited guilt over vaccinating her child, and blamed vaccines for her desire to commit murder. This is just one more reason why "anti-vaccine thinking" will never gain ground with me. They'd rather see children dead than with autism. Regardless, it doesn't end there.
Jude Mirra, murdered by his mother in 2014 by lethal dose of drugs because he has autism. 8 years old. She also tried to kill herself but failed. Depression is no laughing matter and I'm not one to mock it, but kids are dying needlessly and for little more reason than they have a medical condition. Before you come at me with her hardships let me just toss this out.... MOM WAS AN EFFING MILLIONAIRE! You'd think there were still other routes than DEATH. Especially when you're loaded to the gills with money. Yes, I read the details of the case. She claims to have killed him to save him.... bullshit.
Alex Spourdalakis, autistic, 14 and brutally murdered in 2013. Lack of benefits and financial hardships seen as the trigger. While I refuse to excuse people for killing their children, there is a matter in dire need of attention. It is TRUE that proper services are lacking by way of lofty costs that put them out of reach for suffering families. Depending on the state you live in, you can be in a hard hard place. It can feel more lonely and desolate that the darkest pit of hell. So those in political power better start paying attention.
Fact is, there is a lot more than just families with disabled kids snapping and killing. Lack of jobs, lack of services, lack of assistance in education or medical, lack of respite assistance, lack of a living wage if you do have a damn job.... people are losing it out there. The common citizen is facing stressors that our day and age shouldn't be. Add disabilities to it and it seems to be pushed even further with these people. Like I said, I don't excuse them for it. I'm sickened by it.
When treatments and supports are where they are supposed to be, I've seen children brought back from the brink and given hope. Autism is not a reason to take a life. Not only does that message need to get pounded out clearly, but our system needs fixing at the same time.
London McCabe's mother, pressured by taking care of her disable husband and a six year old non-verbal with autism, threw him off a damn bridge. Then she called the police and turned herself in claiming voices told her to do it. It's debatable that she's been at the snapping limit for some time from snippets of her blog still floating around. She even had people sending donations to help her. I'm sure they just weren't enough. All the same, I'm not buying that she had any good reason kill her child. Why not call the police and tell them she's at the bridge and ABOUT to kill him? Maybe then he wouldn't be dead. Yes, it would be traumatic, but even as an autistic myself, I say that's better than dead. I have no compassion for this woman for the death of her child who was seen as pretty well behaved by witnesses. Anyway....
Katie McCarron's case is a bit older by way of 2006. Her mother smothered her with a plastic bag. Katie had autism. The woman is currently incarcerated. I can only hope her child's memory haunts her every day as it should with anyone who kills their own child. Her mother Karen cited guilt over vaccinating her child, and blamed vaccines for her desire to commit murder. This is just one more reason why "anti-vaccine thinking" will never gain ground with me. They'd rather see children dead than with autism. Regardless, it doesn't end there.
Jude Mirra, murdered by his mother in 2014 by lethal dose of drugs because he has autism. 8 years old. She also tried to kill herself but failed. Depression is no laughing matter and I'm not one to mock it, but kids are dying needlessly and for little more reason than they have a medical condition. Before you come at me with her hardships let me just toss this out.... MOM WAS AN EFFING MILLIONAIRE! You'd think there were still other routes than DEATH. Especially when you're loaded to the gills with money. Yes, I read the details of the case. She claims to have killed him to save him.... bullshit.
Alex Spourdalakis, autistic, 14 and brutally murdered in 2013. Lack of benefits and financial hardships seen as the trigger. While I refuse to excuse people for killing their children, there is a matter in dire need of attention. It is TRUE that proper services are lacking by way of lofty costs that put them out of reach for suffering families. Depending on the state you live in, you can be in a hard hard place. It can feel more lonely and desolate that the darkest pit of hell. So those in political power better start paying attention.
Fact is, there is a lot more than just families with disabled kids snapping and killing. Lack of jobs, lack of services, lack of assistance in education or medical, lack of respite assistance, lack of a living wage if you do have a damn job.... people are losing it out there. The common citizen is facing stressors that our day and age shouldn't be. Add disabilities to it and it seems to be pushed even further with these people. Like I said, I don't excuse them for it. I'm sickened by it.
