Showing posts with label diversity. Show all posts
Showing posts with label diversity. Show all posts

Friday, October 7, 2011

Autism and fractured communities


On every autism group website I have visited I see a claim of community. We claim to be a community coming together or already there. The truth is, autism is the one medical condition that has more dissension and diversity amongst the members of it's community above any other. Allow me to explain that.

Anti-vaxxers, curebies, ND's(Neurodiversity), SA's (Self Advocacy), and even "Autism traitors" are labels we pass out indiscriminately amongst ourselves. At the same time, we adamantly shout not to label us. Along with those labels are heaping helpings of hatred and insults. One side or group is constantly bashing away at another for some perceived insult to their very existence. For one "group" that I haven't seen a label for, may as well give them one and call them "Parent Haters" or PH's. This group is more adversarial towards parents of autistic children with accusations that they are only trying to "cure" their children for their own selfish needs (and destroy who those children really are in the process). Then there's hatred to NT's (neuro-typical people) that is just as bad. With all this internal segregation, let me ask you something;

How can we expect to ever be taken seriously? I have searched other medical conditions for this phenomenon. I searched bipolar disorder and multiple sclerosis, for example. I searched cancer and physical disabilities too. Autism is the only medical condition that acts more like some kind of deranged politics mixed with religious standings. It's putting people at each others throats. Believe it or not, I actually have a theory or two as to why this is happening.

It really comes down to two things:

1) The fact that autism affects each person and family differently.

combined with

2) The inherent social blindness of autistic conditions.


For example, here is a quote from a PH: "I don't need a cure or treatment, so why should anyone else?"

It's well documented that people with these disorders (and this is why it's seen as a disorder) miss how other people are affected by various issues (including autism). There is a natural tendency to expect sameness in a personal view within everyone else. It's like we forget that, just because we see the world in a certain way, we aren't like everyone else. We forget that everyone sees things in their own way. This is especially destructive in autism as I listed above.

Autistics who don't believe they need treatment or cure, automatically assume that no autistic needs treatment or "cure". And I say "cure" very loosely because there isn't one. The same can be said for those who dislike diversity or advocacy. They lose sight of the fact that everyone is different and has different needs. Not everyone has the same intensity of those needs either.


Another example is the eruption of internet flame wars where the slightest difference in base opinion becomes an accusation of being the Anti-Christ and gets accused of criminal bullying on all sides. This erupts in waves of inappropriate behavior to include creating "blacklists", negative blogs, and even direct angry emails. And while all sides shout "bullying", none of them stop. Yes, I realize flame wars are part of any internet meme and I've seen them. I just hadn't ever seen them at this degree before. It's about as volatile as high scale nitro glycerin, and most of the opinions aren't even meant to be insulting, or could just be ignored.

A lot of the internet wars happen because of high sensitivities in all parties. Those same sensitivities are very common in autism.

We need to stop and remember that there is more than one way to be affected by autism. The more we persecute parents over their children (none of anyone's business by the way), people over advocacy, diversity, or wanting disability rights, the worse we all look as a result. None of these beliefs are facist, racist, traitorous, or out to destroy us all. None of them are criminal or wrong.

Someone wants a cure? Let them. No one can force it on you. No one can make you get an abortion either.

Someone wants help for their child? Let them, it's none of your business. And if you are a parent, try worrying about your own kids.

Someone says "neuro-diversity"? Let them. It actually has helped some people and that's a good thing. You don't want it, you don't have to have it or subscribe to it.

We need to stop assuming we know what everyone else should have or do. You know how we hate words like "retarded"? How about "crazy"? Well, I have talked to people who have seen all the behaviors above and they can't see is as anything but "immature" and "crazy" too.

If you want to represent something, make it something helpful, not hateful.

Sunday, June 26, 2011

Yes we DO need diversity!


Websters Definition of Diversity: 1. The state or fact of being diverse. Difference. Unlikeness. 2. Variety. Multiformity. 3. A point of difference.

Social diversity is the existence of multiple cultures and types of people in any given area.

