Sometimes it just doesn't pay to say anything, especially on the internet. I recently got into a discussion that derailed over the use of the word "cure". Here were some of the points of view:
-A couple of people felt that people should stop using the word altogether in light of autism. They find it offensive and compare it to vulgar racial slang.
-There were the viewpoints of how looking for a cure is offensive.
My point of view on this word is this: There is no cure for autism. Because there is no cure for autism I often use paranthesis around the word lik this, "cure". Because there is no cure for autism there is nothing to realistically define the word "cure" as it pertains to autism.
I do not think all people with autism need a cure.
I do think getting personally offended because someone else wants a cure (what ever that may be) is a waste of energy.
My opinion on stopping people from saying cure in regard to autism is that it won't work. It's an unrealistic approach and there are better ways to educate people. It also won't work because, like autism itself, you are crossing a variety of personaly points of view on the word. Unfortunately, I couldn't get my real point of view past the instantaneous offense taken on the other side.
You aren't going to get people to stop saying cure because it doesn't have the same meaning to everyone. It's not being used in the same context by everyone. It's not like racial slurs where the context is clear and obvious.
Now just about any term can be used in a derogatory manner and I don't like that either. If someone were to use the word cure on me in that manner I wouldn't feel friendly towards them either. I agree that treating people with autism or any other condition in a derogatory manner is wrong.
You see, I prefer to dislike the derogatory behavior more than any word. The behavior is the root of the issue. Truly derogatory or bigoted people can find more words to use.
That brings me to my next point. If you want people to stop being derogatory to you, then you need to show the same courtesy you expect of them. If you are honestly going across the internet page in question with remarks like:
"those brainwashed NTs"
"that pervasive JC stuff" (religious remark)
Well, then you'll only be seen as a hypocrite and you'll get the same respect you give. And attacking people as a general group (NTs)... how can you do that and then demand they accept you?
When someone attacks you, do you feel like accepting them? Of course not! You want distance from that person and plenty of it.
But, this is a discussion I have had enough of. I refuse to try and be polite and helpful to people who will turn around and go to war with me. I'm not your enemy. I am not pro-cure and I am not anti-cure. I know that there is no cure and fear is our greatest enemy. I know that how you treat someone is how you will be treated in return. Your behavior speaks volumes. The "cure" debate is now on my "banned" list because it's just too volatile and stressful to deal with on either side, and that's a big red flag people should pay attention to.
I end this with a link to my best blog on the "cure" debate I could have ever written and then that is that. LINK
Showing posts with label curbies. Show all posts
Showing posts with label curbies. Show all posts
Tuesday, April 10, 2012
My personal view of the word CURE
Labels:
anti-cure,
aspergers,
autism,
curbies,
cure,
cure debate,
derogatory behavior,
slurs
Tuesday, April 12, 2011
Autism Controversy: The Cure
In this series of my blog articles I am going to talk about the most controversial points in autism. These are points that divide us and cause us to attack each other with abandon, especially on the internet. Not just the internet though, as it has gone as far as picketing and lawsuits. But what does all that really achieve?
People of the autistic society can be very dramatic and overly driven people. That's an important first point to understand. We suffer from tunnel vision when we set our sights on a topic and what we feel about that topic. We can be driven into a "let's get'em" mentality with our over developed sense of justice and what wrongs us personally. To that note, we are famous for over internalizing situations to a point that taking offense is all too easy. As a disclaimer, I'm not saying that every single person with autism is like this, but I am saying it's quite common. We are also very driven by our senses that have us off balance much of the time.
As you can see by the title, the first area of controversy that I'm going to discuss is the ever aggravating "cure". This one may be the biggest area of autism controversy every. It's incited huge divisions of our community to go against each other with as much mudslinging, malicious ads, picketing, and hate as any religion or politics could hope to show. Now I'm going to make a very general statement that both sides may not care for: This is wrong on all sides. Now I'll impart the reasons why.
1: There is no cure: We spend a lot of time getting very bent out of shape over something that doesn't exist. Whether it's because we "want" a cure as some do or because we don't want one forced on us. What this comes down to is the argument of even looking for a cure. Half of the community takes great internalized offense at this while the other is labeled as "curbies" (a hate term, people, think about it). All of it is fueled by fear and mistrust. The bottom line, however, is that a cure simply does not exist. As it is, I don't see one happening in our lifetime or maybe even ever at all. We need to stop internalizing the seeking of a cure as a threat and consider the people who are looking and the life stories of the people that want one. I would love to "cure" some of the issues that I deal with as an autistic person and don't believe I would be lost at all. Having my senses more leveled out would be nice so that the sun doesn't give me migraines and some sounds don't bring me to my knees, think about that. On the other side, those who want to cure "Autism" as they don't tell you what areas they are trying to cure, need to be more specific to help calm the waters here. Curing autism is not a threat, cannot be forced on anyone and as of now, doesn't even exist.
Like the Unicorn, just not real.
2: It's invasive: Both sides feel invaded by the other. Another point to think about carefully. Why do you think that is? Take a family with a 13 year old boy who cannot talk, dress himself, feed himself or otherwise care for himself at all. Put them at a "cure" rally and have a non-cure type approach and lecture them for trying to "cure" their son. That's wrong. First of all, no one has the right to condemn anyone or any family for their medical choices.
If you do this and don't know them personally, don't know what they are dealing with, don't know how they feel or what any of their struggles are, you are out of line. Same goes with anyone lecturing you that you should cure yourself. You simply don't have enough facts to make a judgment. Also, just because someone wants to "cure" themselves or a family member for what ever reason... it doesn't mean they want to cure everyone. Yes, it's folly for organizations to talk like they have acceptance of everyone when they don't, but that's the psychology of an organization for you. You're better off ignoring it.
Put those together and what you get is a colossal waste of time and energy for us all. What the autism community needs is more moral support and acceptance, not infighting that will ensure nothing gets done for anyone. As of me writing this article, our government is on the brink of a shutdown thanks to a room full of politicians with the exact same problem. Is that where we want to go?
So here is what we need to do;
1: Stop worrying about the scientists who aren't just looking for "cures" but trying to understand how it works for the sake of everyone (educational).
2: Stop fighting.
3: Remember that NO ONE can force you to take any cure and just because someone else wants their (very different form of...) autism to be "cured" or "adjusted", doesn't mean anything will be directed at you.
4: Allow other families the freedom to make their own choices for themselves without all the excess judgment. If you don't like their decisions, just leave them alone. That's no matter what "side" you are on.
5: Remember there is NO cure. All that can be treated or "cured" are the comorbid side issues that can come along with autism. As it is, how many of those are there? Go try and count them.. good luck. That's why autism as a whole cannot be cured. Many of them are seriously debilitating. Those are the real targets, not you.
Next time: Andrew Wakefield and Vaccines.
Labels:
autism,
curbies,
cure,
curing autism,
Dave Wilde,
DJ Wilde,
fears,
thewildeman2
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