When treatments and supports are where they are supposed to be, I've seen children brought back from the brink and given hope. Autism is not a reason to take a life. Not only does that message need to get pounded out clearly, but our system needs fixing at the same time.
Labels:
autism,
London McCabe,
murder,
parental murder,
vaccines
Saturday, October 25, 2014
Anti-Vaxxers may be hypocrites if...
LANGUAGE WARNING
My bent sense of humor can’t help itself. This nice big jab
at the anti-vaccine movement has been on my mind and it needs to meet paper and
pen. Well, internet publishing anyway. But, like any form of zealotry, hard
core anti-vaxxers who say “never inject” are a bunch of hypocrites. They say
not to give your child “poisons” like they have the slightest clue. Here’s my
list on the subject, because IF you are one of those anti-vaxxers who wants all
vaccines to disappear (because measles is more fun) and you do any of the
following, you’re a damned hypocrite.
Dine at any restaurant: I don’t care if it’s fast food or
high class. If you’re so worried about poisons getting into your system and you
eat food from animals who have had vaccines (and you have no idea so don’t even
try) then you are a hypocrite. Yet, we’ve been eating this crap for generations
and we are still here. Funny how that works out. Speaking of eating, the next
one ties nicely into this one!
Consume ANY form of packaged food: From your sugars and
spices clear down to a fucking candy bar. Mmmm, what a yummy Snickers you’re
enjoying there….. guess who made the preservatives in it. Go on, guess. There
are preservatives in every bottled or packaged form of food on your grocery
store shelves.. ALL OF THEM and unless you pay out the nose for super short
lived organics that may be lying to you for a dollar, the preservatives were
all made by our government with the help of what you call BIG PHARMA. Eat,
drink, and enjoy because you’re a hypocrite. And yes, this includes the foods
at your favorite restaurant.
If you go to the dentist: Oh noes, it’s BIG PHARMA again. But
you don’t need Novocain or laughing gas do you? Nah, you’re rough and tough.
Have fun with that root canal.
If you brush your teeth with anything but water: Go ahead,
tell me you use baking soda. Baking soda is packaged in a damn factory the same
as every fucking thing else. Be sure to look up what factory it’s packaged in
so you can see what other products are packaged in the same place. Enjoy your
new nightmares of BIG PHARMA. Toothpaste and mouthwash contain fluoride and that’s
in so many places you’ll just shit yourself to know.
If you use deodorant: Go grab your speedstick or whatever
the hell you use and look at the back of it. Go ahead, I’ll wait. Now READ IT.
See where it says DRUG FACTS right at the top of the label. Huh. Why would it
say that? BECAUSE IT’S A DAMN PHARMACUETICAL, DUMBASS. And every portion of
what you are shoving into the pores of your skin is poisonous. Go ahead, look
up the ingredients yourself. The same goes for things like soap and shampoo. And
you’re worried about the peon money they don’t make on vaccines.
If you smoke or drink: You’re worried about chemical
injections for your kids, but second hand smoke is A-okay? Drinking your liver
into oblivion around your kids is alright? Wow, you are stand up parent, aren’t
you? Nope, just a hypocrite.
Unless you live in a hole in the ground, home school your
child (school lunches and preservatives you know), bathe in creek water with
rocks, never brush your teeth or use hygiene and live off of tree bark and
squirrels….you’re a hypocrite. It just goes to show that you really have no
clue just how much of these things are all around us.
Labels:
anti-vaccine,
anti-vaccine movement,
anti-vax,
autism,
conspiracy,
mercury,
pharma
Sunday, October 19, 2014
Stupid Things on Anti-Vaccines
LANGUAGE WARNING
I realize this kind of language is not the norm for this blog, but this is a special situation. Just be warned.
For those who have been following my tiff on Facebook about the anti-vax propaganda, this should come as no surprise, especially with my recent experiences. I had no idea just how insane the anti-vaccine cult really is, but I got cold water introduction! So I'm going to be very candid and blunt here. Vaccines save lives and trying to abolish them WILL GET PEOPLE KILLED. Not that you can explain that to an anti-vaxxer. They have a one way mind that is immune to actual scientific fact. I can actually almost prove that.
