Showing posts with label autism information. Show all posts
Showing posts with label autism information. Show all posts

Monday, December 19, 2011

How to be and not be an advocate


So you want to be an advocate. You want to help others with a cause in some way. Most advocates on the internet are volunteers, using what they know to help others. Some actually have a good relationship with schools and law enforcement; others even have some legal pull. Whichever of these you want to be, you will have to consider a few things that I strongly advise. I advise this from personal experience and events I have personally witnessed. I hope this helps you. Consider it a ‘do’s and don’ts of advocacy. I’m going to speak from the advocacy of autism, but this really does go about the same for whatever cause you support.


First of all, if you want to be an advocate with legal backing of any kind, make sure you get the education and any proper licenses you need. Take classes and obtain a degree. Don’t go out and make wild claims to puff yourself up, like claiming to be a DC Lobbyist. Things like this (all DC Lobbyists are accounted for and fully listed for the public) are easily found out and will hurt your standing as a trustworthy advocate. Be able and willing to show your credentials if you claim to be a legal advocate. The sad truth is that some people out there just want your money or to be seen as something important. They are willing to use others to achieve this. Don’t be one of them. Advocates like this can do way more harm than good.

Educate yourself on your cause as much as you can and always be ready to update that education as terms and issues change. Research, research, research, learn how to do research. The more you educate yourself, the more help you can be to others.
Aside from your working knowledge, you need to protect your image. A lot of internet advocates don’t do this. Your image is how people see you and worse, how they may choose to portray you. I can tell you that autism is as bad as politics when it comes to advocate mudslinging. There are advocates out there who see this as a competition for who you should go to. Don’t get involved in that. Let me tell you a little story, (some of you long time readers may know it already).

In late 2009, a young man with autism was restrained in his school and struggled to get free. He was charged with felony assault and the family was in turmoil. The boy’s grandmother came to the internet seeking any help she could. Advocates came together and put up a “chip in” to raise money for legal fees. During this time (into 2010) the Grandmother stated she was being harassed and investigated by a group of other “people” on the internet. I stepped in and tried to get them to stop. I tried to be Mr. Internet Hero and let me tell you something. Pay close attention to these words.

It blew up in my face. Do NOT do this.


All I did was make myself a target. I thought I should warn the autism community about my experience and that was the wrong thing to do to. I had my past dug into and slathered on the internet (20 years into my past). There was a case where I filed a suit against and an employer. Naturally they made several accusations against me to protect themselves. Those digging, took those accusations and posted them on the internet for all to see. Accusations that are not an accurate reflection of who I am were posted and they were damaging. I’ve been fortunate to have readers who know me and were able to see how much hostility were in the postings. Since then, to this day, I’ve been hounded, harassed, and even threatened. I’ve been accused of being some ringleader of white collar crime and had everyone who wants to put me in their own internet court room pop out of the woodwork. I’ve had some of the nastiest comments and postings you could ever think of posted at or about me. It’s not pretty, not nice, mature or ethical. All because I thought I was standing up for someone else.

If you want to stand up for someone’s rights, do it with the people who matter to those rights. Tell your client to block all attackers, that’s what the block button is for. And then block them yourself. Do not confront, you have no idea what kind of mentalities you will be dealing with and they will attack your image and anything else they can.


I have found that my advocacy is best done as simply giving out the information that may help others. I give advice where I can and will no longer ever engage in trying to “protect someone” on the internet. I can’t. I will give advice on what to do. Block them, ignore them, and keep up on what’s important. There are many internet advocates who go out and pull the “rallying” card to get people to shut so and so down, etc. It’s not worth it. All you’ll do is make yourself a target. Put the time into actually helping others, a far more rewarding issue. I’ve gone so far as to remove all mentions of negativity and other “advocates” or attackers from my blog for sake of being a more positive place for others. The same cannot be said for my pursuers. So learn something from my mistake, okay? Avoid the dramas the best you can.

So, hopefully, this gives you some ideas on what you should and shouldn’t do to be an advocate. Remember there are several types of advocates, research them to see what you can do best.

Monday, July 25, 2011

Autism: Suggested reading


I recently picked up my first copy of The Autism File magazine. What I found in its pages were reader friendly and informative articles. These articles come at nearly all fronts of what you want to know about autism. In the edition I picked up were articles about summer activities, picky eaters, recipes, breakthroughs on interventions and quite a bit more. A favorite of mine for this issue was the article on being prepared for bullying. Since a new school year is up and coming, it's an important issue. The article I picked up is the Summer Issue number 40. I strongly suggest you pick it up and subscribe to this magazine. It's amazing.

The magazine also has some suggested reading in it and I will be checking this book out soon myself. It's called, 1001 Great ideas for Teaching and Raising children with autism or aspergers. That just sounds like a great book right off the top.

Another one suggested in the magazine that looks good is called, 60 Social situations and discussion starters. It's a book for teens on the spectrum to help in learning about freindships, feelings, conflicts, and general aspects of relationships. I think I will be checking that one out too, even though my son is only 9 right now. Hey, time flies right?

I have to suggest Understanding Autism for Dummies again. If you haven't checked out this book, do it soon. It's an excellent resource for Asperger's from diagnosis to helping learn relationships. It has great suggestions for how to handly various situation in public and as your child grows. It even has suggestions for moving into adulthood.

I think it's important to have a good set of home resources for autism. Yes, the internet has lots of info, but it's nice to be able to pick up a book and flip open the pages to the info you need.

You can google research autism literature by typing in autism book or aspergers respectively. Amazon has about every book you could hope for and you might get it for less. There's noting wrong with a used book unless it was hopelessly abused (then it shouldn't have been sold in the first place).

With E-books on the rise, you should also check out sources for those. I've been told you can get just about any book for your Nook or E reader out there. If you get E-books already, check your source for autism info.

Do you have a book or magazine for suggested reading? Post it in the comments so everyone can check it out!