Throughout history people of many beliefs, lifestyles, creeds, ethnic backgrounds, religions, disability and more have staked their claim to human rights the same as any man. This has been backed and enforced by the Constitution of the United States of America, similar constitutions of other countries and laws around the world.

"We hold these truths to be self-evident, that all men are created equal, that they are endowed by their Creator with certain unalienable Rights, that among these are Life, Liberty and the pursuit of Happiness." Constitution of The United States of America (Thomas Jefferson).

See that quote? I has come to mean so much more than the paragraph you see in the Constitution. I means social acceptance without being shunned or judged. It means not being discriminated against for status of race, color, religion, sex, HANDICAP, familial status, or national origin. Yes, I capitalized that word on purpose.

I means having equal opportunities at good housing, employment, education, and medical care (insurance too).

It's why hate crimes are considered particularly heinous in nature.

Sadly, in the autism community the term is being horribly misused and misunderstood. I have been told and shown that, supposedly, you cannot be accepting of the search for an autism "cure" in any fashion and be for diversity at the same time. This is 100% in error. I can believe what ever I want to and telling me that I "can't" is wrong. The Constitution and Law say it's wrong. Let's take a look at why the two subjects should have just about nothing to do with each other.

Concern's against "diversity":

1: I found a comment at a blog I will not publicize that stated, "Neurodiversity is just a way for lazy people to get on disability." The very wording of such a statement is bigoted against the disabled and highly discriminatory. It proves that diversity and acceptance really are important. If one rude person on the internet is willing to publish such a horrible thought, how many more ignorant people are out there in housing, workforce, or the medical field who will discriminate because an autistic person happens to be on disability as well? It's supposed to be wrong to hold an entire community to task for the lies of an individual. If someone is frauding the system, that's on them as a person. It's not on the whole community of race, creed, sex, etc.

2: A cure is a better idea because then no one would need diversity: Again, faulty logic. This ignores the very fact that there is no cure and there are varied forms of autism. It ignores the fact that there are people out there right now, who deserve acceptance and the same rights as the rest of us, whether you look for a cure or not. It's like some of the activists for a "cure" expect people of the autism community to just suck it up and get over it. It's like they expect autistic people to put their lives on hold (medical costs, education and all) and wait for the golden miracle cure. Because with that cure, all problems would be solved.

If you want to find a "cure", go ahead, that is your right. Stop bashing people who just want to be accepted like the Constitution says they should.

And now... for the other side, just to be fair. Concerns against a "cure".

1: That it will be forced on autistic people to change them: I've said it before and I will say it again: That would be illegal. Also, again, there is no cure. That makes fearing a "cure" at this time akin to fearing the boogeyman.

2: That babies will be aborted: Fact, babies are already being aborted. This cannot and will not have that much of a change on those numbers. How do I know this? Take other medical conditions into account. Down Syndrome; I personally know just as many parents who knew they were having a child with Down Syndrome and didn't abort as any who said they did. For any of these situations there are people of all kinds and beliefs. This makes the abortion concern another empty fear. If you want to be against abortion, then go out and do so. Abortion is real, a "cure" is not. Work with something that is real. You'll get a lot more out of it.

3: People will be told not to have babies or start families if they have autism. That is discriminatory and should be reported if any social worker says this to you. No one has the right to tell you if you can have kids. Naturally, there are situations where a person is unfit to have children in the first place. That's different. But, if you are fit, and there's every chance you are, report any worker who says that to you. Report any nurse too. It's discrimination, simple as that.

For people who actually believe that load of tripe about avoiding having children if you autism, I have this: You need to do some research and get an education. If you want to save the world from medical conditions or "types" of people, there are plenty of deadly lifestyles and diseases you can take up arms against. Maybe you could help against crime or drug addiction? You know, things that are actually KILLING people. How about standing against spousal and child abuse? Just a thought.

Diversity is needed, it stands with historical evidence into the dark ages. It has nothing to do with seeking a cure. Mixing them just creates uneducated fear.

So, one more time: A "cure" has nothing to do with the fact that all people deserve acceptance and understanding. ABSOLUTELY NOTHING.