Small recap: What started this for me was some yoyos telling me that I'm a traitor because I have autism and I'm not viciously anti-vaccine like they are. And frankly, I've had it with the ridiculous propaganda geared to misinform and fear monger people away from vaccines that keep deadly and disabling diseases at bay. And, of course, they can't leave well enough alone so this is what it comes to:
![]() |
| Sounds good to me |
So I've done just that. I made memes and shouted from the rooftops and that sure got their attention (finally). I started out with a general message saying to just drop me, but that wasn't enough. Once I joined a pro-vaccine Facebook page though.... that brings me to stupid thing number 1:
GETTING VILLAINIZED: Check that out. Apparently I'm so dangerous I warrant a call to arms! I've been dropped or blocked by over 30 people. One even left a nasty message on my wall before blocking me in order to run away. If this is how they handle rejection, why would anyone want to be like them? Worse, are they really so paranoid that they think I'm going to start stalking them? HAH! Go ahead, you fruitcakes, block me. It means I don't have to see your garbage any more. This behavior just concretes my position. I'm glad they're scattered across the country and not local or I might get lynch mobbed and set on fire. I am being smeared and misquoted but I really don't care. Screw em.
FACT EVASION: I've actually tried debating with folks in the anti-vac crowd and WOW. These people dodge facts better than a deadbeat dad avoids child support. It immediately reminded me of a scene in the Matrix. It doesn't matter what source material you use, what historical figures you show, they'll either pretend they don't see it or claim it's a big pharma lie (with absolutely no evidence). Holy shit, I've never seen mental contortionists like this before!
CDC WHISTLEBLOWER: Speaking of facts; some guy goes and digs up a dead horse study, picks and chooses what he thinks works for him and creates this whole whistleblower campaign. That would be this guy, Brian Hooker. He even chumped a CDC scientist and recorded him without given knowledge. Since this debacle, some of the most respected authorities outside of the CDC and around the fucking world, have gone over his supposed find with a fine toothed comb and DEBUNKED IT. But none of them care. They grasp any straw of desperation they can find to abolish all vaccines. It's pure insanity at it's best.
OBSCURE EVIDENCE: That isn't evidence at all. It's all guilt by association coincidence. You show them a thousand pages of information that proves vaccines don't cause autism and they'll come up with an obscure sentence from the back of a cereal box that seems like it could support them if we lived in an alternate dimension. As soon as you point out the flaws in their supposed evidence they completely lose their shit (see Facebook image above).
BUT THE GOVERNMENT LIES! Yeah, sure they do. Oh, but HISTORY DOESN'T! Instead of hand picking a collection of snippets from propaganda papers, try going to a library and picking up and actual BOOK. They call out for us to do our research, we do, then they go nuts.
EBOLA: Let the insanity explode. I've had these people try to tell me that Ebola is airborne (BULLSHIT) or being used to cull the population (SUPER STEAMING BULLSHIT). But the big fave for me has to be this: according to the anti-vax crowd it may be caused by vaccines. Have you ever come across something so amazingly fucking stupid that you immediately raced across the room and put your head through the wall? It should be extremely painful to be that dumb.
These people are truly scary. I understand those who have dealt with vaccine injury, I really do, but there's also NO way of knowing if that is what truly happened, even if the timing is right there with when your child got their shots. And vaccines do not cause autism! VACCINES DO NOT CAUSE AUTISM. Vaccine injury mimics autism very well, but if your child has Asperger's, they DON'T have vaccine injury.
Something has to be done. People are being scared into following this quackery and it's going to bring back some disease that will truly fuck people up. You want me to wake up? You first, nutbar.
Labels:
anti-vaccine,
autism,
Brian Hooker,
cdc,
cdc whistleblower,
disease,
Ebola,
shots,
vaccines
Monday, October 13, 2014
Teaching autistic children public safety
If your child is anything like mine, they announce everything on their minds to total strangers instantly upon seeing them. That includes guy walking by on the sidewalk, cashiers, construction workers, and anyone else.
No apprehension of strangers is a scary thing to deal with. If your child has wanderlust, it's even worse. So what do you do to help protect your child.
Learning is a long process. You have to accept that from the start. Teaching your child the risks of stranger danger has to be repeated over and over again for years. If your child is high functioning, they may eventually mature enough to understand. This is realizing that reality is not the same for all our kids.
That's why we are our children's best line of defense and we need to create an atmosphere that's conducive to teaching them what they need to know.
Can you let your child to go next door and play with a neighbor child? If so, speaking with the other child's parents about your concerns can go a long way. If there's a good rapport with your neighbor you could let them know that your child has no fear of strangers and is at risk. Offer an open door policy for you and your neighbor to talk openly.
Share your concerns with school, therapist, and counselors. Anyone trustworthy you can get on board to help you reinforce social safety is a plus.
Coach your child often! When I take my son to public places I remind him of our rules when it comes to strangers. This includes:
No announcements: Our lives are private and we don't need to tell everyone what we are doing.
Stay by me: No wandering off. This may need several reminders as things distract, but it's important.
If we get separated, my son knows to head for the cash registers and customer service counter. I know, quite a few of our kids won't be able to do that. They'll either panic outright or just get distracted by something. One way to alleviate this is to role play (if possible for your child) and practice what to do or where to go.
Our kids can learn safety rules and measures for social safety, it just takes longer than with typical children. We have to be watchful and point out issues that they miss. The more we coach and teach, the more likely they will develop some level of safety skill.
Granted this is just a nutshell overview, but it is blog post after all. Have questions? Ask away in comments! Comments are moderated so please be patient.
No apprehension of strangers is a scary thing to deal with. If your child has wanderlust, it's even worse. So what do you do to help protect your child.
Learning is a long process. You have to accept that from the start. Teaching your child the risks of stranger danger has to be repeated over and over again for years. If your child is high functioning, they may eventually mature enough to understand. This is realizing that reality is not the same for all our kids.
That's why we are our children's best line of defense and we need to create an atmosphere that's conducive to teaching them what they need to know.
Can you let your child to go next door and play with a neighbor child? If so, speaking with the other child's parents about your concerns can go a long way. If there's a good rapport with your neighbor you could let them know that your child has no fear of strangers and is at risk. Offer an open door policy for you and your neighbor to talk openly.
Share your concerns with school, therapist, and counselors. Anyone trustworthy you can get on board to help you reinforce social safety is a plus.
Coach your child often! When I take my son to public places I remind him of our rules when it comes to strangers. This includes:
No announcements: Our lives are private and we don't need to tell everyone what we are doing.
Stay by me: No wandering off. This may need several reminders as things distract, but it's important.
If we get separated, my son knows to head for the cash registers and customer service counter. I know, quite a few of our kids won't be able to do that. They'll either panic outright or just get distracted by something. One way to alleviate this is to role play (if possible for your child) and practice what to do or where to go.
Our kids can learn safety rules and measures for social safety, it just takes longer than with typical children. We have to be watchful and point out issues that they miss. The more we coach and teach, the more likely they will develop some level of safety skill.
Granted this is just a nutshell overview, but it is blog post after all. Have questions? Ask away in comments! Comments are moderated so please be patient.
Labels:
autism,
social safety,
stranger danger,
stranger safety,
strangers,
tips
Monday, September 29, 2014
Autism and Street Smarts: Avoiding Trouble
No advice is perfect for everyone and this is no exception. This is aimed at the high functioning who may be able to take care of themselves. Still, this may be of use to anyone in variable ways.
My experience comes from being on my own in the streets from age 14. I survived a long list of things that people have told me I shouldn't have been able to. But I did. As a child in the streets of Barstow, California; I was offered a place in the darkest criminal elements, yet I avoided them. Knowing what I know today, it's hard for me to figure out how I avoided them, but saying no actually worked for me. I'm not giving a list of the things I was asked to do by creeps looking for street urchin kids because I would have to give a trigger warning. What's important is how I survived and how you can avoid getting into trouble by some basic rules.
I developed these rules as a means to survival where it mattered most. While I hope none of you are in such dark situations, perhaps this will keep you out of them.
Rule #1: "It's none of my business". This is what I would say to people who started talking to me about illegal things they wanted to do. When someone approached me about an idea that I knew would cause me problems or get me arrested or even killed; I would just say "that's none of my business" and excuse myself for some fake errand I had to do . Let other people go get themselves in trouble. Don't preach at them, don't try to interfere directly (anonymous calls to police are fine), just use the phrase and get out of there. The whole idea is to get to a safe place and away from the threat.
You might wonder why that worked on people who tried to recruit me for their dirty deeds. I may have been lucky, but it seemed to impress (weirdly enough). In several cases, I had someone say to me, "keep saying that and you'll live a long time". That was good enough for me.
Rule #2: Pay attention to whats going on around you. For those of us with sensory disorders that never shut up, this is actually easy. So long as you stay in well lit areas and practice looking like you know exactly what you are doing, you'll make yourself less of a target. Practice noticing what is going on around you so you can avoid spots that look like trouble. While you are paying attention and being alert there is a very important pointer here: DO NOT STARE AT ANYONE. A passing glance or using your peripheral vision is good enough. Practice noticing things out of the corner of your eye at home. Noticing small details can save your life. Remember, the idea is noticing what to avoid. It's okay to change your entire route for this purpose. More on that in a minute.
Rule #3: Don't go where you don't belong. Most of us autistics already dislike crowds so we have a great excuse. If you are about to walk down a street you don't know and it's got shifty looking people hanging out on cars, smoking and drinking and it even looks dangerous... don't go that way. Keep to well lit and public accessed streets. Don't be wandering around at odd hours of the night. Stay out of back alleys. You can usually research and find out where high crime areas of your city or town are so you can stay away. You can research online or ask a trusted source such as a police officer (believe it or not).
Rule #4: If you must walk through the dark, do it like you just don't care. This is an exception to rule 3. There may come a time where you just have no choice but to walk down that block past those dangerous looking guys. You have to act like it just doesn't matter to you where you have to go. Think of the coolest and calmest day you ever knew in your life and walk like that. If someone nods at you, nod back, but keep moving. Don't stop, don't get into a conversation if you can help it (remember rule 1). Don't stare at anyone and just keep moving until you are far away or safe at home.
Notation: Unfortunately some of us LIVE in these places. Hopefully home is safe for you.
Rule #5: Have alternative habits. As a general rule, autistic people (including me) are serious creatures of habit. Breaking habits and changing routines is not easy for us. I suggest we practice not thinking of it as breaking our routine, rather adding an alternative routine to protect ourselves. Sometimes, something bad will happen even on the safest street and you will have to alter your route. There could be a terrible accident, a fire, or even a police standoff. These are all things that may make you change route. Having back up routines can keep you out of trouble. Your favorite grocery store is on fire? You will have to be ready to go to a different one. So have that plan already in place. When I was on the streets, I had to have several alternate routes I could walk to avoid people who were trouble. I got used to shifting quickly. You shouldn't have to do that with more than one or two back up plans. Just don't think of them as broken routines. They are shifted routines that are in case of emergency.
By following these rules to the best of your ability, you can avoid dangerous situations or even being involved with police while keeping yourself safe.
But what if you are trying to teach your child with autism how to be safe? I'll cover that in my next installment.
My experience comes from being on my own in the streets from age 14. I survived a long list of things that people have told me I shouldn't have been able to. But I did. As a child in the streets of Barstow, California; I was offered a place in the darkest criminal elements, yet I avoided them. Knowing what I know today, it's hard for me to figure out how I avoided them, but saying no actually worked for me. I'm not giving a list of the things I was asked to do by creeps looking for street urchin kids because I would have to give a trigger warning. What's important is how I survived and how you can avoid getting into trouble by some basic rules.
I developed these rules as a means to survival where it mattered most. While I hope none of you are in such dark situations, perhaps this will keep you out of them.
Rule #1: "It's none of my business". This is what I would say to people who started talking to me about illegal things they wanted to do. When someone approached me about an idea that I knew would cause me problems or get me arrested or even killed; I would just say "that's none of my business" and excuse myself for some fake errand I had to do . Let other people go get themselves in trouble. Don't preach at them, don't try to interfere directly (anonymous calls to police are fine), just use the phrase and get out of there. The whole idea is to get to a safe place and away from the threat.
You might wonder why that worked on people who tried to recruit me for their dirty deeds. I may have been lucky, but it seemed to impress (weirdly enough). In several cases, I had someone say to me, "keep saying that and you'll live a long time". That was good enough for me.
Rule #2: Pay attention to whats going on around you. For those of us with sensory disorders that never shut up, this is actually easy. So long as you stay in well lit areas and practice looking like you know exactly what you are doing, you'll make yourself less of a target. Practice noticing what is going on around you so you can avoid spots that look like trouble. While you are paying attention and being alert there is a very important pointer here: DO NOT STARE AT ANYONE. A passing glance or using your peripheral vision is good enough. Practice noticing things out of the corner of your eye at home. Noticing small details can save your life. Remember, the idea is noticing what to avoid. It's okay to change your entire route for this purpose. More on that in a minute.
Rule #3: Don't go where you don't belong. Most of us autistics already dislike crowds so we have a great excuse. If you are about to walk down a street you don't know and it's got shifty looking people hanging out on cars, smoking and drinking and it even looks dangerous... don't go that way. Keep to well lit and public accessed streets. Don't be wandering around at odd hours of the night. Stay out of back alleys. You can usually research and find out where high crime areas of your city or town are so you can stay away. You can research online or ask a trusted source such as a police officer (believe it or not).
Rule #4: If you must walk through the dark, do it like you just don't care. This is an exception to rule 3. There may come a time where you just have no choice but to walk down that block past those dangerous looking guys. You have to act like it just doesn't matter to you where you have to go. Think of the coolest and calmest day you ever knew in your life and walk like that. If someone nods at you, nod back, but keep moving. Don't stop, don't get into a conversation if you can help it (remember rule 1). Don't stare at anyone and just keep moving until you are far away or safe at home.
Notation: Unfortunately some of us LIVE in these places. Hopefully home is safe for you.
Rule #5: Have alternative habits. As a general rule, autistic people (including me) are serious creatures of habit. Breaking habits and changing routines is not easy for us. I suggest we practice not thinking of it as breaking our routine, rather adding an alternative routine to protect ourselves. Sometimes, something bad will happen even on the safest street and you will have to alter your route. There could be a terrible accident, a fire, or even a police standoff. These are all things that may make you change route. Having back up routines can keep you out of trouble. Your favorite grocery store is on fire? You will have to be ready to go to a different one. So have that plan already in place. When I was on the streets, I had to have several alternate routes I could walk to avoid people who were trouble. I got used to shifting quickly. You shouldn't have to do that with more than one or two back up plans. Just don't think of them as broken routines. They are shifted routines that are in case of emergency.
By following these rules to the best of your ability, you can avoid dangerous situations or even being involved with police while keeping yourself safe.
But what if you are trying to teach your child with autism how to be safe? I'll cover that in my next installment.
Sunday, September 21, 2014
Autism and Police Encounters
You are out driving or walking around and a police officer stops you. What do you do? Thanks to a torrent of horror stories on the internet, this is a scary situation. Sadly, most officers don't want to take the time to understand you unless they already know you pretty well. Then there's the matter of their personal opinions of you or autism (or any medical condition). When you find yourself faced with an authority figure, there are several things to keep in mind so you can avoid being another youtube statistic.
So let us begin with a police incident. You are pulled over or stopped for questioning by police. Don't be like the man in the video. When an officer gives you an order, you may as well comply with it. In fact, DO JUST THAT. You will save yourself a great deal of pain and anguish. For that matter, if you follow a few basic steps, you can avoid even getting to the point where they want to arrest you. Give the police a hard time and you will be arrested. If they decide they are going to arrest you anyway, there is little you can do about it. So:
1: Be pleasant and answer their questions. If asked for ID, provide it or explain why you don't have it. Be honest and polite.
2: If they want to do a pat down, let them. You may see this as a violation of your rights, but we'll get to what to do about that in a moment. Be open about what you have in your pockets. You really shouldn't be carrying anything illegal anyway. Same goes for if they decide to cuff you. Don't resist them, they'll only get nastier and you'll wind up like the guy in the video. Not worth it.
3: Follow all instructions. You can file a complaint later.
4: Do not lose your cool. If you get a ticket, just take it. If you lose your cool, you will go to jail. Don't argue past stating your case for what's involved.
If you believe you have been mistreated or your rights have been violated, going Youtube on the cop is not the answer. You can have an investigation done by filing a report with the department's division of Internal Affairs. Anyone who witnesses something they feel is a violation can make such a report. But, for some reason, people would rather post Youtube videos.
It's true that you don't have to answer their questions. You have that right, but depending on what they are investigating, you will only trigger them into an escalation. They have a job to do and the harder you make it for them to do it, the more likely you will go to jail. In some cases you may be let go, but you waste your time being difficult like this next person:
It was obvious he wasn't drunk, but he was more interested in filming the officers and being difficult. If he simply said "no", he would have been on his way quickly. If you aren't doing anything wrong, you have nothing to worry about. Why make it more difficult for everyone involved?
Finally, the best thing you can ever do, is avoid being in situations where the police are going to get interested. This requires developing a level of street smarts and I will address those in my next article.
So let us begin with a police incident. You are pulled over or stopped for questioning by police. Don't be like the man in the video. When an officer gives you an order, you may as well comply with it. In fact, DO JUST THAT. You will save yourself a great deal of pain and anguish. For that matter, if you follow a few basic steps, you can avoid even getting to the point where they want to arrest you. Give the police a hard time and you will be arrested. If they decide they are going to arrest you anyway, there is little you can do about it. So:
1: Be pleasant and answer their questions. If asked for ID, provide it or explain why you don't have it. Be honest and polite.
2: If they want to do a pat down, let them. You may see this as a violation of your rights, but we'll get to what to do about that in a moment. Be open about what you have in your pockets. You really shouldn't be carrying anything illegal anyway. Same goes for if they decide to cuff you. Don't resist them, they'll only get nastier and you'll wind up like the guy in the video. Not worth it.
3: Follow all instructions. You can file a complaint later.
4: Do not lose your cool. If you get a ticket, just take it. If you lose your cool, you will go to jail. Don't argue past stating your case for what's involved.
If you believe you have been mistreated or your rights have been violated, going Youtube on the cop is not the answer. You can have an investigation done by filing a report with the department's division of Internal Affairs. Anyone who witnesses something they feel is a violation can make such a report. But, for some reason, people would rather post Youtube videos.
It's true that you don't have to answer their questions. You have that right, but depending on what they are investigating, you will only trigger them into an escalation. They have a job to do and the harder you make it for them to do it, the more likely you will go to jail. In some cases you may be let go, but you waste your time being difficult like this next person:
It was obvious he wasn't drunk, but he was more interested in filming the officers and being difficult. If he simply said "no", he would have been on his way quickly. If you aren't doing anything wrong, you have nothing to worry about. Why make it more difficult for everyone involved?
Finally, the best thing you can ever do, is avoid being in situations where the police are going to get interested. This requires developing a level of street smarts and I will address those in my next article.
Labels:
authority,
autism,
intervention,
police,
rights,
street smarts
Sunday, September 14, 2014
Autism and Social Media: Survival Tips
There's no doubt that the internet is today's urban jungle, filled with beauty and danger. It's especially dangerous if you have trouble with social cues and understanding context. Words on a screen are often devoid of emotion and cause us to draw our own conclusions on the intentions of the writer. Misunderstandings come fast and hard, boiling into flame wars with a single word. These lessons are learned the hard way, but with some tips, hopefully you can recognize the lesson before it has to be repeated.
We may as well admit it, we who have autism have a tendency to take ourselves too seriously. We internalize and take offense way to easily. (Disclaimer: Yes, I know it's not this way for absolutely everyone and maybe not YOU). See what I just had to do there? I guarantee you I will be attacked for this paragraph, but I will not answer those attacks. Nor will I post hostile comments. That's part of surviving the internet. So, the tips:
Reader beware: Few posts carry trigger warnings, so when you read something, you need to form a thick skin or practice knowing when to stay away. It's hard to be personally aware of what really upsets you, but it can be done. If you find yourself getting upset with something someone else posts, practice walking away. You don't have to respond. You don't have to read what everyone else says. You don't have to agree with what everyone else says. And it's okay not to.
Don't feed the trolls: It gets said over and over again doesn't it? That's because it's true. Trolls are very good at triggering people on the internet and very little is beneath them to do so. They know full well what they are saying is wrong. So why correct them? Pass up their comments as "not worth your time" and find something more meaningful to comment on. If they are on a forum that allows them to be reported, do so, but don't say a word to them. NOT ONE WORD. Let moderators deal with it, you don't need to. If you just can't stand seeing their name and there stuff triggers you, use the block option. Block them and you'll find yourself a lot more stress free. Trying to fight trolls too much will result in dealing with a stalker or cyber bully instead. Not worth it!
Don't believe everything you read: Propaganda is always either half true or an outright lie. There is always more to the information than what you see. Ads are for taking your money, there is no guarantee you will get what you are promised. Especially don't trust propaganda "meme" posters. Some posts are meant to get you upset to incite you into doing what they want you to do. Always stop and think before exploding into action. That's a tough practice, but necessary.
Practice research: Never take action on anything on the internet without doing your research. Ask questions, do google searches, find out what the real information is.
Don't click on that: Get a weird message with a link in it on Facebook? Don't click on it. It's a virus that will spam everyone on your friends list. Same goes for your email messages. Unless a link has an explanation on it of what it is, you shouldn't click on it.
Would you do this in person? Ask yourself that before you post on the internet. There's always the old saying: If you don't have anything nice to say, don't say anything at all. If only more people would follow that.
Don't post your personal information: Even if it 's only viewed by people on your friends list. That includes your address and telephone number. Such things should only be sent in private message if at all. This is because;
Not everyone on your friend list IS a friend: You've never met them in real life and becoming true friends take time. It requires trust that you should not give out easily. No one should be requesting your information without a good reason, and marketing or sales are not good reasons. Most are good people and great to have contact with, but you don't want to just give yourself out to everyone who asks. Internet friends are awesome, but guard yourself.
Have tips of your own? Submit them to comments (moderated). Good luck out there!
We may as well admit it, we who have autism have a tendency to take ourselves too seriously. We internalize and take offense way to easily. (Disclaimer: Yes, I know it's not this way for absolutely everyone and maybe not YOU). See what I just had to do there? I guarantee you I will be attacked for this paragraph, but I will not answer those attacks. Nor will I post hostile comments. That's part of surviving the internet. So, the tips:
Reader beware: Few posts carry trigger warnings, so when you read something, you need to form a thick skin or practice knowing when to stay away. It's hard to be personally aware of what really upsets you, but it can be done. If you find yourself getting upset with something someone else posts, practice walking away. You don't have to respond. You don't have to read what everyone else says. You don't have to agree with what everyone else says. And it's okay not to.
Don't feed the trolls: It gets said over and over again doesn't it? That's because it's true. Trolls are very good at triggering people on the internet and very little is beneath them to do so. They know full well what they are saying is wrong. So why correct them? Pass up their comments as "not worth your time" and find something more meaningful to comment on. If they are on a forum that allows them to be reported, do so, but don't say a word to them. NOT ONE WORD. Let moderators deal with it, you don't need to. If you just can't stand seeing their name and there stuff triggers you, use the block option. Block them and you'll find yourself a lot more stress free. Trying to fight trolls too much will result in dealing with a stalker or cyber bully instead. Not worth it!
Don't believe everything you read: Propaganda is always either half true or an outright lie. There is always more to the information than what you see. Ads are for taking your money, there is no guarantee you will get what you are promised. Especially don't trust propaganda "meme" posters. Some posts are meant to get you upset to incite you into doing what they want you to do. Always stop and think before exploding into action. That's a tough practice, but necessary.
Practice research: Never take action on anything on the internet without doing your research. Ask questions, do google searches, find out what the real information is.
Don't click on that: Get a weird message with a link in it on Facebook? Don't click on it. It's a virus that will spam everyone on your friends list. Same goes for your email messages. Unless a link has an explanation on it of what it is, you shouldn't click on it.
Would you do this in person? Ask yourself that before you post on the internet. There's always the old saying: If you don't have anything nice to say, don't say anything at all. If only more people would follow that.
Don't post your personal information: Even if it 's only viewed by people on your friends list. That includes your address and telephone number. Such things should only be sent in private message if at all. This is because;
Not everyone on your friend list IS a friend: You've never met them in real life and becoming true friends take time. It requires trust that you should not give out easily. No one should be requesting your information without a good reason, and marketing or sales are not good reasons. Most are good people and great to have contact with, but you don't want to just give yourself out to everyone who asks. Internet friends are awesome, but guard yourself.
Have tips of your own? Submit them to comments (moderated). Good luck out there!
Labels:
autism,
internet,
living with autism,
memes,
social context,
social media,
tips
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